Rare Disease

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

Conquer Your Mind 30m

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When you’re struggling with depression, it can feel like every quiet moment has to be filled with worry, productivity, or pressure to figure your whole life out. But healing is not always about pushing harder or getting somewhere faster. Sometimes it is about learning how to come back to the present in small, gentle ways. A warm drink. A slower breath. A few seconds of stillness. A reminder that this moment does not have to be improved before you are allowed to be in it. You do not have to solve everything today. Sometimes peace begins when you stop rushing past the life that is already here.

What is one small thing that helps you come back to the present when your mind is racing?

Also, if you're going through a tough time right now, I want you to know that I post mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

52 Small Things 7h

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Free write! Share what’s been on your mind.

Mighties, let's take a moment or two to free write today. You can write about something that you’re proud of yourself for accomplishing; a health goal that you have; a challenge you're facing; a poem that you wrote or something that you created; a list of thoughts, phrases, or words that have been on your mind; or even something you're looking forward to.

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Tazman1967

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@tazman

MentalHealth 1d

Taking care of business

It's something that no one wants to do but it would be neglegent on our part as adult human beings not to plan for the inevitable. An Advance Care Directive is something you have to utilize so that you and your family can have a day on end of life treatment. I have one on my mom of course but today I had to write one for my end of life and name my mother as being able to make decisions on behalf should I end up in the hospital. The whole thing made me very sad and frustrated as it is my duty to take care of her till she passes not for her to lose me. Anyways just had to let it out and this is my safe place.#MentalHealth #MuscularDystrophy #RareDisease #ChronicPain #DegenerativeDiscDisease #Fibromyalgia #Disability

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52 Small Things 2d

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Write a to-do list for the week. What do you need to prioritize?

This week we'll be exercising our writing muscles and jotting things down, Mighties. ✍️

Today's challenge will be to write a to-do list for the week. What do you need to prioritize?

Let us know in the comments below. 💌

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52 Small Things 5d

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What is a new tradition you want to incorporate into your life?

The great thing about traditions is this: We have the power to maintain the ones we like, but we also have the power to create fresh ones. And adopting new traditions can help us build our own sense of community, especially around what and who we value most.

A new tradition mighty staffer @sparklywartanks wants to incorporate in her life is having a family movie or game night at least once every month so she can see her siblings more regularly.

What about you?

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52 Small Things 6d

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Reflect on a time when you broke tradition. How did it feel?

Traditions are often celebrated or observed as they are passed down through generations or between family members, friends, or groups that share similar beliefs; but that doesn’t always mean they are "healthy."

Some traditions can be tied to toxic behaviors like childhood trauma or disordered eating and therefore can (and should!) be changed or challenged by those who once practiced them.

Mighty staffer @sparklywartanks broke tradition by deciding to no longer practice the religion she grew up with. She wanted to go on her own path and that made her feel liberated, especially in her healing journey.

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52 Small Things 1w

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What holidays or special occasions are your favorite to celebrate?

There are so many different types of holidays and special occasions celebrated all around the world! Some common ones include anniversaries, weddings, birthdays, baby showers, graduations, independence days, or New Year's celebrations to name a few. Depending on where you live and what you find important may determine what days and practices are prioritized and celebrated.

Share your favorite holidays and special occasions in the comments below! ✨

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52 Small Things 1w

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What’s your favorite tradition and why?

Hi, Mighty fam! ⭐

We’ll be exploring and talking all about traditions this week. Let’s start with the basics.

A tradition is a set of practices, beliefs, thought patterns, or customs that have been handed down from generation to generation by an individual or group of people. Some traditions we may be familiar with are the celebration of birthdays or holidays, but they can also be cultural, societal, religious, community-created, health-related, or determined by a family or group of friends. Traditions help us to foster connection with one another and also transfer information or heritage through storytelling and shared history.

What is your favorite tradition? Why is that tradition important to you?

Let us know in the comments below. 🙂⬇️

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