autoimmunedisorders

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On living with a healthy partner

(A venting post)

I am someone who has multiple autoimmune conditions and two mental health conditions. I have to be very careful about my health--get regular flu vaccinations, be diligent about washing my hands, stay away from sick people, get regular blood tests, work with specialists, etc..

My partner, on the other hand, is a clean slate in terms of health. At least, as far as he knows, since he hardly ever goes to a doctor or ever gets blood work done. #

I sometimes don't know how to reconcile this. I feel aghast, jealous, angry, and sad. It isn't fair that I am saddled with so much.

This afternoon I tested positive for Covid and couldn't make it into the urgent care clinic before it closed to fight for getting the antiviral. I will need to go in the morning.

"How am I this messed up?" I asked myself, before breaking down in tears, further clogging up my already suffering sinuses.

#Depression #autoimmunedisorders

4 comments
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Mental exhaustion stories and help?

Hi, I am someone with mental health diagnoses yet am wondering if something else is amiss. No matter what I do (take meds differently, eat less or more, drink caffeine, get outside and walk or rest), I get a sudden exhaustion that puts me in bed by 1pm for a few hours. My face feels heavy and those muscles hurt; my eyes droop; my ability to enunciate my words lessens; my cognition slows. If you have had similar experiences, what diagnoses do you currently have? Did your symptoms stay the same or worsen over time? Has anything helped temporarily (for a big day) or longterm? Thanks in advance. #MentalHealth #Depression #Medication #autoimmunedisorders #ChronicIllness

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Persistence Pays Off #Lupus #Fibromyalgia #sjogrens #ChronicFatigue #ChronicPain #autoimmunedisorders

Success! After three long years in search of a competent rheumatologist, I finally found one. Not only is he treating my Lupus, but he diagnosed me with Sjogrens Syndrome, something I knew I had all along, and, he fully addressed my Fibromyalgia.
What a relief, to be heard, and seen and not dismissed as a "mental patient".

We are proceeding with medication for the dry eyes and mouth, aquatic physical therapy for the pain of the Fibromyalgia and absolutely NO pain medications as I had requested.

I'm so proud of myself for not crying in his office, I calmly and logically explained the situation. I put on my big girl pants and got what I needed.
Here's one for the patient's! 🙏🏼🏆🙏🏼

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Family members stop by but wont wear masks.

#rheumatoid arthritis #chronicmigraine #Fibromyalgia #IBS #autoimmunedisorders

One or both of my parents have come by every day this past week and rarely wear masks... they own the house I am living in and they are the only reason I'm not homeless. But it's causing me a great deal of stress, the fact that I'm not allowed to ask them to remove their shoes or wear masks in the house. I've asked... but my pleas fall on deaf ears.

I am beginning to lose hope of ever improving my life.

11 comments
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Taking alot of meds #ChronicIllness #ChronicPain #Fibromyalgia #Arthritis #IBD #Endometriosis #autoimmunedisorders #medications #painmeds

Hello everyone! I am 34 years-old, and have a bunch of chronic invisible illnesses along with their glorious chronic pains...ALL THE TIģGG w!ME.
Anyhow, my mother is always concerned about the sheer amount of medications (not to mention ththe potency of a lot of them) that i consume . She keeps saying that I'm probably the only person out there that takes this many meds, and i often wonder id she's right. 😒😩
Do any of you take what you consider to be A LOT of prescription medications??

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Finally when I have the flu I am cared for

When my body aches you disregard it.
When my head is pounding you say “it’s fine”.
When I just want to stay home you say let’s go out, suck it up.
When I’m dying inside you say “you’re like this everyday, just learn to live with it you’re going to be dying anyway inside might as well do things”.
And yet..
Now that I have the flu you care for me.
You bring me food.
You bring me medicine.
You make me tea.
You comfort and hug me and love me.
Others feel compassion and tell me they hope I feel better.
They say “I’m so sorry you’re sick”
Usually they don’t care.
Usually they ignore my chronic illnesses.
I somehow wish that I could just say I had the flu everyday.
I’m tired of my illnesses being ignored by you,
By society.
I’m tired. #ChronicIllness #Fibromyalgia #autoimmunedisorders #Undiagnosed #Lupus #Diabetes

2 comments