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    Having chronic illness is like your body punishing you for simply trying to live your life.

    I went to a picnic on Saturday, and I am still suffering the consequences of me trying to act like a normal student and have fun.

    #POTS #AutonomicDysfunction #Undiagnosed #University #Student

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    Happy National ASL Day!

    Today is National ASL Day! 🤟🏻🤟🏼🤟🏽🤟🏾🤟🏿

    Did you know that the American School for the Deaf opened in Hartford, Connecticut on April 15, 1817?

    “There, teachers and students worked together and, by intermingling Native American Signs, French Sign Language, and even Martha’s Vineyard Sign Language, American Sign Language (ASL) was born.”

    National ASL Day is celebrated every year on April 15. This day celebrates and honors American Sign Language. ASL serves as the main sign language of Deaf groups in the United States.

    Growing up hearing impaired, I learned some sign language from a good friend of mine who is deaf. She and her family and friends taught me many things that I utilized and was greatly helpful. A few years ago, my grandmother lived in a building for deaf and blind seniors, I had the wonderful opportunity of communicating with them through ASL and connecting with them on a personal level due to my own circumstances of being hearing impaired and legally blind. Last year, I took some online/remote classes through the Helen Keller National Center and one of them was for communications, where I expanded my knowledge of sign language and learned more. I even got to learn about haptic signs and tactile sign language which I would greatly benefit from due to my blindness. I am so grateful for all the people I have learned more from and am so excited to teach others about ASL!

    This day is a great opportunity to celebrate and learn more about sign language.

    Do you or someone you know uses sign language? Ask them to teach you some words and phrases. You never know when it may be useful!

    Image Description: A light blue background with National American Sign Language Day April 15 in white font. On the bottom left corner of the image in a large white circle is a cartoon hand doing a sign for I love you.

    #ASL #ASLDay #AmericanSignLanguage #NationalASLDay #NationalASLDay2022 #NationalAmericanSignLanguageDay #Inclusion #inclusionmatters #Accessibility #Language #Awareness #Deaf #DeafBlind #HearingLoss #HearingImpaired #Communication #Celebration #AmericanSchoolForTheDeaf #DeafCommunity #Opportunity #Love #people #communications #Students #Student #learning #AccessibilityForAll #AccessibilityMatters #Inclusivity #Inclusive #DeafCommunity #DeafAwareness #SignLanguage

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    New Group I Have Made

    Hi anyone who is reading this, I have made a mighty group for students dealing with mental health conditions. You don't have to be in school to join this group anyone can join. We can stories, questions, ideas, or anything into this group. I have the description in the group, and it will be on my page. #Anxiety #Depression #BorderlinePersonalityDisorder #Schizophrenia #PersonalityDisorders #Trauma #Psychosis #BipolarDisorder #MoodDisorders #DissociativeIdentityDisorder #MentalHealth #College #Student

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    HELP, raising funds for a service dog!

    Hello,

    My name is Sharmaine Miller, I'm 29, and I am raising funds for a service dog.

    In 2016, while abroad in Panama, I contracted Dengue Fever and the Zika Virus while doing my graduate school research for Penn State.

    Today, I suffer from POTS and Small Fiber Neuropathy which result in my experiencing daily chronic pain and fatigue. This stems from my illnesses in Panama.
    My GoFundMe explains my full story linked here: www.gofundme.com/f/service-dog-for-sharmaine

    Thank you for considering donating.

    ---

    Kind Regards,
    Sharmaine Miller
    Ph.D. Stress Biology and Behavior

    Postdoctoral Fellow, Davis Lab, JHSPH

    #PosturalOrthostaticTachycardiaSyndrome #PeripheralNeuropathy #Student #ServiceDog

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    Exhausted ramblings...

    I am having a really tough time at the moment. I live with constant pain in various parts of my body and the challenges that cause. I have a suspicion that I have Hypermobile Ehlers-Danlos Syndrome (hEDS) but getting an assessment or diagnosis in the UK is almost impossible... I have so many signs of it but the GP is so clueless that he thinks its only about joint hypermobility and nothing else...! I have GI issues, bladder issues, signs of dysautonomia, possibly PoTS and now also been told I highly likely have endometriosis and need an op to confirm that diagnosis. In the midst of this, I am also in the first year at uni training to be a counsellor so I can help people with their mental health. I have awful pain and brain fog today, and just cannot get my head around the essay title at all, but have until Friday to submit the first draft and get some much needed feedback... I don't know if there is much point to this post other than to just get the frustration out in an environment where I feel safe from judgemental nastiness - I've learnt the hard way that this is not a post for Facebook if I want to protect my mental health...!!! Anyway, I'm having a really rubbish day, it's now 3:45pm and I just needed to vent. If you read this far, thank you! Here's hoping that the week gets better from here!

    #EhlersDanlos #EDS #ChronicPain #Fatigue #HEDS #Anxiety #Depression #Endometriosis #BrainFog #Pain #Student #tired

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    Desperate: how to find motivation to finish university when fully employed?

    Bare in mind this is going for almost 4 years and tried so many things.

    I am so close to get my uni degree but I am so tired from life and depressed. 3 out of 33 to get that stupid degree but I just cant. I hate writing this. If I was someone from the side line I would as well say : what does she have to be depr about???

    But its that never ending circle. So I am desperate and do not know what to do anymore...

    #Motivation #Depression #Anxiety #Student #studying #tired

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    When You Lose Time to Chronic Illness

    As I’m writing this, it is the end of Memorial Day weekend. The advertisements are in full swing, and the fact that I just graduated from high school has hit me like a truck.

    I’ve been sick with Idiopathic Intracranial Hypertension since March. Since March, I’ve been stuck. Stuck in bed, stuck out of school, stuck out of work. I was diagnosed two days after my eighteenth birthday, and being a legal adult still feels like a foreign concept. (The only part of being eighteen I’ve accepted is going to an adult hospital now.)

    All of my friends are throwing graduation parties, and I’ve been doing my best to show up, at least for a little while. Oftentimes, the conversation will turn to summer plans and beyond. My response is almost second nature: “Well it’ll depend on where I am.” Or maybe: “We’ll have to wait and see.”

    There’s a lot of waiting that comes with chronic illness. Waiting for appointments. Waiting for tests. For medications to work. For insurance to cover this or that. I’m working to accept that waiting comes with the territory. And if it means I need to wait for the next stage of my life, well, I can work to accept that too. Maybe. 😉

    #IIH #IdiopathicIntracranialHypertension #IntracranialHypertension #IH #RareDisease #chronicallyill #chronicallyillteen #ChronicIllness #CheerMeOn #CheckInWithMe #Waiting #HighSchool #College #Student

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    What is the hardest part about school/college for you?

    Studying is already tough, add brain fog and it's an overwhelming mess.

    What helped me:

    1. Go to the student center at college or your school counselor (in high school). Have them start a "504 plan" or request extended time to do things like write papers, take tests, hand in homework by using the ADA (Americans disability act). This requires a doctor's note.

    2. Figure out your brain fog triggers.
    Some examples are:
    😳low B12,6 (*optimal* range of lab work B12=500-1000) Optimal is different than "regular" ranges. It's more precise.
    😳Food sensitivities: gluten, soy, dairy. These are hidden in everything from spices to tic tacs/gum/salad dressing etc. I've found that avoiding inflammatory foods helped A TON.

    3. Get a study buddy who is in class and gets paid to help other students. They can work with you whenever you need them to and at your own pace.

    4. Learn when you're at your best. Is it morning or night time? Focus and study then.

    What suggestions will you try?

    #SpoonieProblems
    #SpoonieHacks
    #BrainFog
    #Fibromyalgia
    #Student
    #Teen
    #College
    #ChronicPain
    #MyalgicEncephalomyelitis
    #ChronicFatigue
    #Depression
    #MentalHealth

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    Really struggling with fatigue and generally feeling low over the past few weeks.😔

    I have a 2000 word assignment to do by the end of the month, then another one for the end of May but I've hit a wall with fatigue recently and I'm not sure why. 😞 I just want to get this module finished but I can't seem to do anything but do my work shift and then sleep. 😔

    #CheckInWithMe #Student

    8 comments