Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
236K people
0 stories
11.3K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Last flowers

Just wanted to share something that brings me joy planted flowers with my mom on the patio. Life is so rough sometimes it brings sunshine in both our lives. Have a great Sunday 🙂#Anxiety #DDD #OCD #RareDisease #ChronicPain #MuscularDystrophy #etc

Most common user reactions 24 reactions 6 comments
Post
See full photo

Share an emoji that shows what’s on your mind today. 💭💬

Happy Friday, Mighty friends! 🌺

What’s taking up brain space for you right now? What’s been on repeat in your head lately? What’s your main focus today?

Share it with us in emojis below. 🧠

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 9 reactions 11 comments
Post
See full photo

How can you prioritize your mental health this weekend?

Another week in the bag 👜, Mighty warriors! To conclude this week of tuning up our mental health, let's charge ahead. How can you continue to prioritize your mental health this weekend?

Mighty staffer @sparklywartanks says she’ll watch her comfort shows and sleep in.

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

(edited)
Most common user reactions 7 reactions 5 comments
Post
See full photo

A challenge I'm facing right now is...

Challenges in life are inevitable and often unpredictable, especially when we’re met with sudden changes or uncomfortable circumstances. Learning to work through them can take time and patience — and it’s OK if you need help, insight, or community to figure out your next steps.

What’s a challenge you’re facing right now? How are you navigating or overcoming it?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 104 reactions 59 comments
Post
See full photo

Write a short letter to your biggest fear.

When we speak or write something into existence, we give it less power over us. So today, let’s try and reclaim some of that power by writing a letter to our biggest fears.

In your letter, you can touch on what your fear is, how it’s affected you, and how you can begin to let it go.

Here is Mighty staffer @sparklywartanks letter:

Dear abandonment,

I’ve been afraid of you for a long time now, ever since I was a little girl. You’ve been lingering over me and preventing me from progressing, but I’m learning who you are and where you came from. You are no longer allowed to cloud my judgment or stop me from making lasting friendships and relationships. I’m taking my life back. You’re no longer going to hold me back.

Good riddance,
Nina

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 11 reactions 4 comments
Post

Awareness About Rare Diseases

Awareness About Rare Diseases

I have a couple young women that I am friends with on The Mighty and YouTube who have rare diseases like ALS and Mitochondrial Disease. They fight daily to get the medications and IV infusions paid for that they need to breathe properly and reduce their muscle weakness and fatigue. Not only that, but I also know that most insurance companies won’t always cover the cost of therapies for them either. This is really sad because then the quality of their lives can’t improve, which is why I believe we need to pray for and be their friend.

Most common user reactions 1 reaction
Post
See full photo

What resources do you find most helpful when you need support for your mental health?

🚨 Today’s public service announcement 🚨

Whether it’s from a family member, friend, nonprofit organization, free community program, online platform (like The Mighty!), doctor, or mental health professional, it’s always OK to ask and receive support for your mental health.

Mighty staffer @sparklywartanks finds talking to her therapist, sharing on The Mighty, and spending quality time with her family to be most helpful for her.

What about you?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 7 reactions 7 comments
Post
See full photo

If you could design an app to support your health needs, what would it do? 📱

Mighties, imagine you could create your own app to make managing your health a little easier. Would it focus on appointment scheduling, communicating with your doctor, mood or symptom tracking, or maybe serve as an all-in-one health hub? Let us know below!

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 12 reactions 9 comments