Optic Neuritis

Hi, my name is dreamer86
When I was 32, it started with just eye pain then went completely blind in my left eye. I was sent to an eye doctor which diagnosed me with Optic Neuritis, then sent to palmetto infusion for steroids, but after time my vision came back but not all the way. They then sent me to a neurologist that said I had swelling on the brain and to be careful and watch for signs of a stroke. I thought the worst of everything what if something was to happen to me what would my baby girl do with out her mom then, I thought that was the end of it but it was really just the beginning. A year later I was at work and noticed my right leg was dragging behind me but I didn’t let it stop me I kept going, later that day I also realized I didn’t have feelings in my leg and I’m so glad a month before that I had switched neurologist, and she had me go for a MRI ,blood work. That’s when everything changed. They found a golf ball size lesions on my brain and I was diagnosed with MS August 2019.

I was a hard working single mom, And in one moment I felt that everything was over and everything I use to do, I would not be able to do. I had to come to how to live in constant pain, how to function while completely exhausted. How to accept that some days, I need help — mobility aids, support, and rest.

MS affects me every single day, even if you can’t see it. Behind the smiles, I carry the quiet weight of knowing that at any moment, I could lose so much. But even with all of that, MS didn’t break me. It made me stronger. It made me grateful. It made me a fighter. It showed me who my true friends are. It revealed the strength of my family and the love that surrounds me. No, my life will never be the same. But it’s still mine. And I’m still here — living it with courage, heart, and purpose.

Now here I am 7 years later getting diagnosed with osteoarthritis that will soon turn to rheumatoid arthritis, and degenerative disc disease at the age of 39. I was told I have to walk with a cane are walker and have braces on my legs. I’m thinking oh my at such a young age why me, but I know I’m strong and will always keep going and keep pushing through. The nurse that day asked my pain level and I told her, and she said you don’t look like it, I said that cause I’ve learned to smile through the pain and discomfort, that I have had for the past 3years.
#MightyTogether #Depression #MultipleSclerosis #ADHD #Anxiety #Migraine #Osteoarthritis

Hi, my name is idrivethecrazytrain1. I'm here because I have questions regarding being in the middle of testing for MS, CIS, or possibly Mysthenia Gravis (although I received a diagnosis of MS but they are making sure it isn't something else now). I am diagnosed with ADHD, and it's severe. How can I figure out what are symptoms of a flare or if it's just my ADHD? Not the pain aspect, but the mental aspects like sudden slurred and slow speech, forgetting how to pronounce words and forgetting super fast and easy, and so on. I feel like I have had all the symptoms this past month or longer and it seems to be getting worse! I do have a new neurologist and another MRI and appt with my optometrist too (I have optic neuritis). Any help would be amazing!

#MightyTogether #Anxiety #Depression #PTSD #ADHD #MultipleSclerosis

Hi, my name is Linda. I'm here because I have been in the process of getting several diagnosis, and awaiting others to get started, and searching for clues about symptoms I'm experiencing with no answers. My feelings can be best described as being on an deserted island with no compass, no resources to help me survive, wondering if I will ever find my way back home.#MightyTogether #RheumatoidArthritis #Lupus #myopathyoverlapsyndrome #Osteoarthritis #SupraventricularTachycardia #Dyslexia #SleepApnea #Asthma #heartmurmur #Hyperacusis #Tinnitus #Costochondritis #ChronicPain #GERD #Chronicbronchitis #IBS #OpticNeuritis #anemic

Hi Everyone!
I am Amina and I was diagnosed with MS in 1998. My life progressed as normal but for the constant fear that my MS might one day look like my mom's did -- the absolutely worst form of PPMS. So far it hasn't turned out that way.

Though I, too, have PPMS, the progression was really slow allowing time to accept and adjust. In the last four years the progression has been faster. Now I use a wheelchair and and there are numerous other losses of abilities. Everything I do is difficult. The only two acute events were an episode of optic neuritis and a very recent loss of most of the strength and dexterity of my dominant hand. Of everything, the hand is the single most devastating, -- except for the abject loneliness and isolation.

I survive by being grateful that my MS hasn't ravaged my body and my self as badly as it could have. I go about my life and do what I can. I have my difficult feelings but life isnt going to stop just for me. Once I've gotten out of the bed, the ball is set in motion. No matter how sad, lonely, or miserable I feel, the ball keeps rolling because the alternative is unthinkable.

#ppms #MultipleSclerosis

Hi Everyone! I am not sure where any of you are located, but on May 18th 2024 there is a National Alliance of Mental Health walk that I participate in every year.
I was wondering if there is anyone here who would like to join my team? My team is The Mighty Minds. :) We will walk to help stigma on Mental Illness. If anyone would like to join or donate to my team I will put the link below.

It would be so cool to have you guys there. I'd love for anyone to be a part of Mighty Minds!!!

www.namiwalks.org/participant/Rachel-Tepper

If the link doesn't work you can message me on here and we will figure it out. I'd love for you to join. ❤️

#MentalHealth #BipolarDepression #Depression #Anxiety #CushingsSyndrome #OpticNeuritis #MultipleSclerosis #Steroids #Sarcoidosis

I make a to do list every night before I go to bed yo see what I can accomplish the next day. Today I was able to get out of bed and meal prep for the rest of the week. I am proud because I started it and then went to lay down because of pain. But I got back up and finished it later. Small steps. :)
#ChronicPain #Depression #ChronicIllness #OpticNeuritis #CushingsSyndrome