Join the Conversation on
348 people
0 stories
27 posts
About Encephalopathy
Explore Our Newsletters
What's New in Encephalopathy

I’m new here!

Hi, my name is AslanMama. I'm here because my 8 month old is suffering with 100-200 seizures a day and cerebral palsy and epileptic encephalopathy. My oldest boy has high functioning Autism and the middle might too but he’s possibly just delayed from living in a crazy situation. Aslan rides the line of life and death most of the time. It’s a crazy making ride. looking for support!


4 reactions

I'm new here!

Hi, my name is MarineMom31103. I've been diagnosed with End Stage 4 (End Stage) Cirrhosis of the Liver, Hepatic Encephalopathy, Bleeding Varices, Chronic Pain, Insomnia, PTSD, I also move around when I think I am asleep. 38 years old in Pensacola, FL.

#MightyTogether #Anxiety #Depression #PTSD #Grief #FattyLiverDisease

10 reactions
See full photo

Sketching With a Piece of Charcoal in Non-Dominant Hand While Your Tremor is Making Your Whole Body Shake and Also With Double Vision is Hard

When it comes to painting I usually just hold the paint brush with my teeth to avoid having to deal with the constant shaking. But I'm trying to practice using my non-dominant hand more often...I also didn't fancy holding charcoal in my mouth...I really like the look of old renaissance portrait sketches and I wanted to kind of combine that style with an art nouveau portrait poster style. Not my best work but it's something a little different.
#Art #ArtTherapy #ICantDrawButDontCare #EssentialTremor #Encephalopathy #sketch

1 reaction 19 comments
See full photo

Mixed Media Art I Made With My Paintbrush Held Between My Teeth

There was a time when I first became disabled that I thought I would never be able to do any type of art ever again #Art #ArtTherapy #ICantDrawButDontCare #Encephalopathy #ChronicTraumaticEncephalopathy #Insomnia


Hi I’m new here

Hi my name is Andrea. I have been diagnosed with PTSD, Bi Polar Disorder, Major Depressive Episode, Depression, Suicidal Ideation, Cardiac Arrest, & Anoxia Encephalopathy. I have already read some wonderful posts on dealing with the feelings I have. Thank you for the invitation and thank you all for having me. #mentalhealthmatters #iwanttobebetter

See full photo

Searching for Answers

I am a 32 year old Black woman who is searching for answers...

Longing to understand myself better, longing to help others understand me better, and longing to connect with people who are willing to love and support exactly where I am.

In my searching, I have found out so much.

I learned recently that (long story behind this) that I was diagnosed at 6 years old with a Neuromotor Disorder, Attention Deficit Disorder, and possible mild Encephalopathy (brain damage) along with posturing issues (left hemiparetic posturing).

I also had seizures and constant tension headaches (tension headaches are still a problem)... all confirmed by a pediatric neurologist but not followed up with by my Mother.

As I've grown older, I also was tested by my psychologist I've been seeing for about 3 years now and he also suspects Autism, PTSD, and an Attachment disorder (he is an educational Psychologist but not a clinical psychologist so he couldn't like diagnose me right there on the spot).

Before this I was diagnosed after a break down with Schizoaffective Disorder (I was 20-21 when diagnosed?), but I've seen others who understand all of this better (counselors, etc) and they felt that I was misdiagnosed so I started to believe that I probably was....

Now, at 32 years old arriving to the understanding that my mother (my dad wasn't in the scene alot so I don't know what he knows) knew for a long time I had been diagnosed at such a young age has left a lot of questions, grief, and I admit - anger. I also feel like I need to note that I am an ACOA (Adult child of Alcoholics) which plays a huge part in why I was never addressed well by my parents with all the challenges I faced for years.

Whew.... that can be jarring to write out.

Since learning about all of this, I'm finally seeing a psychiatrist to start medication for ADD.

I'm hoping this psychiatrist will be able to address the neurological side. My psychologist has been pretty good in helping me with the behavioral aspects....but I feel like meds are the missing piece.

I've struggled for years to make sense of everything I was struggling with. Some have been patient and others just haven't because they have just found me too complicated to deal with - which is fine. I know that I also have been struggling with even understanding a lot of the time how to function well given all the things that I'm struggling with.

I'm sharing this here because I know many of you out there reading this understand the complexity and challenges of trying to get to the bottom of what's happening with you.

#neuromotordisorder #neurodivergent #ADHD #Autism #SchizoaffectiveDisorder #ACOA #Trauma #Encephalopathy #PTSD #GettingHelp