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I Hate Writing

Hey, everyone!

Sorry I haven’t posted in a bit, been working on articles for my website. Hope you’ve all been doing well!

Wanted to let you know about my new article on my website, My RemARCs. It’s titled “I Hate Writing” and is about my journey from hating to write to where I am today, loving it and trying to make a career out of it! Would love if you’d check it out and give me your feedback! I’ve added the link below.

Thanks so much, can’t wait to hear your thoughts! Also, I promise I’ll post more consistently from now on.😁
#liveremarcably #myremarcs #SMA #SpinalMuscularAtrophy #MuscularDystrophy #RareDisease #WritingThroughIt #Writing #TheMighty #Disability

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Check In

One thing I’ve learned in the past few years is that it’s important to have people in your life who are there for you.⁣

Family is great. Nothing can replace them, and they’re definitely always there when you need them... and even more so when you think you don’t need them.⁣

God is number one on the list of people(?) who are there for you. He’s always there. Even when you think you can’t see or hear Him, He’s there quietly working and waiting for you to give everything over to Him.⁣

But God also created us to need friends. To need someone to share our lives, experiences, ups, and downs with. Someone who will simply check in on us. It doesn’t always have to be a best or close friend, sometimes it’s just someone willing to take the leap and say, “hey! I hope you’re doing well. How was your week?”⁣

So this is me being that person. This is your end of the week/beginning of a new week check in.⁣

How was your week?⁣

What’ve you got planned for this week?⁣

Let me know below, and I hope you’re doing well!⁣

#liveremarcably #myremarcs

#whatsup #checkin #checkup #checkonyourfriends #familyisforever #Family #Friends #BestFriends #Newfriends #bffs #god #Godisalwaysthere #NeverAlone #takealeap #leapoffaith #Weekend #newweek #Newstart #sunday #SMA #SpinalMuscularAtrophy #wellness #letstalk #writer #Blog #website #disabilty #RareDisease #MuscularDystrophy

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What UVA Basketball And Having SMA Have In Common

Wrote this article about a month ago for the first post on my website, about my life with Spinal Muscular Atrophy and how I found similarities between it and the University Of Virginia Basketball team. Would love for you to check it and hear your thought!

#SMA #SpinalMuscularAtrophy #liveremarcably #myremarcs #uva #virginiacavaliers #Basketball #Disability #RareDisease #Wheelchairlife


Finally On #TheMighty

Hey everyone! So glad to finally be here on The Mighty, I’ve been reading the articles for a while now but for some reason never joined.

Just to give you a quick rundown on who I am, I’m a late 20 something guy who’s into movies, tv shows, sports, art, writing, and chillin with a cold whiskey and ginger. I was born with a disease called Spinal Muscular Atrophy and, because of that, have used a power wheelchair since I was two. I haven’t let it stop me or get me down, I went elementary, middle, and high school and graduated with an advanced diploma. Unfortunately I wasn’t able to go to college because of declining health but, instead, I watched and read and learned as much as I could/can on my own. Just in the last few months I’ve started a website called My RemARCs where I talk about my life with SMA and how God, my family and friends, and a sarcastic sense of humor have helped me to navigate this crazy, messy, beautiful thing we call life. I’d love to have you check it out! You can also find it on Instagram, Twitter, and Facebook at @myremarcs .

So now that you know a little bit about me, tell me what some things are that I should know about you, The Mighty, or who/what I should follow! Thanks!

#SMA #SpinalMuscularAtrophy #liveremarcably #TheMighty #RareDisease #Wheelchairlife #Disability #Faith