Rare Disease

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

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#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

52 Small Things 10h

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What are some ways you could simplify your living space?

Whether it’s finding a better system to store your food, or taking unused clothes or shoes to be donated; to readjusting your furniture so you can move around your home more comfortably, different actions can be taken to simplify your living space — especially if you find you want to make some changes but don’t exactly know where to start.

What would simplify your living space and make it more comfortable for you?

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Take a Mighty Minute

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@takeamightyminute

Mighty Minute 1d

How often do you get second opinions?

Living with health conditions often means seeing multiple providers for answers, support, and guidance. Deciding on a treatment plan can feel overwhelming, especially when symptoms are complex or unclear. Sometimes seeking second opinions can help you feel more informed, validated, and confident in the choices you make for your care.

Choose one

5 weeks left

Not often—I usually stick with one provider

Sometimes—if something doesn’t feel right

Often—I like to explore multiple perspectives

Always—I want as much input as possible

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52 Small Things 1d

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Something I own but never use is…

Simplifying our lives requires us to examine and reflect on the different aspects of our daily routines, habits, and surroundings; and take out, change, or adjust what we feel isn’t necessarily adding value to our day-to-day. That can even mean looking through our belongings to see what we have, but rarely (or ever) use.

As you take a look around, what can you find that you own that you don’t use or haven’t used in a really long time? What can you do with that belonging that will help simplify that "clutter"?

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#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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@takeamightyminute

Mighty Minute 2d

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Share a personal goal you have for the week.

Hi Mighties! 🫶

The start of a new week can be a great time to pause, reset, and think about what we want to prioritize in the days ahead.

What’s one personal goal you’d like to set for yourself this week? Why is that goal important to you?

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#MightyTogether #Migraine #RheumatoidArthritis #Blindness #Glaucoma #RareDisease #MitochondrialDisease #Gastroparesis #Fibromyalgia #MultipleSclerosis

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CuteKoala8175

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@cutekoala8175

MightyTogether 2d

I’m new here!

Hi, my name is CuteKoala8175.

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52 Small Things 2d

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What area of your life could use some simplification right now?

Life in general is complex and multifaceted, especially when you live with one or more health conditions. This doesn’t mean, however, that EVERY aspect of our lives has to be at the same level of complexity. It can definitely be beneficial to simplify one or more areas to add balance and a little bit of breathing room.

From cleaning to your weekend schedule to your weekly meal plan, what areas in your life could use a little makeover?

Mighty staffer @sparklywartanks says that area is her personal goals and time management. She’s found that because she has a lot going on she sometimes gets overwhelmed, procrastinates, or has a hard time sleeping.

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52 Small Things 5d

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Write about a time you made an unexpected connection that positively affected you.

Isn't the best when you make a connection with someone and have a positive experience doing so?

Let's end the week by sharing those refreshing moments of connection below. 👇

Mighty staffer @sparklywartanks remembers the first time she began facilitating creative workshops. She didn't expect so many people to attend and enjoy the activities she created. The experience felt great!

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Take a Mighty Minute

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@takeamightyminute

Mighty Minute 6d

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_________ is getting me through the week.

Hi Mighties! 👋🥰

How is the week going for you? What are you finding is helping you get through your days? A favorite product or comfort item? A hobby or other distraction? A specific mindset? Something to look forward to? Community? A reliable resource? A medication or talk with your care team/doctors?

Let us know below! ☀️

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