Inflammatory Bowel Disease (IBD)

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Inflammatory Bowel Disease (IBD)
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The Mighty's Crohn's Disease community is 76,000+ people strong, but there's always room for more. Follow along or join in today—whatever is comfortable for you!
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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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Update; Shower Nightmare & Shower Stool

Hello Mightys, first I want to thank everyone for the suggestions and support I got on my post!

Secondly for some reason my previous attempt at a post didn’t go through so now I have to retype everything.

The past few showers and days have all been the same exhausting and irritating experience;

Nausea, Dizziness, Faintness, Shaking, Tremors, Winded, Fast Heartbeat, and Exhaustion.

I have to repeatedly sit down every minute while attempting to shower which is very unpleasant as there is nowhere to sit and I end up sitting on the shower floor and it’s very uncomfortable.

Those who suggested a shower stool, I am looking into it and can see how helpful it would be; it would make me not dread showering and make the task overall easier for my chronically ill body.

I did finally reach out to a doctor and got back from them, I will see them soon.

I didn’t mention or suggest PoTS though I know it was mentioned previously, I’m just too shy to be that direct, but I will be seen and likely go through a test that should make it see if anything indicates that.

I will keep all you informed and share how things go. 🦋

#ChronicIllness #CrohnsDisease #InflammatoryBowelDiseaseIBD #AutismSpectrumDisorder #ADHD #Undiagnosed #PTSD

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Post Shower Nightmare

Firstly I’m very thankful for all the comments and suggestions and want to reply to them but I just don’t have any energy at the moment which I apologize for.

But I need some advice.

I took a shower and everything fell apart;

I got so lightheaded and dizzy I almost passed out as I felt so winded I was breathing heavily, shakily, and quickly because I felt like I couldn’t get any air.

I had to sit down in the shower to avoid fainting.

My heartbeat was likely high as it felt so while in the shower, when I got to my room it was over 113bpm.

I was shaking so much and still am as my hands are trembling a lot.

I was so nauseous I felt like throwing up and am still nauseous and experiencing the same thing.

I’m also exhausted feeling weak as I had to get right back on my bed,

I admit that I do feel like crying at the moment from how miserable I feel and how I’m going to keep experiencing this after I shower.

I don’t know how to tell people about this, I’m afraid of being seen as dramatic or not being believed.

My hands are still shaking like a leaf.

Any advice is much appreciated.

#CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #ChronicPain #MentalHealth #MajorDepressiveDisorder #GeneralizedAnxietyDisorder

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Why I Hate Showering Told By Chronically ill Teenager

Hello Mighties,

it’s been a while since you last heard from me and I apologize for the absence;

you know how health can be while chronically ill, and I hope you all don’t mind but I’m only posting once a week now which I’ll explain more in another post but I wanted to write about this first as I have a lot to say.


To those who don’t know me, I am Kocho, a teenager living with a chronic illness diagnosed when I was only fourteen years old.

I created this account to connect with a community who can understand me and maybe I can help make others feel less lonely and isolated due to their condition or conditions.

I’ve been here for quite some time now and I wish I found the app sooner! It was very lonely and overwhelming when I was first diagnosed;

I couldn’t go to school, I couldn’t go to events I would’ve found exciting, I couldn’t keep up with friends, feeling so nauseated with just a spoon of broth I could hardly eat, I couldn’t eat hardly anything without being in severe pain, and at some point, I could barely walk and needed assistance from the people around me.

My life consisted of medical appointments, multiple doctor visits, surgery, bloodwork, MRI, hospital visits, X-rays, and more I can’t remember as it’s all a blur when I look back at it.

I wish I could say I’m recovered but as many of us know, the illness is chronic and never leaves and I still struggle with these things as I’m approaching my ninetieth birthday; becoming more independent while chronically ill.

And that includes showering more often, which I hate, now I’ll tell you why;


People with chronic illnesses often struggle to shower because of the physical and mental energy required to do so.

Bending, standing for prolonged periods, and even just bathing leaves me exhausted, in pain, and out of breath instead of feeling refreshed.

Often in the community, we refer to showering as an exercise because it is for us.

It’s like climbing a mountain without being given any necessary equipment; I find myself having to sit down several times from using muscles and areas of my body that already are painful like my left knee and areas of the body that are already weak.

Which means sitting on the floor of the shower every few minutes is normalcy for me.

Most of us struggle just to get out of bed because we’re constantly at low battery life; this means we don’t have the energy needed to complete what others consider daily tasks.

Once I finish my shower I already feel completely drained of energy and need to rest.

In addition; fatigue, brain fog, and other symptoms make it difficult to find the energy and motivation needed to complete a shower.

And when we do complete that shower, or energy levels are either completely gone or almost;

I took a shower yesterday and had to rest for most of the rest of the day.

Showering steals the energy from me to enjoy my day which is why I hate it.

#InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain

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Are you struggling with chronic pain, anxiety, or age-related health challenges?

Meet Kristo—he suffered from pains in his body, fibromyalgia, three heart attacks, and one stroke, and has been using a sleep apnea device since 2012.

After 25 years of diligently following the medications and surgeries prescribed to him, his long-term doctors informed him in mid-May 2019 that they could no longer do anything for him. By this point, his body had deteriorated significantly.

He could no longer walk well. His vision was only 30% after two failed eye operations. Using two crutches, he could move a maximum of 100 meters before losing balance and falling over due to the pain. He had been suffering from chronic fatigue for at least 30 years, dragging himself through each day.

His wife, his caregiver for many years, juggled her job in childcare with an unpaid "job" as a nurse, driver, cook, cleaning lady, gardener, and chef, leaving her little time in her busy, hectic life.

Kristo was told to get comfortable in a scooter for disabled people and a wheelchair because that was going to be his life going forward. Their world fell apart - until a friend introduced him to our program.

See the new man! Kristo’s journey from chronic fatigue and debilitating pain to renewed vitality is just one example of how our program is helping many people get their lives back holistically, without medications and surgeries.

We are looking to talk to 60 men and women, especially those over 50, who have health problems and are serious about finding a proper solution.

Your insights will help us build a program tailored to your needs. Participants will be rewarded with a 10% discount when the program launches. It provides transformative results, by the way.

Interested? YES or NO?

Comment below if you want to participate!


#ChronicFatigue #ChronicIllness #ChronicDailyHeadache #ChronicLungDisease #ChronicPain #chronic #ChronicLungDisease #ChronicInflammatoryResponseSyndrome #ChronicPancreatitis #ChronicTraumaticEncephalopathy #ChronicObstructivePulmonaryDisease #ChronicOrthostaticIntolerance #ChronicVestibularMigraine #MentalHealth #Addiction #chronic #Anxiety #Arthritis #BackPain #CeliacDisease #CommonVariableImmuneDeficiency #ComplexRegionalPainSyndrome #Eczema #EosinophilicEsophagitis #HashimotosThyroiditis #ChronicLymphocyticLeukemia #HashimotosThyroiditis #InflammatoryBowelDiseaseIBD #InterstitialCystitis #IrritableBowelSyndromeIBS

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I'm new here!

People's Advocates for Total Health works to provide advocacy and connections to better health in communities across the United States. Our original focus was Ehlers Danlos Syndrome, but we now support doctors, coaches, advocates, and educators in supporting invisible and chronic illnesses in every way possible. Right now we are spearheading a fundraiser to provide 300 families with genetic testing for EDS. To donate or find out more, reach out or go to #MightyTogether #Dysautonomia #Dysphagia #EhlersDanlosSociety #EhlersDanlosSyndrome #chron #PolycysticOvarySyndromePCOS #InflammatoryBowelDiseaseIBD #Infertility #LymphomaNonHodgkin


I’m new here!

Hi, my name is heatherk1968.

#MightyTogether #Anxiety #Migraine #Fibromyalgia #ADHD . I also have chronic fatigue, cyclical vomiting syndrome, inflammatory bowel disease, and a few others. I love to read and watch Facebook videos. I teach private music lessons very part time. I am glad I can still teach a few hours a week.

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