Join the Conversation on
17 people
0 stories
3 posts
Explore Our Newsletters
What's New in
See full photo

#Spoonie Thoughts #5 #ChronicIllness

I've tried every method you can think of to remember when I take my medication, but it never seems to fail that I lose track, and have to pour them all out and count. During #fluseason I am constantly repeating to myself "Six feet away" so I don't forget. It's just how I make sure I don't get complacent, and I'm doing it even more so right now, with #COVID19 running around. It's not like the flu isn't dangerous enough (which I got both type A & B of, this year, because I had just had surgery & had to be at the hospital & doctor way too much, so my lungs are already not in the greatest of shape,) now we have something with an even greater mortality rate for those of us with compromised immune systems. I know it's hard to not be scared. We all talk about how we deal with this all the time, but somewhere in the back of our heads, that fear is there. It is real, it is normal, and it is healthy (to an extent.) Facing #Fear isn't fun, and never easy, but know this- you aren't alone. I feel it, too, but I'm making it work FOR me instead of against me. I have to so I can keep it together and act rationally (which is one of our biggest necessities right now, because being irrational can be dangerous.) If you need to talk, I'm here. No judgement. I went through all the stages of fear, too, I just did it rapidly because it's just what I do now. 40 years on this earth experiencing a lot of good and a whole lot of bad can do that. For more, visit the link in my profile #ChronicIllness #InvisibleDisability #InvisibleIllness #Fibromyalgia #MentalHealth #AutoimmuneDisease #spoonielife


Hello Again Bronchitis

I had a terrible cold for over a week that just would NOT go away smh. It kept getting worse and worse until I finally decided to drive myself to the urgent care. I did the little online check in before leaving home (as I've been there many times before and know how long the wait can be). So I get there check in at the kiosk and take a seat, about 10mins goes by and the lady at the front desk calls me up to ask which type of insurance I have, I let her know it's still the same and she tells me they no longer accept my insurance there 🙄🤬 talk about pissed! So I go out and drive myself to the hospital so I can be seen at the ER. By this time the sun has gone down and I'm coughing like crazy but my luck changed because when I get to the ER it happens to be a shift change and there's literally no one in the waiting room! They got me checked in and to the back in less than 10mins. Now I had never been to this particular hospital so of course I had to give the usual medical history rundown and long list of medications I take. But finally I get seen and told that it's not the flu, it's bronchitis, at this point I'm just thankful it's not pneumonia. Having asthma can be a pain especially during flu season because getting respiratory infections, laryngitis, pharyngitis, pneumonia and just about any "lung" related illness you can think of sometimes becomes the norm unfortunately. And to add to that the exacerbation of one chronic illness then usually leads to the exacerbation of another, so my Ménière's has been flaring like crazy and I can't hear shit besides my horrible tinnitus and I've been as dizzy as a baby deer stumbling around. I'm hoping I'm better soon.. I've been stuck in bed for days and everytime I think I'm feeling better I end up over exerting myself and end up right back in bed. Not to mention stressing myself out about an upcoming neurology appointment that already had to be pushed back once and a number of other "life" things I'm dealing with currently. I feel like crap and I'm just ready to be "better" again. 😫😫 #justventing #Anxiety #stressed #fluseason #Bronchitis #chronicasthma #MenieresDisease #bilateralmenieresdisease #vestibulardisorder #innereardisorder #ChronicPain #ChronicFatigue #HearingLoss #HardOfHearing #HOH #Tinnitus #Vertigo #dizzy #nausea #imbalance