Rare Disease

If you had to wait for everything to be in place before you were able to find peace, there would be no point in mental health exercises. You need to find peace in the moment despite the constant flow of obstacles and challenges in your life. How do you practice peace in the face of obstacles?

As a way to better share advice with you all, I make video responses to your mental health questions.

The last video I made was about what to do if you define yourself by your mental health challenges and how to move forward. If this sounds relevant to you, you can check out the video here:

www.instagram.com/thomas_of_copenhagen

Otherwise, if you have any questions about mental health, please post in my group and I will try to make a video response specifically for you.

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

When you live with a rainbow of health conditions, choice sometimes get a bad rap. Some of that is justified — shout-out to people in our lives who constantly tell us to “choose happiness,” as if that’ll “cure” our depression. Then there’s the cold-hard, impossible-to-ignore fact that illness often strips us of our autonomy to even make a choice a lot of the time.

But there still a lot within our control when it comes to choice. What will you eat for lunch today? Who will you prioritize today? What mindset or emotional state would feel good to try on?

Whether’s a single word, a goal, a to-do, or an emotion, tell us what you’ll choose today.

#MightyMinute #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #CheerMeOn #Caregiving #Autism #ADHD

When we use the term “self-care,” we may understand it to loosely mean the practice of setting time and energy aside for ourselves in order to manage our health and inspire well-being. This may look different for everyone depending on how we define what works best for us, but in reality, actually engaging in self-care may be roadblocked by unavoidable or unforeseen circumstances.

What are your thoughts on prioritizing self-care? Is it easy for you or do you often put yourself last?

#52SmallThings #MentalHealth #Anxiety #Depression #Autism #ADHD #Caregiving #ChronicPain #ChronicIllness #Disability #RareDisease

Pain Girl by Melanie R.

The chronically ill that experience continuous pain in multiple areas everyday, myself included, dread the doctor office doodle I have dubbed “Pain Girl!” She’s infamously found in every pain clinic/doctor office and is said to have the ability to accurately depict the agony the chronic illness sufferer experiences with pencil smudges and a 1-10 score! Of course pain can only go to 10… said no rare chronic illness sufferer ever!
We are usually asked to circle the painful areas on a blurry drawing; labeling S for stabbing, B for burning, etc.
Such little information could be drawn for what I was experiencing with rare chronic illness. I usually had a Picasso painting to present most times! (Some say scribbles of frustration,…I say Picasso!) I don’t think I could even see Pain Girl under my swirling circles and slashes of pain. Making your doctor and yourself laugh while struggling in pain is always a plus.

So in the honor of Christ, the healing of the Body that Christ brings, and infamous pain girl, make a Picasso of your pain and healing.
Draw, paint, doodle, or get crafty making a picture of your pain girl/boy. Color the areas where you experience pain, swelling, stiffness, etc., then draw a cross, put a sticker, a heart, (whatever you want) as your symbol that:

-God is aware
-Hears your cries for relief
-you will be fully restored and healed.
-It won’t be long, etc.
Think of your own too.
Make it fun.
Please share/Post

Today could be the last day of suffering. Today could be the day of His return. Living in the body of Christ it proves that even though we are sick in body, we can heal, and be healed already. Suffer well! Healing will come!

Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth.

3 John 1:2

I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord.

Jeremiah 30:17

#MitochondrialDisease #ChronicIllness #BackPain #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #Jesus #suffering #InsideTheMighty #IrritableBowelSyndromeIBS #RareDisease #Hyperthyroidism #RheumatoidArthritis

It is called Lullaby on tealyra.com.

Not bad tasting at all and it helps me so much. The most common tea I have had most often all these years! 🫖☕️🎂

Honey and a splash of cream and I am ready for bed!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #ChronicPain #ChronicIllness #Depression #ComplexRegionalPainSyndrome #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #Upallnight #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyTogether #MemoryLoss #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

My mom asked me 10yrs ago if I felt peace ever since I had had constant pain for 7 years and severe pain my whole life.

I was able to answer with a resounding YES!

Thanks to gospel daily studies, they were the Only thing that helped me control my pain and the anger that comes from being in pain.
When all meds and doctors failed, a but if scripture or hours long study sessions both made my pain into something I could ignore on a big level.

My whole life has benefited so so much all thanks to time set aside for me and our merciful father in heaven to catch up with each other.

I am so indebted to my parents raising me as a Latter-day Saint. ❤️❤️❤️✨️✨️✨️

Such a priceless gift.

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #CheerMeOn #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Hypersomnia #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #PosturalOrthostaticTachycardiaSyndrome #PTSD #plantarfasciitis #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #IfYouFeelHopeless #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Eczema #HighBloodPressure #Headache