Traumatic Brain Injury

Hi, my name is FaithHope223. I'm here because I survived a severe Traumatic Brain Injury along with two fractured vertebra over 30 years ago. I later suffered through several massive blood clots in four of my organs, including my lungs. I went through five different surgeries and the last one was a Bilateral Hip Replacement. In essence, like all of you, I am proud to say that I am a Survivor. I have lived through many emotional challenges along the way and I suffer from Long-term Depression and Post Traumatic Stress Disorder (PTSD). A friend of mine referred me to your group here and I am looking forward to learning about all of you and what this program has to offer. I hope that you will welcome me and if anyone has any questions or answers to provide me with, I would very much appreciate that. I truly thank you for your time and look forward to hearing back from any one of you. #MightyTogether #Depression #PTSD

My husband and I are still trying hard to maintain our mental health along with disabilities. Even if we try to explain our selves.. Its never enough... for our roomates... and we cant afford to move or do what we would like. Nor our own shopping isn't even enough too... We feel like it pisses off the roomies....

An we feel unwelcome being here on this planet... We just want peace. #Depression #Anxiety #Autism #TBI #MentalHealth #Disability

My husband and I are still trying hard to maintain our mental health along with disabilities. Even if we try to explain our selves.. Its never enough... for our roomates... and we cant afford to move or do what we would like. Nor our own shopping isn't even enough too... We feel like it pisses off the roomies....

An we feel unwelcome being here on this planet... We just want peace. #Depression #Anxiety #Autism #TBI #MentalHealth #Disability

Hi, my name is PurpleHowie2024. I'm here because
#TBI #MedicalTrauma #braintumour
#PTSD #Anxiety #Grief

Hi, my name is PurpleHowie2024. I'm here because
#TBI #MedicalTrauma #braintumour
#PTSD #Anxiety #Grief

When I chose to care for Jim after his three-month hospital stay, I anticipated a challenging journey filled with trials and triumphs. Jim's recovery was a winding road of small victories and setbacks, requiring patience and resilience. Each day offered new opportunities for progress, and even Jim's rare smiles became a beacon of hope. My family, especially my daughter, provided crucial support. Late-night reflections showed me how far we had come, and I learned to cherish small victories, like Jim's recognition of familiar faces and his growing confidence in speaking. Though the journey continues, we are building a foundation of strength and love, bringing me peace and purpose.

6 1/2 yrs later I have this creative urge to help spread awareness! If you guys want to see more of the journey I created a youtube channel about this journey and I have found it helps with the healing and the reason I am where I am today. msloretta529

Lately my roommates have moods that make my husband and I feel emotionally stressed or drained.. We try our best to do as asked to help around the household. But we feel more like butlers or maid doing there easy arrons (sorry cant spell) when I clean I cant do much cause there stuff everywhere(meaning cant organize) and my husband tired of doing all there groceries shopping when he comes home or on weekends; he works M-F as nigh security an cant fully relax.

My husband and I have disabilities. We share a house with roomies. I cant work do to my disability tbi.

We cant move out do to bills and food we share shop with. I have TBI and my husband has mild Austium. He works and I stay home with roomies pets. Kinda like a house wife when they work or go to school.

I wish to find a way to help out- but we feel stressed out - #Stress #Anxiety #austium #TBI #depressed

Lately my roommates have moods that make my husband and I feel emotionally stressed or drained.. We try our best to do as asked to help around the household. But we feel more like butlers or maid doing there easy arrons (sorry cant spell) when I clean I cant do much cause there stuff everywhere(meaning cant organize) and my husband tired of doing all there groceries shopping when he comes home or on weekends; he works M-F as nigh security an cant fully relax.

My husband and I have disabilities. We share a house with roomies. I cant work do to my disability tbi.

We cant move out do to bills and food we share shop with. I have TBI and my husband has mild Austium. He works and I stay home with roomies pets. Kinda like a house wife when they work or go to school.

I wish to find a way to help out- but we feel stressed out - #Stress #Anxiety #austium #TBI #depressed

After 5 years, too many doctors to count, I got diagnosed! Verdict: Slipping rib syndrome, cranio cervical instability (CCI), and TBI. No I don't have EDS, all mine is from trauma.

Had surgery to fix my ribs (Hanson procedure, surgeon couldn't tell until they did surgery to look for it), they say 4 more months until I can start physical therapy.

I did stem cell injections for my neck, should be 6 months then go again and/or start physical therapy. Most likely I'll have life long problems.

I also got TBI officially diagnosed, but I knew about that one, but nobody believed me.

My CCI was diagnosed by digital motion xray. My CCI symptoms are: intense fatigue, muscle spasms, vertigo, dizziness, balance, proprioception issues, migrains, binocular vision disorders, nausea, body temperature control, swollowing etc.

My rib symptoms were chest pain, balance issues, shortness of breath, nausea.

Things that help me are: vitamin injections particularly B, D and alpha lipoic acid, heat/ice, weighted blankets/weighted neck thing, sunglasses, emgality (migrain med), sleeping in lawn chair, dry needling, lower teeth dental splint, special glasses matched to my dental splint, special thoracic physical therapy.

Whew. Trying to swap head space from fight for my life convincing doctors I wasn't depressed or crazy to being diagnosed and working on very real disabeling diagnosis. And other then sinking feeling real shoe hasn't dropped, very relieved this hell has a name. Very happy to have the labels. People don't get why I am so happy with this but I am. 💕 Stay strong mighties!