amplifiedpainsyndrome

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Lucy Luu got a present from her great grandparents ie my grandparents.

For the past year I've been teaching Lucy that when I say 'this is for you' that whatever the thing is she gets to have. My grandparents pulled out their wrapped gift for Lucy and we had never wrapped her gifts before so I told her 'this is for you' and my grandma helped her open it a little and she got so excited and started actually barking with excitement and she began trying so hard to get it out of the wrapping. It was so gosh dang adorable and I wish I had caught on video. She made everyone's night! I like to think she is my grandparents favorite pup! Enjoy a pic of Lucy and her little Christmas lamb🥰😍😘💝 #amplifiedpainsyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #MightyPets #PosturalOrthostaticTachycardiaSyndrome #SuicidalThoughts #RareDisease

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My family has this tradition on Christmas Eve where we each get a new ornament that has to do with what happened that past year. My parents are the ones who get the ornaments for all of us. Mine was this ornament and my mom said that she saw it and immediately thought of me because I hold back all the darkness for so many people. It's definitely one of my favorite Christmas ornaments and made me tear up with happy tears as she explained my ornament. During our move we lost all of my ornaments even though I love my ornaments more than my family loves theirs🤦‍♀️ lol I'm keeping my fingers crossed that they're somehow mixed in with all the boxes in my dad's shed that he has yet to open. And if not at least I have this one 💖💕💖💕 What ornament would you get for yourself and what would your explanation be?#amplifiedpainsyndrome #Arthritis #Asthma #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #PosturalOrthostaticTachycardiaSyndrome #SuicidalThoughts #RareDisease

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Apparently I moved to the worst medical place ever

I Got a notification telling me that I needed to call my doctor to get my pain medication refilled because she hadn't responded after two weeks. I go to check to see how many pills I have left and I only have two days worth enough for Christmas Eve and Christmas Day and that's it. So I called my doctor to see if I could get my medication refilled and turns out that she is refusing to refill my pain medication because I went to a so-called pain management doctor two weeks ago and despite the fact that I left the appointment after 5 minutes and crying she still expects him to refill my medication. Jokes on her because she wanted to take me off all my medication. Guess he finally gets what he wanted. Guys I'm so worried! Why is it that everything is so much work when you're in chronic pain and don't have enough energy to even change your clothes! #amplifiedpainsyndrome #Arthritis #asthma #anxiety #ChronicFatigueSyndrome #checkinwithme #chronicpain #chronicillness #Depression #disability #EhlersDanlosSyndrome #Fibromyalgia #Insomnia #lupus #Lymphedema #RareDisease #suicidalthoughts #MightyTogether

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Finally

I’m getting a wheelchair. I’ve needed it for a long time and my doctor finally listened to how much pain I am in and allowed me a wheelchair. Any advice? Especially for getting around high school? #Advice #help #amps #AmplifiedMusculoskeletalPainSyndrome #amplifiedpainsyndrome #Wheelchair #WheelchairUser #WheelchairUsers #Wheelchairs #Wheelchairs

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AMPS Awareness Month!

Not an official day yet, but the proposed day is November 5th! And the whole month is the awareness month. Wear Orange in support of AMPS! #amps #AmplifiedMusculoskeletalPainSyndrome #amplifiedpainsyndrome #ChronicIllness