Rare Disease

Welcome to a new week, Mighties! 😇

Imagine looking at the days ahead from a bird’s-eye view. If you had to capture this week in just one word, what would it be? What kind of energy or vibes do you expect it to bring?

Mighty staffer @sparklywartanks chose the word "busy." She has a lot planned and is looking forward to it—but she also knows she’ll be exhausted by Friday.

How about you? What’s your word for the week?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

In this week’s forecast of self-care challenges, we’ll be exploring the topic of list-making. 📋

Whether it be to shop for groceries or reflect on how you’re feeling, creating lists can definitely be a succinct and straightforward way to express and organize your thoughts and ideas. In other circumstances, creating lists can also feel like an added chore depending on your needs and preferences.

What are your thoughts? Do you find list-making helpful to you?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Living with chronic pain affects every aspect of life, including sleep, physical activity, relationships, social interactions, work, focus, and mental health.

What has your experience with chronic pain been like? What do you wish others understood?

📖 Need some insight on the topic? Check out our story of the week here:
7 Things Healthy People Need to Know to Understand the 'Pain...

#CheckInWithMe #Fibromyalgia #ChronicPain #ChronicIllness #RareDisease #Spoonie #BrainFog #MentalHealth #Migraine #Anxiety #Depression #ChronicFatigue #MastCellActivationDisorder #Lupus #Cancer #RheumatoidArthritis #ComplexRegionalPainSyndrome #MultipleSclerosis #Endometriosis

#keepgoing #RareDisease #MentalHealth #ChronicPain #ChronicIllness

Happy Friday! 🌺

How was your March? Even though it’s one of the longer months of the year, it feels like it went by in no time! We’re curious to hear about the challenges you faced and what went well for you.

No matter what this month brought, we’re proud of you for making it through. Let’s continue to journey together! 🩷

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

There are multiple ways we can think about our responsibilities — from the tasks we have to complete and check off of to-do lists to others we may have to look out for, lead, or take care of, like family, children, pets, coworkers, or even ourselves.

Who in your life are you most responsible for right now?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Chosen Soldier by Melanie R.

I am a chosen soldier
in the army of The Lord
Presence,
Spirit lifted
Sovereign Word,
my trusted sword.

I put on Ephesians armor;
Found ready,
as we stand.
Together He battles with us,
fight for good, and Glory land.

The breastplate of righteousness
adorned across my chest
Protects and helps guide us.
My heart source brightly cleansed.

The helmet of salvation
Covers and Keeps watch.
Shielding darts,
casts down arrows,
diffuses negative thoughts.

Washed robes of White.
Mercy’s priestly gown.
Anointed Oil of Righteousness,
Lamb Sheared without a sound.

Unblemished armor,
Clothed in strength.
Mercy’s knight-
Shield of faith;
provides a fortress to
Reflect His Holy Light!

Covered by King’s glory.
Truth belt buckled in.
Following His Story,
fueled this fire from within.

Yielded body
Willing forge.
Faithful soldier;
Unsheathed sword.

Marching onward
torrential battles…
crushing giants forThe Lord-

Designed to knock down strongholds,
Conquer fear, and destroy doubt.
Anoint us as we travel,
steadfast martyrs for the crown.

To God be the Glory!

#InsideTheMighty #MightyPoets #PrimaryImmunodeficiency #MightyTogether #MitochondrialDisease #ChronicPain #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy
#RareDisease

Hi, Mighty fam! 🌹

How’s your body feeling today? Drop an emoji (or a few) in the comments to let us know!

🔥 In a flare-up
📉 Fatigued and exhausted
🪫 Low on energy but managing
🌊 Pain is coming and going
❤️‍🩹 No words—just ugh
👍Feeling OK.
☀️ Feeling good today!
❔ Other? Pick your own emoji and share below!

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie