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Polymyalgia at 42 years of age

#Arthritis #LowMuscleTone
#Depression #axiety
#Rare disease #Rare disease #Rheumatology #ChronicPain #Disability #Colectomy

My thought: I am 42 year old female from Middle Europe. I have had recurrent inflammatory reaction in my whole body, they usually start after a common cold
My inflammatory levels sometimes went up to 25000 Leucizystes and C-reaction Protein(CRP) 140.

I got into Burnout depression in February 2019. I was too often soooo sick , and the CEO was terrible, that I had to take a day 3 days, once 3 weeks off.

Then I fell........... Into a black hole ⚫️⚫️⚫️
I asked for disability benefits.
Didnt get anything so far.

Now 3 Years later I work part-time again (3 days per week, 11-12 hour per day)
But I have money problems. Cant pay my tax bills. Living costs are just enormously high, so I sometimes dont know how to get food at the end of the month.
And I still dont get monetary benefits from anywhere.

I almost died a month ago, due to inflammatory reaction, recurrent throwing up and salt deficiency.
After the near-death I needed a wheelchair for the first time in my life.

About Wheelchair use in our public State hospitals : it is not like in the US netflix shows, when patients are taken anywhere by wheelchair.
It is more like, "oh, hello nurse, I want to get some fresh air but I am too able to walk, so mayyyybe might I borrow a wheelchair?"
Nurses were really good. Professional and so friendly. So they gave me a wheelchair.
2 days later the doctor took it away from me.

When I entered hospital, I way already soporous and always fell "asleep " - due to severly low sodium.
I survived.
I am so glad to have survived

But I have the next flare. Spent the morning in a fancy private hospital in the City. They were so nice with me, and still totally professionals, so I feel good to get treatment in this hospital for my recurrent inflammatory reaction.

If my body gets better within 10 days, when my 2 week vacation starts, I want to go wild camping in the woods. It is free of charge, generally accepted as libg as you dont behave like a wild boar. I can walk quite well on flat streets and paths , and I just live walking in the nature a lot. And sleeping outside, away from daily life. I want to do that .... hope my body will be better by then.

So now I am waiting for my blood results. I guess they do some pretty upspaced lab tests. And I see my rheumatologist next week. There is hope that I can get on "Biologicals "/ monoclonal antibodies.

So actually my question to you Mighties.
Does any of you have inflammatory body reactions with muscle pain, fever, Night sweats, fatigue / malaise, loss of apetite/ loss of weight?


Do you think Antidepressant/SSRI induced chronic illness is possible? #Undiagnosed

I’m almost 20, and I’ve been on antidepressants (name it, I’ve probably been on it at some point) since I was eleven. I honestly believe they stunted my growth (I barely have a menstrual cycle and I literally look like a 12 year old permanently. It sucks. On top of that, I was premature so that adds to the equation lol). I’m starting to think that my physical issues could be the result of accidental antidepressant abuse. Accidental, meaning I didn’t really have a say in the matter, for various reasons. Plus I bet my parents never thought about it and think everything’s so normal). If you’ve had antidepressant induced chronic illness, or know someone who had something like this, lmk

#Antidepressant #SSRI #ChronicIllness #ChronicPain #ChronicFatigue #MyalgicEncephalomyelitis #Lupus #LymeDisease #PosturalOrthostaticTachycardiaSyndrome #MedicalTrauma #Dysautonomia #AutonomicDysfunction #Prematurity #Amenorrhea #UndiagnosedIllness #Dysphoria #Dyspraxia #SensoryProcessingDisorder #MultipleSclerosis #LowMuscleTone #Trauma #Depression #MentalHealth #Anxiety #Fatigue #Neuropathy #Inflammation #Tinnitus #Fibromyalgia #DependentPersonalityDisorder #HistrionicPersonalityDisorder #BorderlinePersonalityDisorder #EmotionalAbuse #RejectionSensitiveDysphoria #help