What Is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a rare genetic disorder that causes poor muscle tone (hypotonia) in infancy that leads to feeding issues, followed by a relentless hunger (hyperphagia) and severe obesity starting in early childhood, along with learning disabilities, short stature, and underdeveloped sex organs. It results from missing or inactive paternal genes on chromosome 15, affecting the brain's control of appetite and hormones. Last but not least, management and treatment of the disorder involves strict food control, growth hormone treatments, therapies like feeding, occupational, speech, and physical. As well as addressing behavioral challenges. Oh and as of now there's currently no cure, but research aims to manage the constant hunger that people with this disorder fact.
Sleep Hygiene
Sleep hygiene refers to practices that promote good sleep quality and overall well-being. It encompasses a set of habits and routines that help regulate the body's natural sleep-wake cycle. Some examples of these habits and routines include establishing a regular sleep routine and schedule, managing sleep, limiting electronics and caffeine before bed, seeing a sleep doctor, and creating a comfortable sleep environment. Last but not least, some benefits of good sleep hygiene include improved sleep quality, increased alertness and daytime productivity, reduced risk of chronic diseases, such as obesity, heart disease, and diabetes, improved mood and mental health, and enhanced immune function
1 reaction Hi, my name is mamamotes. I'm here because
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This Is Body Grief by Jayne Mattingly is a compassionate guide to understanding the emotional pain that comes with changes to our bodies, whether from chronic illness, disability, injury, aging, or obesity. Mattingly introduces the concept of “body grief” to describe the mourning we experience when our bodies no longer match our expectations or identity. Drawing from her personal journey with illness and disability, she outlines seven nonlinear stages of grief, from denial and hopelessness to eventual body trust.
Blending memoir with stories from others, the book validates the emotional struggle of living in a body that feels unfamiliar or socially rejected. Mattingly challenges harmful beauty standards and ableism, offering tools like self-compassion, storytelling, and somatic practices to support healing. In just over 200 pages, This Is Body Grief gives readers language for their pain and a gentle path toward acceptance and connection with their changing bodies.
2 reactions Hi, my name is Unicornkween. I'm here because I’m feeling alone. Recent breakup of long term relationship. just beat thyroid cancer in Febuary. Having weight loss surgery the end of the month. No real support so nerves just getting to me…
#MightyTogether #Anxiety #Migraine #AutismSpectrumDisorder #alpha-1AntitrypsinDeficiency #Obesity #Epilepsy
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Hi, my name is alpha1234. I've been diagnosed with hypothyroidism. symptoms not under control.
#MightyTogether #EatingDisorder #Anxiety #Depression #Obesity
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Mental Diagnoses: ADHD, Anxiety/Depression, Bipolar II, CPTSD, Polysubstance Use Disorder, Social/Performance Anxiety Disorder
Physical Diagnoses: Asthma, Bursitis L&R Hips, Bursitis L&R Elbows, Chronic Allergic Conjunctivitis, Intercostal Muscle Strain L&R Ribcage, Class 2 Obesity (5’½” ~200 lbs ~38.4 BMI), Osteoarthritis L Knee (bone-on-bone), Osteoarthritis R Knee (suspected), Sciatica (radiates buttocks to heels L&R), Two (2) Torn Gluteus Mediums, Two (2) Torn Gluteus Minimus
Treatments: Spine surgery 06/08/2024, Knee Replacement TBD (soon)
Triumphs: 09/02/2010 quit alcohol, 01/15/2024 quit nicotine
To-Do- Quit: Methamphetamine, Caffeine, Marijuana, Sugar
Don't forget the 21 prescriptions I'm taking. And just for fun I spent a little time checking to see if I would fit in here.... I'm pretty sure:
#Alcoholism #Addiction #AddictionRecovery #AmphetamineDependence #SubstanceUseDisorders #StimulantUseDisorder #SubstanceUseDisorders #CannabisUseDisorder #ADHD #Anxiety #Depression #BipolarDisorder #BipolarDepression #SocialAnxietyDisorder #Psychosis #EatingDisorders #Insomnia #ChronicFatigue #Bursitis #Osteoarthritis #ChronicPain #Relationships #Trauma #ComplexPosttraumaticStressDisorder #ChildLoss #Grief #Loneliness #RuminationDisorder #Selfharm #SuicidalThoughts #Suicide
I really connect with this one this morning. I gotta figure out how to treat myself well. Self-loathing is killing me. I can't put the drugs down. I know how much worse they make my symptoms but deep down I don't think I'm worth it. #PTSD #Abuse #Alcoholism #Addiction #Bipolar2 #ADHD #Obesity
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PCOS ( polycystic ovarian syndrome)
is defined as “A hormonal disorder causing enlarged ovaries with small cysts on the outer edges.”
And causes symptoms such as irregular periods . Irregular hair growth . Issues with fertility, acne , and obesity.
has been a suspect on the list of “ What is wrong with Megan “ for years because of my strong family history of it , and the fact since the age of 14 I have had had every single symptom .
But one .
And with the unstoppable edema I’ve been having ( to a point I was gaining 10 pounds of fluids every 2 weeks )
My pcp decided to try
Me out on Metformin .
And I don’t think it’s helped the edema ( I can fit into sneakers now so MAYBE it’s helped .. )
BUTTT, it’s improved my brain fog and epilepsy symptoms . One of my BIGGEST seizure triggers is low blood sugar , and as you all know my sugars will just dip into the 40s and 50s .
When that starts to happen ( which would be pretty regular )
I’d get dizzy . Lightheaded, Nauseous . My vision would go spotted / funky ( which are all symptoms I have and I’m about to have a seizure)
And I can think of 2 times that has happened during the 2 weeks I’ve been on metformin !
My mom has wanted me to be on it for YEARS but no one would take our thoughts on it seriously becuase without prednisone I’ve Always been naturally thin.
But now im on it and things are improving What a win !!!
Do you have PCOS?
How long did it take you to get a diagnosis?
#smileon🐷 #PCOS #polycysticovariansyndrome #newdiagnosis #metformin #ChronicIllness #keepgoing
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