Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
235K people
0 stories
11.1K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

TRUE or FALSE: I tend to compare myself to others.

Hi Mighties! 🌼

Growing up as a highly sensitive and observant child, I noticed that I often compared myself to those around me—usually without even realizing it. That habit played a big role in the perfectionism I still grapple with today. Whether it was how I performed in school, how much emotion I showed, or how I navigated friendships and relationships, my choices were often shaped by what I thought was acceptable—especially to the adults I spent the most time with.

Now, as an adult in the age of the internet—and even though I'm learning to trust myself more, make my own decisions, and do what feels right for me—I still find that comparing myself to my peers remains a big obstacle I’d like to overcome. I know I’m my own person and that everyone’s life path is different, but it’s still challenging nonetheless.

Can anyone else relate? What’s your experience?

#CheckInWithMe #MentalHealth #Depression #Anxiety #Fibromyalgia #EatingDisorder #BorderlinePersonalityDisorder #ADHD #ObsessiveCompulsiveDisorder #PTSD #BipolarDisorder #Disability #ChronicPain #ChronicIllness #RareDisease

Most common user reactionsMost common user reactions 17 reactions 11 comments
Post
See full photo

What are some feelings that come up for you after receiving a compliment?

PSA: There is no "right" way to react to a compliment. Depending on what we’ve been through, we won’t all feel, react, or respond to praise in the same ways; and it’s totally valid to have positive, negative, or neutral feelings and reactions around them!

What feelings come up for you when someone tosses a compliment your way?

Mighty staffer @sparklywartanks says she sometimes gets confused or doesn’t know how to react or feel, but other times compliments make her feel confident and great.

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 12 reactions 8 comments
Post
See full photo

All Through His Name by Melanie R.

All Through His Name by Melanie R.

I stand before My Lord to thank Him.

For who He is,
for all that He has done.

He took on all the world's burdens,

Sacrificed,
victory was won!

He gave up His life to save me,
when I couldn't save myself!

When I suffered, it wasn't forsaken.

A knowing where I belong.

I’m singing hallelujah for My Lord-
all day long…
Hallelujah!
Ooh…
Through all of the surgeries.
The pain of rare disease,
disability,
the enduring suffering-

He gave me strength!
lifts me up!,
renewed my spirit!

His name that will reign!!

I came alive through the name of Christ.

Jesus saved me.

It’s all through His name.

There is healing in The Name!
Mighty healing & Be blessed by The Name above all!

More blessed messages/songs of healing on my YouTube:Melanie’s Melody or DM me and I can share the song to this poem or any others that have hit your spirit.

Thank you!🙏🏻🤺💪🏻👑

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #ChronicPain #InsideTheMighty #PrimaryImmunodeficiency #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #SjogrensSyndrome
#MightyPoets #CheckInWithMe

(edited)
Most common user reactions 5 reactions 2 comments
Post
See full photo

🎯 Anxiety Is a Message—Here’s How to Listen

Most people try to escape anxiety… but what if it’s actually trying to teach you something?

Your mind might be sending a signal—maybe you’re unprepared, in the wrong environment, or too focused on what others think.

Instead of pushing it away, pause and listen.

Anxiety can guide growth—if you let it. 💭💡

🎥 Watch the full video to learn more about how to do this by clicking on one of the links below:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactions 9 reactions 2 comments
Post
See full photo

What's something unhelpful someone has said to you when discussing your health?

Sharing our experiences and seeking support, guidance, or understanding can be incredibly validating—especially in moments of uncertainty or isolation. But sometimes, the responses we get from others can be disappointing, hurtful, or even harmful (even if unintentional).

Has someone ever said something that wasn’t helpful when you opened up about your health? What was it?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 113 reactions 47 comments
Post
See full photo

Love in your life

It’s completely natural and deeply human to want love and connection. But the real growth comes when you learn to honor that need without abandoning yourself to meet it. If you find yourself constantly proving your worth, chasing validation, or shrinking just to keep someone close, pause and ask: Is this love costing me my peace?

Instead, shift the focus inward. Practice showing yourself the love you’re seeking. Strengthen your boundaries. Build your self-worth from the inside out. That way, when love arrives, it won’t be something you beg for—it’ll be something you recognize as aligned.

You deserve relationships where you’re celebrated, not tolerated. Start by treating yourself that way first.

Who or what do you need to let go of to make room for that kind of love?

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactions 62 reactions 13 comments
Post
See full photo

How would you describe your anxiety levels today?

Whether you’re managing mental health challenges or symptoms, adjusting to life changes, or facing uncertainties about your health or other factors and areas of life, anxiety can show up in different ways and intensities.

How’s your anxiety today?

🙂 Non-existent – Not feeling anxious today.
⚖️ Mild and manageable – Feeling anxious at times, but overall doing OK.
🥀 Moderate and uncomfortable – Anxiety is affecting my daily functioning and/or sleep.
🌪️ Severe or panic level – Experiencing panic and needing extra support.

What’s helping you cope or find relief? Share how you're feeling below. 💬

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 14 reactions 13 comments