wheelchair user

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wheelchair user
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I wish he could walk in my shoes #Fibromyalgia #HypermobilitySyndrome #WheelchairUser

I wish Dr. Patel could experience one of my bad pain days. He literally did not give two shits about how much his decision mattered to me.

I've been slowly figuring out the source of my chronic pain for the last year. One of the contributing factors is a herniated disc. I've tried all conservative treatment methods and was finally ready to discuss surgery.

This guy dismissed me because my MRI doesn't match my symptoms. The disc is bulging in the middle and not impacting the nerves on the imaging. The last doctor I saw diagnosed neurogenic claudication in my legs, which explains a lot of my symptoms. Yet Dr. Patel wouldn't even consider surgery. Instead he asked about my A1C and weight. He was my absolute last hope for fixing my back and regaining a little bit of my mobility. Instead, I am facing a future in my wheelchair. If the condition progresses further there could be severe nerve damage. So you know what, fuck you, Dr. Viral Patel. I hope you lose sleep over this decision.

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Community Voices
Community Voices

Food for thought

So I've finally gotten a good gp, they listen and they believe CMT could be a real possibility. I also have EDS and my mobility is really effected. I use a wheelchair outside and a stick inside, now going to a crutch. I just want to know if it's CMT. I have so many symptoms and they are getting worse while many scratch their heads. I've been told by a neurologist is not MS but your reflexes are bad, drop foot, weakness, feeling like water is trickling down my legs and hands, pain and cramps and tremors. I love art but my hands are getting worse. I just needed to vent really. I hope they work it out but I know at 26 my life mobility wise isn't getting better and won't, whether it's CMT & EDS or just EDS... #EDS #CharcotMarieToothDisease #CMT #MOBILITYISSUE #Wheelchair #WheelchairUser #tired

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Community Voices

Medical gaslighting?

<p>Medical gaslighting?</p>
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Community Voices

Disability Unknown and Multiplying

So I am in my early twenties and have had a lot of undiagnosed chronic illness lately. The most recent thing I learned was that I am needing hearing aids. I go for a fitting on Tuesday. I have struggled this last year to accept needing assistance and health aids. I went from only needing a cane on occasion to needing to use a wheelchair constantly. Adding the hearing loss and needing hearing aids has me feeling broken. I had a person joke that I am becoming blind, deaf, and dumb (used in place of the r slur). This all really has been defeating me since I am trying to finish college with all of this. I don’t know how to navigate all of this and I’m very overwhelmed. #Disability #ChronicPain #Undiagnosed #HearingLoss #HearingAids #WheelchairUser

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I messed up badly

<p>I messed up badly</p>
Community Voices

Learning to Embrace

<p>Learning to Embrace</p>
4 people are talking about this
Community Voices
Community Voices
Community Voices

Pills That Can Be Hard To Swallow

<p>Pills That Can Be Hard To Swallow</p>
3 people are talking about this