Ovarian Cancer

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What’s something you’ve learned to accept while living with infertility?

Navigating life with infertility is complex and multifaceted. It can affect many areas of your life, not to mention the grief and stigma that often accompany the experience.

What’s something you’ve learned—or are learning—to accept on this journey? What has your road to acceptance been like? If you’re not quite on that path yet, how far have you come? What roadblocks have stood in your way?

#Infertility #Endometriosis #OvarianCancer #Grief #PolycysticOvarySyndrome #ChronicIllness #ChronicPain #RareDisease #CheckInWithMe #MentalHealth #Anxiety #Depression #Selfcare #Trauma

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Ovarian cyst- male doctors suck!

The size is 12cm. The doctor - a male doctor, of course- wanted me to wait for 6-12 months to have a second ultrasound.
All I wish is 1 year of regular menstrual cycle in a men's life: the cramps, the mood swing, the everything.
By the way, my therapist comment that the pain was lack of sexual life also proves that men needs to have that experience too.
Finally I got a referral to a woman gynecologist, hopping she would not blame me for that! #OvarianCancer #women 'sHealthy

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To my tea loving sisters here......

This particular tea is part of my wind for awesome sleep regimen l. I pop 600 mgs of Calcium, 500 mgs of Magnesium, 50 mgs Zinc for good measure, spray the head of my sleeping quarters with lavender oil & wash them down with my tea here. It is a very nice relaxing glass of iced Passion tea. ..I had my Feminine plumbing removed over an ovarian cancer scare & there went my hormone chemistry for better sleep. It has taken me awhile to figure this formula out but it works well for me 5 out of 7 nights. I see no physicians now. So, the good Lord is in charge of me Temple we be good with his care. Anyway for anyone dealing with that wretched insomnia this is a just a suggestion.

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How do you explain endometriosis to others?

For those who have never experienced endometriosis symptoms before, it can be challenging to understand how debilitating they can be.

How do you describe or explain your life with endometriosis to others — whether it’s to your doctor, family or friends, or someone at work? Share in the comments below. ⬇️

#Endometriosis #OvarianCancer #RheumatoidArthritis #Cancer #ChronicPain #ChronicIllness #IrritableBowelSyndromeIBS #Diabetes

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Check out our new ER+/HER2- breast cancer condition guide!

Are you or a loved one diagnosed with ER+/HER2- metastatic breast cancer and looking for a resource with information that combines expertise from both medical experts and patients? We got you!

Here is what you will find in our new condition guide:

✅ What Is ER+/HER2- Metastatic Breast Cancer?

✅ Managing ER+/HER2- Breast Cancer

✅ Common Breast Cancer Misconceptions

Mental Health and Metastatic Breast Cancer

✅ How To Talk To Others About Metastatic Breast Cancer

✅ How To Support Someone Living With Breast Cancer

Take a look at (and bookmark!) the condition guide here:

The Mighty's ER-positive/HER2-negative Metastatic ...

#BreastCancer #Cancer #BoneCancers #OvarianCancer #LungCancer #ThyroidCancer #lymphoma #ChildhoodCancers #MentalHealth #ChronicIllness #ChronicPain #Caregiving #Grief

The Mighty's ER-positive/HER2-negative Metastatic Breast Cancer Condition Guide

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Lifeaversary 2023

Lifeaversary. May 24, 2023

Appears this morning in my CaringBridge Blog *Ovarian Dancer*

We lost Gilda Radner 34 years and four days ago. But I was NOW old when I realized that Gilda's Yahrzeit ("deathaversary") falls on the same English date as my own ovarian cancer surgery three years ago. I always identified with Gilda Radner. I just knew that if I could be as funny, as skinny, as cute and appealing as Gilda was, I'd be unstoppable. I'd attract all the relationships I could want. Or maybe the only one I'd need. Gilda even married my first true love - Gene Wilder. Wow. You go, girl. If I couldn't have Gene, Gilda was the perfect one to get him. Like Angelica Schuyler in Hamilton, who rejoiced at the pairing of her secret love Alexander with her beloved sister Eliza, I sighed a deep sigh... not a sigh of envy, but a sigh of deep satisfaction.

And then Gilda Radner got cancer. Ovarian cancer. The bad one. The cancer you definitely don't want to have. The cancer that took my aunt in 1986. This couldn't be ok. "Please, please, PLEASE, " I prayed: "Please G🎶d, please heal her. She's made it. She has everything a person wants in life. She's worked so hard and she makes the world so happy." This was years before seminary. I had no idea I was echoing Moses' prayer from the Torah, book of Numbers, chapter 12 verse 13. I knew Gilda had a fight ahead of her, and that the cure could be worse than the disease. Nonetheless, I prayed.

My prayers were in vain. Gilda Radner passed away May 20, 1989. Ovarian cancer 2, Jews 0. Little did I know cancer wasn't done with my family (yes, I considered Gilda Radner family even though I never met her. The BRaCA gene mutation wasn't yet in the public eye, much less did we know how prevalent the double helix runs through Ashkenazic Jewish families).

Before she died, Gilda Radner used her illness to give meaning to the lives of other cancer patients. She got together with fellow cancer warriors in solidarity, with food and conversation. Nobody whispered the word "cancer" nor avoided saying it. Instead, they laughed it out loud, with Gilda as their instigator.

When I first read about "Gilda's Club," I couldn't imagine, even with my irreverent funnybone, how laughter could possibly rise from the ashes - or barf bag - of chemotherapy. Then a laughable moment popped up in 2004 with my friend Renée Coleson, of blessed memory. I was staying at Renée's New York apartment; she happened to be in remission and was wearing a wig to cover her crew-cut-length regrowth post-chemotherapy. One day she asked me to please remove my hair from the shower drain. I spontaneously cracked, "How do you know it's mine??" We both cackled. I began to understand "Gilda's Club."

Today, my colostomy stoma is named Petunia 🌺 because I needed a cute, adorable name for something that's the total opposite of cute and adorable. My erstwhile Stage 2C ovarian tumor is Audrey 2 👺 🌵because she was huge; it took my surgical team more than five hours to machete through all her pernicious, fibrous human-eating roots, vines, and fangs and wrestle her out of me (see why I have Petunia 🌺?). It makes perfectly imperfect sense that the month and day of Gilda's earthly exit is the same day I began to be brought back to life. I'm well aware that Gilda and my aunt didn't have all the developments in treatment in the mid-1980s that I had in the early 2020s. But she had a wildly creative humor that put life in her years, if not more years in her life. That gift has branched out to richen the lives of other cancer warriors and their loved ones. I'm grateful it continues to strengthen me as well.

Thank you, Gilda. Rest in power and punchlines. 😢

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Sad situation I need prayer please

A 7th grader from my church kylee took her life last week. I'm really upset about it because I am complaining about having ovarian cancer which is hard but God is giving me a chance at life that little girl didn't stand a chance. #Suicide #Depression #Cancer

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Life with cancer a harsh reality

This morning I woke up and brushed my hair and clumps of hair came onto my hairbrush. I have my second chemo treatment on Monday for ovarian cancer and the drug taxol is making me loose my hair. This is by far the hardest thing I have had to deal with since being diagnosed in March.

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What was the defining moment or incident that made you seek treatment for endometriosis?

Living with a health condition can be frustrating and unpredictable, even on the "good" days. And when the "bad" days become more frequent or even unbearable, and you struggle to get out of bed, are forced to cancel plans, or miss work; you might decide that you need a little extra support through treatment.

What made you seek treatment, either for the first time or after a length of time without it? Share your defining moment in the comments below.

#Endometriosis #ChronicIllness #ChronicPain #OvarianCancer #RheumatoidArthritis #Cancer #IrritableBowelSyndromeIBS #Diabetes

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My ISH

My Inner Self Helper (ISH) has been protecting me since childhood. She is the Mama Bear I developed after my Mom died suddenly of Ovarian cancer when I was six years old.

My ISH is as fearless as she is filterless which gets her into trouble. I guess six year old Mama Bears would. She is worth her weight in gold though because she saved my soul by correctly recognizing when I am being mistreated.

This saved me from incorrectly believing that I deserved the mistreatment I was subjected to by those fractured beings who lost their way when they lost their own ISH. #CrohnsDisease #Gastroparesis #rarepatientvoice

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