Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
237K people
0 stories
11.7K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

How to Make Big Goals Feel Less Overwhelming

One of the reasons people feel overwhelmed by goals is because the mind turns them into massive mountains that feel impossible to climb. But almost every meaningful change in life is built through very small actions repeated consistently over time. When you stop focusing on the entire journey and instead focus on the next tiny step, progress becomes much less intimidating. Even getting out of bed, taking a shower, sending one email, or going for a short walk can create momentum. Small actions may seem insignificant in the moment, but they are often what slowly change your life.

What is one small action you could take today that would move you slightly closer to your goals?

If you want to learn more about this, check out my video by clicking on one of the links below.

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactions 3 reactions 1 comment
Post
See full photo

TRUE or FALSE: It’s easy for me to keep up with my hygiene.

It’s Monday, Mighties… and you know what that means! A brand-new self-care challenge.

This week’s theme is hygiene — which is actually one of our most popular topics in the community.

For a lot of us who live with mental health conditions and/or chronic illnesses, keeping up with daily tasks can cost us "spoons" or energy. And hygiene is definitely one of those daily responsibilities that can be draining or taxing to stay on top of. No judgment at all if you can relate, we all have different limits and needs.

Do you find it easy to keep up with your hygiene or are some days harder than others?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 11 reactions 9 comments
Post
See full photo

A story

There is nothing wrong with wanting more for yourself. Goals, ambition, and growth can give life meaning and direction. The problem happens when we convince ourselves that peace and happiness only exist somewhere in the future after we achieve the next thing. A healthier mindset is learning how to pursue your goals while still appreciating the life you already have along the way. Life is not only about arriving somewhere. It is also about experiencing where you are right now.

What is one small thing in your life today that you appreciate but probably don’t slow down enough to notice?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactions 26 reactions 14 comments
Post
See full photo

Share a fun fact about yourself!

It’s Fun Fact Friday, Mighty fam!

Let’s cap this week off by getting to know one another a bit better. 😁⭐

Feel free to share any past achievements, talents, skills, significant life events, favorite books/TV shows or other things you enjoy, or even something that’s important to you.

Mighty staffer @sparklywartanks has recently been exploring and developing a passion for herbalism, learning how to care for herself and her family with plants. 🌿

What’s yours?!

#52SmallThings #DistractMe #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 17 reactions 13 comments
Post
See full photo

Gratitude for a great Dr.

I liv#e in a small town in the Sierra's and i am fortunate to have a lot of beauty surrounding me but as many of you know rural areas have limited resources. I feel fortunate to have a Dr so close to my house and today during my office visit i asked to get braces for my arms because the muscular Dystrophy is getting quite taxing on my arms and i already wear full leg braces KAFO. He told me that bigger things will start to happen eventually that will be more important such as breathing, swallowing, and bodily functions. He said such a brace for your arm would be cumbersome and ineffective for my condition since all my muscle groups are involved.

.You may think where is the gratitude? Its in the Dr its in the office staff there rhat treat me so well. Most of all that Dr gave it to me straight and practical he's been my PCP for 10 years and i trust everything he says. Don't know when i will be that bad but i don't sit around waiting for it i do light yard work walk when i can plant stuff in the garden keep it moving you don't know when the ride stops.🙂☀️chronicpain#Anxiety #MuscularDystrophy #RareDisease #DegenerativeDiscDisease #CervicalRadiculopathy #Hyperalgesia #MajorDepressiveDisorder

(edited)
Most common user reactions 2 reactions 1 comment
Post
See full photo

What's something you’ve been distracting yourself from lately?

Whether it’s from health symptoms, daily responsibilities, work/school, stress, overall adulting (or all of the above!), sometimes a distraction is necessary in order to collect and recenter ourselves.

What have you been distracting yourself from lately?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 8 reactions 9 comments
Post
See full photo

Don’t Give Up on Yourself

When people are struggling with depression or hopelessness, the mind often convinces them that nothing will ever change and that there is no point in continuing. But one of the most important things I learned during my own recovery is that progress is still possible as long as you keep moving forward. You do not need to have everything figured out today. Sometimes all you need to do is survive this moment, try again tomorrow, and keep taking small steps toward the life you want. Healing is often much slower than we wish it would be, but that does not mean it is not happening.

If you’re comfortable sharing, what is something that helped you keep going during a difficult time?

If you want to learn more about this, check out my video by clicking on one of the links below.

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactions 27 reactions 8 comments
Poll

Choose one
4 weeks left
True! I find compression garments helpful. 🧦
False: Other methods and support tools work better for me. 🧰
Unsure: I haven’t tried compression garments before. 🤔
7 reactions1 comment