autoimmunedisorders

I have made several posts about the situation with my son so I won’t explain that again. On February 25th we go to court to remove him as my guardian. I have petitioned the court to let me be my own guardian again. Even with the complications from my current struggles with insomnia, I am capable of making sound decisions for myself. My morals and values are intact. I am very anxious to get this over with.

Speaking of the insomnia - I sleep less than 3 hours per 24. At least 2-3 nights a week I don’t even get into bed. I am following a healthy sleep guide that says bed only when sleepy. I started having bizarre episodes where my whole body jumps as if I was startled awake - but I was not sleeping in the first place. When I ran it by my PCP and now also my Psychiatrist, they both mentioned researching microsleeps. According to my research, they start when you are so sleep deprived that your organs are in danger of damage and/or failure. The human body needs to go into regular sleep cycles to rejuvenate all of the body systems regularly. I am going to be started on a new sleeping med called Belsomra when the prior authorization goes through.

I have also started to take some food extracts to assist meds I am already taking. Replace deficiencies revealed in blood work. And hopefully replace some prescription meds. I take 127 prescribed pills every day! The only thing both doctors asked is that #1 I only start 1 new extract a week. And #2 I notify each of them when I start something new so they can help track any side effects and/or benefits.

I have so many physical and mental health based dxs that I need to address. Doing it one at a time with single ingredient extracts when possible. With my autoimmune disorders, it can cause a different reaction or need a higher dose to accomplish anything. I am being careful and checking with my care team before I even purchase any extracts. The way I am doing this is very expensive. But how can I put a limit on my health and even my existence. I need to find some sort of quality of life- something I don’t think I have ever had. Anyway, this is the direction I have chosen at this time. I hope and pray for positive effects.

Those are the major updates I have to offer at this point in time… #Insomnia #MajorDepression #foodextracts #Court #microsleeps #Sleepmed #Guardianship #autoimmunedisorders #sounddecisions #organrisk #consultdoctor #Update #numerousdiagnoses #physicalhealth #MentalHealth #PTSDSupportAndRecovery #healthysleephygiene

(A venting post)

I am someone who has multiple autoimmune conditions and two mental health conditions. I have to be very careful about my health--get regular flu vaccinations, be diligent about washing my hands, stay away from sick people, get regular blood tests, work with specialists, etc..

My partner, on the other hand, is a clean slate in terms of health. At least, as far as he knows, since he hardly ever goes to a doctor or ever gets blood work done. #

I sometimes don't know how to reconcile this. I feel aghast, jealous, angry, and sad. It isn't fair that I am saddled with so much.

This afternoon I tested positive for Covid and couldn't make it into the urgent care clinic before it closed to fight for getting the antiviral. I will need to go in the morning.

"How am I this messed up?" I asked myself, before breaking down in tears, further clogging up my already suffering sinuses.

#Depression #autoimmunedisorders

Hi, I am someone with mental health diagnoses yet am wondering if something else is amiss. No matter what I do (take meds differently, eat less or more, drink caffeine, get outside and walk or rest), I get a sudden exhaustion that puts me in bed by 1pm for a few hours. My face feels heavy and those muscles hurt; my eyes droop; my ability to enunciate my words lessens; my cognition slows. If you have had similar experiences, what diagnoses do you currently have? Did your symptoms stay the same or worsen over time? Has anything helped temporarily (for a big day) or longterm? Thanks in advance. #MentalHealth #Depression #Medication #autoimmunedisorders #ChronicIllness

#rheumatoid arthritis #chronicmigraine #Fibromyalgia #IBS #autoimmunedisorders

One or both of my parents have come by every day this past week and rarely wear masks... they own the house I am living in and they are the only reason I'm not homeless. But it's causing me a great deal of stress, the fact that I'm not allowed to ask them to remove their shoes or wear masks in the house. I've asked... but my pleas fall on deaf ears.

I am beginning to lose hope of ever improving my life.

Hello everyone! I am 34 years-old, and have a bunch of chronic invisible illnesses along with their glorious chronic pains...ALL THE TIģGG w!ME.
Anyhow, my mother is always concerned about the sheer amount of medications (not to mention ththe potency of a lot of them) that i consume . She keeps saying that I'm probably the only person out there that takes this many meds, and i often wonder id she's right. 😒😩
Do any of you take what you consider to be A LOT of prescription medications??

When my body aches you disregard it.
When my head is pounding you say “it’s fine”.
When I just want to stay home you say let’s go out, suck it up.
When I’m dying inside you say “you’re like this everyday, just learn to live with it you’re going to be dying anyway inside might as well do things”.
And yet..
Now that I have the flu you care for me.
You bring me food.
You bring me medicine.
You make me tea.
You comfort and hug me and love me.
Others feel compassion and tell me they hope I feel better.
They say “I’m so sorry you’re sick”
Usually they don’t care.
Usually they ignore my chronic illnesses.
I somehow wish that I could just say I had the flu everyday.
I’m tired of my illnesses being ignored by you,
By society.
I’m tired. #ChronicIllness #Fibromyalgia #autoimmunedisorders #Undiagnosed #Lupus #Diabetes

Does anyone else feel so fatigued, you can’t even hold up your phone to text or read a post? I’m so tired of being tired all the time. #autoimmunedisorders #AnkylosingSpondylitis #InflammatoryArthritis