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Walking a Elder Couple Through Age Decline

I wish this article would start with better news but we will all die, eventually. This is part of life. The best we can do is make every moment count, align our lives with purpose, and walk each other home respectfully.

As a hospice and dementia caregiver, I am often faces with how to address the pink elephant in the room, while staying true and authetic. As a caregiver, I struggle the most with couples care. This is usually when one person, who is my client, is still living with their partner, yet their partner is in better health and physical condition than them. This is the optimal situation that one could want, gracefully aging with their partner. Yet, sometimes one cannot physically turn, assist, or care for their partners needs.

This is when I step in. My personal goal is to help someone stay at their best, as long as they can and even after, to help them stay in good physical and mental condition as long as possible. Sometimes, a partner, who truly does have good intentions, is not as aware of physical or mental limits or conditions that one has or they may be aware, but in denial.

This can be extremely challenging…..sometimes even resulting in the elderly abusing drugs and alcohom or the “healthier” elder partner to belittle their partner due to their lack of follow through or lack of strength. In these cases, it’s very important for me to be the voice for my client while addressing what the partners concerns are, such as, “When I was here on Monday, Mrs. Smith was walking to the mailbox and Wednesday she walked to the front door, so it’s okay if she only walked to the driveway, today. I can tell she is trying her best.” Health is many peaks and valleys, as we ebb and flow. We need to try to address compassion, as sometimes someone is really just unfamiliar with how to accept someone’s changing condition.

It’s also important to understand that sometimes a partner is already in the process of actively grieving the loss of their partners body or mind. They may have thought they would retire and be able to travel to Italy to enjoy the sunset overlooking the coast, but now, they are watching their partner lose proper body functions or loss of movement in their joints. Everyone ages different.

When someone is actively dying or declining, it can be easy or common for someone to release anger onto their loved one, whether healthy or not. As a caregiver, it is important to address these mental health changes, along with the physical ones. “Mr. John Smith, I know you used to walk all the way to the bathroom but while you are on new medicine and recovering from your hospital stay, maybe you should use the bedside commode, instead. Would that be okay? Mrs. John Smith knows you are still adjusting to coming home.” Keeping the conversation open and normalizing smaller changes is helpful, even if they aren’t good changes.

The best we can do is keep our hearts kind and gentle towards these changes, while helping the individual keep as much independence and self-respect, as we walk them home with their loved ones.

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I'm new here!

Hi, my name is Cat2112. I'm looking for any wonderful input for me as a Caregiver for my Mother with dementia.

#MightyTogether

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Dogwood in bloom

My father passed away on the first day of spring. I’ve traveled 4 thousand miles to be with the family for a month. Grief is a very interesting process. I’m find myself racked with tears while grateful he is done suffering. I’m not pushing away my feelings but rather embracing them. My dad was 90 years old and left behind 4 siblings who also need support with daily living. Every time I visit my aunts beg me to stay knowing I live and take care for my mother (86 years) with mild dementia in the care of family and friends. And to top it all off I have chronic migraine.

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These past couple months have been hard.

I've been super depressed for weeks mostly because so much stuff has happened. I have been in and out of doctor appointments and now they're thinking something else is wrong, something else to add to my already pitiful pile. My great grandmother died, I having been very close to her, and everyone at her visitation acted like I wasn't supposed to be there, like my presence was unexpected or unneeded. What hurt me most was that they hadn't seen her in years, they hadn’t watched her dementia take her away and make her scared yet they sat in front, filling up the seats so I couldn't be up there. Now, that might sound selfish, it truly it is, but I couldn't stand watching people who hadn't even met her sitting closest to her and then giving me dirty looks when I went up there to give my final goodbye. Then, life happens again, and my mom was found to be very sick. Based on her scans she might have breast cancer. She has beat cancer multiple times but I can't stand the thought of her going through pain, of losing her. This all led me to relapsing with my self harm and now I feel even more guilty. #Selfharm #Grief #Depression

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My Wife has "Alzheimer's Like" Dementia caused by Strokes

My Beautiful Wifeycritter, Cheri, has suffered a combination of Strokes. It began when I woke the morning of January 2nd, finding her on the Floor between the Bed and her Closet. We got her to the Hospital, against her wishes, because it was obvious she was no longer Herself!

The 1st Hospital would not listen to us about her Blood Gas and COPD Exacerbation that caused her to be place in a Chemically induced Coma, Twice before in a Local Hospital nearly a decade ago. We had to FIGHT them to even get the CT Scan and MRI done - Then once the MRI results came back they could no longer deny she had a STROKE - Not just ONE, but three and the most recent had hit her Right Parietal Lobe near the Prefrontal Cortex, and she lost her Cognitive Abilities and can no longer recall Passwords, phone numbers, addresses, etc.

Cheri is a former Regional Franchise Training Manager for Skipper's and Winner of numerous Awards for Excellence in her career, Former Owner of Ice Cream Store, Floral Shop, Etc. One of the most Intelligent women I have been with, and was a huge help to me, as I battle ADHD, Autism Spectrum, Borderline Personality, Dyslexia, and she helped me overcome my last bout of Suicidal Depression. She taught me how to use Audible and Podcasts to help me LEARN and navigate some major Learning Difficulties. And, in less than 6 months time, she has been reduced to a Childlike State of Mind. Her mentality ranges from about 6 or 7 yr old to young adult... (Earlier today she said she felt about 18).

All of this was compounded by the fact that we were living in substandard housing which had become overrun with Rats, and no help from the Management. Our home was in need of being condemned and was far below any Health Codes.. Our Daughter, Ashley moved us out of the Trailer while Wifey was in the first Hospital. We now have a very cute apartment in a very secure 55 and Older Bldg.

Cheri was moved to a Rehab Facility that only made her Delirium more pronounced. She declined Mentally while she was in care at that Facility and moved to another Hospital... They ran numerous tests on her that all came back INCONCLUSIVE, and she was finally released to come home, and we tried to establish care for her.

On 15 March, she was taken to Good Samaritan Hospital, where she has been since and had an extensive battery of tests HERE IS WHAT WE KNOW - She has Acute Metabolic Encephalopathy - Damage to her Right Parietal Lobe, near the Prefrontal Cortex resulting in Alzheimer's Like dementia... We STILL do not have the COPES Assessment done, to get her set up with IN HOME care... They wanted to Discharge her tonight, and we FOUGHT IT - Because NO ONE has trained us on how to Navigate her Dementia, or how to Redirect her when she is in some Delusional Reality and petting her purse and talking to it like a cat, or seeing and talking to people her daughter and I cannot see or hear...

I am reaching out for someone, anyone who can offer insight and help, because I am losing my Life Mate, a piece at a time... Every time she has a set back, a little LESS of her comes Home to me. I have times when I sit in the car, for an hour or more waiting for the TEARS to pass, after kissing her Goodnight at the Hospital...

If she has deteriorated this much in less than 4 months, will I even have another six months before she REQUIRES Assisted Living, (In which case, I will become Homeless, because I cannot make the RENT here ALONE), or worse case, she becomes incapacitated to Stroke, or Crippling Dementia??

I am looking for a Face to face Support Group, Locally, and I am going to request Weekly Counseling for MYSELF to be have Guidance and Direction and something or someone to Help ME...

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Dementia portrayal

I watched The Father, starring Sir Anthony Hopkins, which I found intriguing because it was dementia viewed from the point of view, of the sufferer instead of the external view of how this condition affects others. Then two days later, in my news feed I saw an article on research into dementia, which said that there seems to be a relationship between it and schizophrenia and a little voice in my head said 'At last!' Make of it what you will - in fact that includes all of it.

What I can say about facial recognition is that it is remembering 'where' you know someone from (person and place). Names, being subjective rather than objective, I liken this kind of memory to a boat and as you get older, it is still moored to the shore but it takes longer to pull it in as it has drifted further away from the beach.

Also mixing up words is like a fruit machine, where association might bring up an inappropriate name for something, that you might know is wrong and correct or not, if not conscious of your mistake.

Without feedback, we cannot make sense of the world and learn from our actions and the mistakes of others. In other words, in a world of action alone, nothing changes but in a world of thought it can. Depression makes us less likely to ‘want’ to remember as we are on the conveyor belt’s end, heading for the precipice (death in old age / feeling not wanted or overwhelmed by life (new mother)) so motivation to recall is lacking as in youth, you don’t have memories to recall just impressions to receive (love of life).

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Missing my Wifey. She's recovering from a Stroke.

This is deeply effecting our Daughters family, as Well. Our Daughter is her Power of Attorney, now. Life has changed so much. Watching my wife go from being a well educated and successful business woman, who was widowed to a Decorated Retired Air Force, and former Spec Ops Pilot turned Firefighter Paramedic. He served with my best friend and are both, now inturred at Mount Tahoma National Cemetery. Now my Soulmate, and Partner in Crime, lol... has been reduced to a very scared and insecure, childlike mind and she cries and apologizes to me because she can't make sense of anything... This is so hard on me, psychologically. I am battling my Emotional Dysregulation, and Trauma Response to darn near everything now.
I am overwhelmed and have little choice than to accept what I must. My wife suffered a stroke to her left Prefrontal Cortex and is now battling Delirium and Dementia... I am losing the love of my life, a piece at a time... My Soul is shattered, there ain't much left of me. This hurts on levels that have only begun. I love her, and watching her suffer is wrecking me.
I miss you, Baby... but I'm right here trying to care for you. And still make sure I don't forget my own care too. Balance will take time. I am fighting for her now. Praying we can find recovery together. 🙏

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Family #GeneralizedAnxietyDisorder #BorderlinePersonalityDisorder #BipolarDisorder #BipolarDisorder

I’m helping my family out sitting 🪑 with my grandma 👵 who’s got dementia. I’m not on here posting because I want to be applauded or to seek to steal Gods glory he says so in Matthew 6:1-4 as posted here —-> 6 “Be careful not to practice your righteousness in front of others to be seen by them. If you do, you will have no reward from your Father in heaven.

2 “So when you give to the needy, do not announce it with trumpets, as the hypocrites do in the synagogues and on the streets, to be honored by others. Truly I tell you, they have received their reward in full. 3 But when you give to the needy, do not let your left hand know what your right hand is doing, 4 so that your giving may be in secret. Then your Father, who sees what is done in secret, will reward you. —>I’m just here to vent because I love her of course but I don’t know 🤷‍♂️ a thing about caring for someone with dementia. So forgive me if vent over the next day or so because my anxiety will probably be triggered so if anyone has any advice in caring for someone with dementia please tell me

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Feels like I am a burden

#Dementia #AlzheimersDisease

I need some guidance, I was diagnosed with AD at least 2 years ago. I am depressed, lonely, and sad most days. I feel my family (wife and son) leave me out of day-day activities and decisions cause I may not understand, which is probably right, but I get very emotional to find out things are happening at the last minute. I get the impression that my wife’s patience is just a tad short. I don’t know what else I can do. In addition I am in pain 24/7 with diabetes and other serious illness. I can’t drive and depend heavily on my wife. I have alienated my family in my recent outburst and I don’t see a way forward. Ty for any feedback.

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