I’m new here, but not new to the feeling 💜
Remember that survival takes strength!
I've been sat here reading a few #articles on here about loneiness and chronic illness, ways to combat it like joining a yoga class (physically impossible) meeting a friend for a coffee what if you only have a few friends and they're always busy. I feel I'm the one always reaching out to do things and I'm the one that's sick for once I'd love a message of lets have a movie day at yours and chill on the sofa with snacks. I feel the more I try the more abandoned I feel, I do have a good family but that's not the same as having q partner or laughing with friends. I'm 32 this year and whilst I'm happy for the #milestones family members and #Friends reach in life each one just reminds me of how time is passing me by and I'm alone 90% of the time. I try my hardest to stay positive but at the end of the day we all need that interaction, comfort etc to #thrive more as humans. I'm just putting mt thoughts out there today as ite a sunny bankholiday in the UK amd o can't help but think of a time I would have been sat out in the sun with friends having drinks and lunch somewhere but instead I'm totally #alone .
Hearing your friends stories #chronicilness
Last year my friends graduated high school (unfortunately I failed my exams). A year went by and we decided to meet up again. Last year was really hard for me because multiple chronic illnesses stood in the way of me living.
Don’t get me wrong, I loved to meet them, but it made me also realize how they have a life and I don’t. They have the energy to do things, they don’t have to cancel plans last minute, they are able to study and get a career and I’m just laying in bed thinking if I even will be able to take a shower.
I just sat there, listening. I felt like I shouldn’t have been there in the room because I haven’t experienced anything besides seeing a spider on the ceiling in my room (just kidding). It did really upset me, I was happy for them, but I would have loved to be able to do things I should be able to do as a young adult.
Did you ever experience something similar, if so, how did you deal with it? #chronicilness #reunion
Still Don't Know #SeekingDiagnosis
For me, by far the hardest part of chronic illness is that, although I am SWIMMING in diagnoses, I'm still seeking the genuine cause, the underlying "Alpha"-diagnosis, so to speak. I know it will probably be generations before medical science unravels some of our mysteries, but it's so frustrating how many different"lists of symptoms" for different conditions COULD be what I have! #SeekingDiagnosis #DoTheseTestsEVEREnd ? #chronicilness #ChronicPain #ChronicNausea #ChronicallyFedUp
Sharing never stops feeling vulnerable
Today I finally shared a photo from a shoot I did with my boyfriend that I've been dying to share. But I was too scared of the potential judgement and how vulnerable it felt
But every time I do share something, it gets a little bit easier.
What's one thing you still want to share with the world?