undiagnosed illness

It’s been a while since I’ve been here. I was doing quite well until recently and now I’m sadly back needing support from those who understand.

Just over a week ago I was taken to the emergency room with severe abdominal pain. I spent 12 hours in the ER only to be told it was likely a ruptured ovarian cyst (due to my history of PCOS), given painkillers and sent home. This was on the Friday evening into Saturday morning. On Sunday evening I returned to the ER with the same pain, and waited 9 hours to be told it was a UTI, be given antibiotics and sent home. Wednesday I saw my GP and was referred to gynaecology, where I was inpatient until Friday. I had an ultrasound which revealed nothing, and the only abnormalities they’ve found is the UTI, which doesn’t explain the amount of pain I’ve been in (an amount that requires morphine). I finished my course of antibiotics and still being in pain, went to see my GP again today. My GP gave me more antibiotics and painkillers but still doesn’t know what’s wrong with me. I’m incredibly lucky to have the most amazing friends who will sit in the ER with me for hours on end, as well as answer their phones at all hours of the day should I need them, but it’s incredibly frustrating that nobody can figure out what’s wrong with me and they’re still just throwing drugs at me. #ChronicPain #UndiagnosedIllness #severepain #EmergencyRoom #Hospital #gynaecology

i genuinely can’t figure out if my excessive weight gain is a symptom of whatever is going on with me or just because i sometimes eat too much bread and sugar, but i haven’t gained much weight in my legs as my stomach area and hips so that’s kinda weird. but it causes so much anxiety because I barely want to eat anymore because I know i might keep gaining weight even if I eat normally (that’s if it’s a illness thing). I don’t want my blood sugar to crash or anything. Hopefully in the next few weeks I can clear it up bc i think I’m seeing an endocrinologist soon, but it’s so scary to think about bc things that cause weight gain like cortisol diseases can be dangerous.
#Depression #PosturalOrthostaticTachycardiaSyndrome #Lupus #AddisonsDisease #CushingsSyndrome #AdrenalInsufficiency #HypothyroidismUnderactiveThyroidDisease #MentalHealth #EatingIssues #LymeDisease #UndiagnosedIllness #Undiagnosed #autoimmune #BodyImage #Anxiety #Inflammation

I’m almost 20, and I’ve been on antidepressants (name it, I’ve probably been on it at some point) since I was eleven. I honestly believe they stunted my growth (I barely have a menstrual cycle and I literally look like a 12 year old permanently. It sucks. On top of that, I was premature so that adds to the equation lol). I’m starting to think that my physical issues could be the result of accidental antidepressant abuse. Accidental, meaning I didn’t really have a say in the matter, for various reasons. Plus I bet my parents never thought about it and think everything’s so normal). If you’ve had antidepressant induced chronic illness, or know someone who had something like this, lmk

#Antidepressant #SSRI #ChronicIllness #ChronicPain #ChronicFatigue #MyalgicEncephalomyelitis #Lupus #LymeDisease #PosturalOrthostaticTachycardiaSyndrome #MedicalTrauma #Dysautonomia #AutonomicDysfunction #Prematurity #Amenorrhea #UndiagnosedIllness #Dysphoria #Dyspraxia #SensoryProcessingDisorder #MultipleSclerosis #LowMuscleTone #Trauma #Depression #MentalHealth #Anxiety #Fatigue #Neuropathy #Inflammation #Tinnitus #Fibromyalgia #DependentPersonalityDisorder #HistrionicPersonalityDisorder #BorderlinePersonalityDisorder #EmotionalAbuse #RejectionSensitiveDysphoria #help

I’ve been shaky and hyper reactive all day today, with horrible tightness in my chest area and throat. Now I haven’t slept all night and my chest area is in crushing tightness and pain. I feel like i can barely take a deep breath. It sucks.
I also need an alternative test for Lyme/Bartonella besides Igenex because I don’t trust that company. I need a brand doctors trust and don’t give many false positives. I decided, after denying myself for a while, to test again.
Thanks.

Just had to vent for a bit.

#Undiagnosed #Lupus #ChronicIllness #ChronicPain #MyalgicEncephalomyelitis #AutoimmuneDiseases #UndiagnosedIllness #LymeDisease #Bartonella #AutonomicDysfunction #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #ChronicHeadaches #Depression #Anxiety #MentalHealth #MedicalTrauma #Pain

Well, I was discussing with my grandmother earlier about my past “diagnoses”. She had actually mentioned as a child, I had poor muscle tone, tremors and that some doctors suggested I may have had cerebral palsy. I also probably had widespread pain ( of which I don’t remember, I’m just guessing based on all the stomaches and headaches I complained of as a kid) and I had moderate fatigue in kindergarten and first grade that I had checked out. i also remember ocassional stabbing pains, and inability to focus, among other occurrences.
Of course, my mother never mentioned this to me. But it’s a big step: knowing that these issues: system and body wide, didn’t really just start two years ago, and it’s most likely autoimmune or genetic. There were always little clues of physical issues in my childhood, and it’s just gotten slightly worse in my adulthood. This is my current standing theory. It may change, but for now I’m relieved I have more clues.
#Undiagnosed #ChronicPain #ChronicIllness #ChronicFatigue #MyalgicEncephalomyelitis #Lupus #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #LymeDisease #MentalHealth #Depression #Anxiety #HealthAnxiety #UndiagnosedIllness

I currently take cymbalta 90mg, have for a year, and it makes me feel horrible. I have extreme brain zaps/tremors/dizziness, palpitations, sweats, musculoskeletal pain, general flu feeling, ataxia, and this is when I don’t take it. When I take it, I feel the same, but less. Thing is, I felt symptoms and pain (not all the same to withdrawal symptoms, though. Similar.) even when I wasn’t taking Cymbalta a year ago, so it’s definitely not the sole cause of my pain. Does my medication aggravate my symptoms and cause me more pain? Has anyone had the same experience? #Undiagnosed #CymbaltaWithdrawal #ChronicIllness #ChronicPain #MyalgicEncephalomyelitis #Lupus #LymeDisease #Fatigue #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #UndiagnosedIllness #AutonomicDysfunction #autoimmune #ChronicFatigue #AntidepressantDiscontinuationSyndrome