Hi, my name is MarineMom31103. I've been diagnosed with End Stage 4 (End Stage) Cirrhosis of the Liver, Hepatic Encephalopathy, Bleeding Varices, Chronic Pain, Insomnia, PTSD, I also move around when I think I am asleep. 38 years old in Pensacola, FL.
#MightyTogether #Anxiety #Depression #PTSD #Grief #FattyLiverDisease
10 reactions Guys, I'm really struggling at the moment. Every single day of my life, I'm in pain. I've accepted it as a fact of my life. But a few weeks ago I randomly injured a muscle in my lower back that has been locked/cramped up ever since, and is pretty much crushing my sciatic nerve. I'm getting such painful burning-aching sensations CONSTANTLY. There is no reprieve.
I can't get comfy when I'm sitting, and I'm barely sleeping at night. My doctor has examined me and she's pretty sure it's my sciatic nerve that's been pinched and that I need the appointment for physio. But the earliest they could fit me in was 23rd October - 10 days away! My doctor has prescribed a course of diazepam (valium) to help ease the muscle and try and abate the muscle spasming around the nerve. Which works to an extend but I really can't do much. I can't lift anything heavy, etc.
I am truly miserable right now. And I have been for the last two weeks since the injury. It just doesn't stop... My nephew came over on Wednesday and I couldn't play with him the usual way I do - chasing him about, lifting him up and bouncing him. And he just kept coming and cuddling my leg, raised his arms at me and said; "Up!" It broke my heart when I said no. He walked off with his head hung down and his bottom lip poking out.
Since the injury, I've eaten a LOT of junk food. I just cannot stop, and I don't really care all that much. I know I'm comfort eating (I used to do this a lot in the past), and I know it's not good for me. I'm just finding it really hard to give a crap about it.
What should I do? I'm so close to tears... I need a nice long, tight hug/cuddle. It's so hard to keep going.
#POTS #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #FattyLiverDisease #NAFLD #Diabetes #BPD #BorderlinePersonalityDisorder #InterstitialCystitis #ChronicPain #sciatica #BackPain #exhausted #mentallyexhausted #feelingdefeated #chronicillnesswarrior #Advice
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10 comments
Last night I really struggled to get some sleep. On Friday, while walking from a shop to a taxi, I lifted my left leg to take a step and I felt a twinge in my lower back. Then, when I went to lift my right leg to do the same, I nearly crumpled to the floor as an intense cramp went through the entire of my lower back. I managed to hobble my way to the taxi and got myself home.
I’ve been using heat pads and an anti-inflammatory gel and it’s given very little relief, but I persevered. Then, last night at around midnight I had a POTS episode whilst I was on my way to the bathroom before bed. I fainted and hit the floor hard, according to my mum. I’m just glad I wasn’t conscious when I hit the floor because I can only imagine the pain I would’ve felt.
After the episode, I really struggled to get up, get to the bathroom and get to bed. But I managed it. I took extra painkillers but I just could not get comfortable. I tried lying on my side with a pillow between my knees, I tried lying on my back with a cushion under the curve of my spine. Nothing was working. Eventually, I gave up and pulled out my laptop to do some more notes on my novel.
As usual, Loki was sticking to my side. Like he normally does when I’m unwell or in pain. He came up for lots of cuddles and fusses. Until he settled behind my fan, and slowly crawled up until his head was peeking at me from behind the screen. He looked so cute, I had to take a photo. My little mascot. Somehow… He always makes me feel better. And I feel like he really does love me back.
Anyway, I spent the night just tapping away on my laptop, listening to quiet music while I made my notes and tweaks. I just wanted to show you all how much of a good boy he is. Don’t worry - he was given lots of treats and belly rubs.
#chronicillnesswarrior #ChronicPain #POTS #AutonomicDysfunction #EhlersDanlosSyndrome #EDS #PosturalOrthostaticTachycardiaSyndrome #Jointpain #Fainting #BackPain #cramps #Pain #InterstitialCystitis #BPD #NAFLD #LiverDisease #FattyLiverDisease #Diabetes #Migraines #Cats #Animals #TherapyPet #TherapyAnimal #therapycat
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14 comments
Hi, my name is KimU. I'm here because I struggle with these diagnoses plus more not listed. Hopefully I will find others like me ❤️
#MightyTogether #BorderlinePersonalityDisorder #Depression #Anxiety #Fibromyalgia #Gastroparesis #FattyLiverDisease #PTSD #SuicidalThoughts #Suicide
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4 comments
Hi, my name is BeckyBooBoo. I'm here because im tired of fighting alone as nobody understands how I feel on a daily basis.
#MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #Fibromyalgia #Syringomyelia #FattyLiverDisease
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8 comments
Hi, my name is JaneStrauss73. I'm here because
#MightyTogether #Anxiety #Depression #Migraine #ADHD #HypermobilitySyndrome #JointHypermobilitySyndrome #GastroesophagealRefluxDisease #PolycysticOvarySyndromePCOS #FamilialHemiplegicMigraine #FattyLiverDisease #MicroscopicColitis #GallbladderDisease #HereditaryMixedPolyposisSyndrome #DiabetesInsipidus
Hi, my name is diabetesramblings. I'm here because of #healthevoices22
#MightyTogether #Depression #Anxiety #Migraine #Fibromyalgia #ADHD #DiabetesType2 #Gastroparesis #FattyLiverDisease #Stroke
Hi, my name is 2014nStillFighting. I’m new to The Mighty and look forward to sharing my story. I suffer from many, many symptoms, and have been completely dismissed by 2 rheumatologists. My PCP, nephrologist, liver doctor, gastro, and chiropractor/wellness doctor have all worked together for years to manage my symptoms but I cannot find a doctor to even listen to me about finding out why my body is attacking itself, and how to stop it.
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