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What do you want to let go of in March?

You know what new months are good for? Setting heavy things down, breaking stuff off, or releasing yourself from relationships, jobs, unattainable goals, gaslighting health care providers, family stressors, or unhelpful habits/thought patterns. (Phew, we had a lot to say there.)

Mighty staffer @xokat will be saying goodbye to the frustration she feels on weekday evenings/weekends when her body just… can’t. She’s trying to work on radical acceptance of her reality and hoping to save herself from the constant cycle of despair she experiences when her life doesn’t look quite like others!

Say adios to something below. 👋

#MightyMinute #CheckInWithMe #CheerMeOn #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #Disability #RareDisease #Caregiving #Grief #Autism #ADHD

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What qualities or skills do you believe makes someone a great advocate?

Great advocacy doesn’t just follow one template — it can look like a lot of things depending on a person’s skills, talents, or qualities; as well as what organizations, causes, or conditions they’re advocating for.

These skills and qualities can include being a good listener and speaker, being empathetic, caring, and compassionate, and knowing when to stand up for yourself or someone else.

What do you think makes a good advocate? Which of those skills are you good at? What do you think you need to work on?

#52SmallThings #Spoonie #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Autism #Cancer #ADHD #Disability #CheckInWithMe

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What’s one thing you can do for your mental health this week?

The concept of mental health is a little like tending to a veggie garden — you have to give it time, you have to gently nurture it along the way, and you have to prepare yourself for a downpour (or five). It takes work, it takes time. But when you’ve got the soil just right and the gem-colored veggies sprout and you get to eat them? Bliss! Because YOU did that. You grew something out of nothing. Mental health is the same way sometimes.

What can you do for yourself today? Tomorrow? This weekend? We’re here for it and are cheering you on. 🏆

#MentalHealth #MightyMinute #Selfcare #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #CheckInWithMe #Grief #Trauma #Cancer #Autism #Caregiving

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Take a step back from your thoughts

I know we all know how easy it is to get caught up in negative thinking and how hard it is to get out. I used to think that I had to somehow fight my thoughts or force them away. But after practicing mental health exercises for so long, I've learned that a much better approach to overcome this challenge is to practice non-resistance to negative thinking and to practice passive awareness of it. Think of them like how if you watch a horror movie: you can be very engaged and feel the terror, but then you can also take a step back and remind yourself that you're simply watching the movie unfold, and then the terror doesn't have the same effect. If you remember to just witness your thoughts and emotions instead of getting engaged with them, does this bring you some peace? If it seems impossible, please keep practicing. This is possible, but it takes practice to be good just like everything else you've gotten good at in your life. Do you think you can incorporate this approach to intrusive thoughts in your life?

Also, I'm so grateful for all of you and would love to get to know you all better outside of The Mighty, so if you're on Instagram, feel free to reach out at:

www.instagram.com/thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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Tell us about a time you stood up for yourself.

Hearing the success stories of others who stood up for themselves can be really comforting and motivating — especially if we’re trying to gather the courage to do it ourselves!

Mighty staffer @xokat says she felt really free when she set boundaries for how her weekends would be spent socially, and no longer packs the calendar when her health pays the price. Not everyone in life understands, but those opinions have ultimately spoke volumes about priorities!

Feel free to share your own story below. ⬇️

#52SmallThings #selfcare #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Caregiving #Parenting #Autism #Cancer #Grief #Trauma #ADHD

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RARE DISEASE DAY 2024

RARE DISEASE DAY IS TODAY

THE FIVE STAGES OF GRIEF IN PERMANENT ILLNESS
(Denial, anger, bargaining, depression, acceptance)

When you first become critically ill with something rare and difficult to diagnose, all your energy and resources are focused on getting a diagnosis. That may take a couple to a few or more years. When the diagnosis finally comes, you feel so relieved and validated that you're not even taken aback by the seriousness of it or the fact that it is incurable. You feel so hopeful that now that you have a diagnosis, you can be treated, managed, have some improvement, and get back to normal. Everything being said about your prognosis goes over your head to a large degree, because after all, there is nothing set in stone to predict your course and outcome. Every case is different and you're not "that bad" yet.

Once you know the name of your disease, you submerge yourself into researching and understanding it. You try everything there is to help yourself. Sometimes you feel convinced something is helping then, just as abruptly, it doesn't help. Something else develops. You get sicker and have to acknowledge you are declining. That is when inescapable, heart breaking, gut wrenching reality sets in. You can no longer live in denial. Your life has permanently changed. You become so angry because you are not going to get well. Life as you have known it has ended. This is your “new normal” and it will be for the rest of your life. You get mad at your body because it won’t perform like it always has. It’s a totally foreign concept that you are not going to get better. Then you start bargaining, hoping to make anything change for the better. Trade one thing out for another. Give up one thing so that maybe you can do another more easily. Finally, depression sets in because you can't change anything. You are just stuck with your body the way it is. Depression lingers a while.

Almost imperceptibly, acceptance eventually comes. One day I realized I had stopped thinking in terms of “when I get well”. That’s when I knew I had reached acceptance. I stopped living my life on hold and began to adapt to living within the boundaries of my limitations. I began to make accommodations for my disabilities and strategize ways to maximize my energy and abilities within the confines of illness. It’s not a perfect or linear process. My needs and abilities change daily. Most days are lived hour by hour and, many, minute by minute.

By Gina Baker
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Rare Disease Day is tomorrow on February 29th! Don’t forget to show your stripes if you’re a fellow zebra like me.

Show your stripes on Rare Disease Day, February 29, 2024! 🦓🖤 #RareDisease

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