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#ChronicInflammatoryDemyelinatingPolyneuropathy #livingwithchronicillness
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livingwithchronicillness
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#livingwithchronicillness
I have: EDS, Fibromyalgia, COPD, Migraines & yet-to-be-determined Vascular issues..,. but my question is about my husband age 59 who has high blood pressure, is diabetic and is undergoing treatment for reoccurring prostate cancer: oh, and by the way has Asperger's Syndrom (high-functioning Autism): Why is it ok for him to point out my "faults & shortcomings (he called me fat) and yet if I say hey what about you... It is NOT ok according to him. Ugh, help!
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#livingwithchronicillness
I have EDS,
Fibromyalgia
COPD
Migraines
& yet-to-be-determined vascular issues
My question is not about me actually.... but my husband who has Asperger's Syndrome and at the moment high blood pressure, is diabetic and is undergoing treatment for recurring prostate cancer at age 59: why is it ok for him to "point out my faults and shortcomings, but NOT ok (according to him) for me to do the same? He called me fat. And said it was his duty to make sure that my faults were corrected...but not his... ugh help!
#LivingWithMeampMyOCD
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#livingwithchronicillness
I have EDS,
Fibromyalgia
COPD
Migraines
& yet-to-be-determined vascular issues
My question is not about me actually.... but my husband who has Asperger's Syndrome and at the moment high blood pressure, is diabetic and is undergoing treatment for recurring prostate cancer at age 59: why is it ok for him to "point out my faults and shortcomings, but NOT ok (according to him) for me to do the same? He called me fat. And said it was his duty to make sure that my faults were corrected...but not his... ugh help!
#LivingWithMeampMyOCD
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Finishing up my dental program 🦷✨🥳 #livingwithchronicillness
This week I started two new classes of my dental program. I’m a few short months away from being a certified dental assistant🦷👩🏻🔬👩🏻💻. I had to stop my job - move closer to school and physically and emotionally prepare for this. Everyday after class I melt into bed cause of pain -but I’m getting through it. I just wanted to say don’t give up fighting.. if you love something ...take breaks when necessary .. give yourself time .. and do what you need to achieve it. WE CAN STILL DO THIS 💗 even with illness. Our lives aren’t over.. simply just adjusting to what we can’t change.
#CheerMeOn #keepfighting #ChronicIllness #Student #Fibromyalgia #Hypermobility #Anxiety #MentalHealth
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My Amazing Day! (Cont'd) #
🤱 She set up an appointment for an interview.
Now what accounts for this amazing day?
•Could it have been the caffeine in the two Exedrin I took?
•Were there tiny crystals of cocaine in the pool?
•Was it Jesus answering my fear if dying from immobility in bed?
•Was it in the stars? Is it mercury rising ✨ in the 5th house? (I have no idea what that means! 😁)
•Was it the 70's playlist 🎧 boosting my spirits?
Perhaps it was a little bit of all (except the cocaine thing 🤪) but I remain thankful for such a day. You know, you can be in the depths of despair, don't know quite how you're going to make it another day and here comes one that feels like your over 🌈 the rainbow. Hold on to that day and be thankful; thankful that it happened and you could share it with friends you love and family you cherish.
I dub this: The day I was super girl! 🦸♀️
#ChronicIllness #ChronicPain #Chronicpainwarrior #Endometriosis #Fibromyalgia #LupusWarrior #Disabled #Disability #Depression #Anxiety #MentalHealth #MentalIllness #chronicillnesswarrior #Spoonie #livingwithchronicillness #spoonielife #spooniesupport #SpoonieProblems #spoonieexistence #InvisibleIllness #ButYouDontLookSick #
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Beautifully Broken
This is my life, broken and beautiful ... dark and luminous, I walk slowly with my eyes on the sky, seeing beyond the clouds, beyond what the pre-established world dictates ... I am free I am a slave ... but my soul that if it flies high in complete freedom ... light within the dark paths ... love, always ... deliver everything with feeling, life takes me ... I choose and everything I chose forge me.. I sing and dance because it floods me with ecstasy ... I write to heal those deep wounds that have marked me years of the disease ... But smiled at dawn for a new day ... I fall, I I rise, I fall again ... I keep getting up, with pain, broken with tears sometimes but having the certain that everything that happens is a plan beyond our understanding ... I feel blessed to be able to look at what that others do not see, it has taken me years but everything looks so clear now ... I fight and at the same time I give up ... I struggle to stay but I surrender to what God have for me ...... #livingwithchronicillness #spoonielife #loveyoga #FreeSpirit #lovinglife #hemodyalisis #lifechallenge #costarica #Yoga #balance #mindfullness #yogaeverywhere #practiceandalliscoming #practice #yogalife #yogaeveryday #lovinglife #beachgirl #girlpwr #ButYouDontLookSick #lifestyleofawarrior #chooselife #wohasu
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It’s like swimming upstream every moment you’re awake....
It just never gets better.... #ChiariMalformation #livingwithchronicillness #Fibromyalgia
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When the little becomes big #POTS #livingwithchronicillness
So today started out a little rough and then the train wreck of my body ( and mind) derailed. Somewhere deep down my Dad is right about me and my condition, I probably have let it rule my life. Prior to the heart problem and then the follow up diagnosis of POTs and all it entails, I thought I lived an active life. Now trust me it didn’t mean I wouldn’t get tired but I had managed to keep the invisible illness of POTs under control. So under control that only a few random symptoms would manifest, the most obvious was heat intolerance and inability to take a hot shower without consequences, but nothing major. But then my job changed and I found I was super stressed and my job was physically demanding for my 45 year old body. One night at work I passed out, later to be determined to be neurocardiogenic syncope, but off to the ER I went and the rest for me is history. So here I am with a bad heart and in an unmanageable state. I am starting a new job soon so I was out running simple errands and BAM! Brain Fog, fatigue, and pre-syncope! So after my simple errands I was going to meet a friend for lunch. But nope, I find myself pulled off the road in a safe place to see if will pass. Texts are exchanged back and forth, sorry I am not feeling good, trying to get home. Yes I am safe, I will text when I get home. So two and a half hours later I reach home. Now I sit completely derailed hoping today won’t be a complete disaster but not holding my breath.
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Feeling Disconnected
I hate the days when my body is tired but my mind is sharp. I feel disconnected. ##livingwithchronicillness
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