Rare Disease

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

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#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

52 Small Things 3h

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What relationship in your life do you nurture the most?

Here’s the truth: The relationships we have with others help us build community and connection with the world around us.

This is also the truth: Some relationships in our lives will naturally be closer than others and have different standards, but overall they each have their own level of significance to us and our needs. Those relationships can be with family and friends, coworkers, neighbors, teachers and classmates, or even our health care teams.

Out of the relationships in your life, which ones do you nurture the most? What does that nurturing look like?

Mighty staffer @sparklywartanks says she nurtures the relationships she has with her mother and sister the most.

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#MightyMinute #DistractMe #MondayMoji #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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@takeamightyminute

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Share a little about yourself using emojis! ✨

Happy Monday, Mighty friends! 🌟

Let's get to know each other a little better by answering with emojis today!

Here are a few prompts to get us started:

1️⃣ What's your favorite color?
🔷 🩷 🟨
2️⃣ What kinds of pets do you have?
🐈 🐕 🐹 🐦
3️⃣ What's your go-to hobby?
🎵 📺 🎨 📚 🌱
4️⃣ How's your energy today?
🔋 🪫 ⚡ 😴
5️⃣ Where do you spend most of your time?
🏠 💼 🏫 🌳

Feel free to share with us below!

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52 Small Things 2d

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TRUE or FALSE: I consider myself a nurturing person.

Monday means a fresh new topic to explore, and this week’s self-care theme is nurture.🌷

How are we thinking about it exactly? At its most base form, to nurture means to care for or encourage the development of someone or something. This can be in regards to your relationships with family or friends, at work or school, while practicing hobbies, how you engage with strangers, or even how you treat and interact with yourself.

Do you consider yourself a nurturing person? Answer "true" or "false" below! ⬇️

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52 Small Things 5d

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What's on your 2026 bucket list?

What’s adventure without bringing out the trusty bucket list 📋✍️? (If you’re not familiar with the term, it means a number of experiences or achievements that a person hopes to have or accomplish during their lifetime.)

But for today’s purposes, let’s stick to 2026.

On the top of Mighty staffer @sparklywartanks bucket list for the remainder of this year is going to some new museums. She really loves learning and experiencing new things when she can!

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52 Small Things 6d

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If you were a tourist in your own city for a day, what would you do?

Let’s put our adventure caps on, Mighties, and become tourists for the day! 🤠

If you were visiting your own city or town for the first time and wanted to visit an attraction, restaurant, or engage in an activity you’ve never done before — where would you go and what would you do?

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Tazman1967

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@tazman

MentalHealth 1w

Dr appointment bad news

I try to stay positive you have to if you're going to survive a chronic illness at least mentally but you can't change the projectory. I already had ten spinal surgeries and last year diagnosed with a rare muscular Dystrophy caused by a genetic mutation no cure no treatment. Lately i have been experiencing severe muscle spasms and weakness in my abdominal muscles and it's affecting my breathing.

Today my Dr sat right next me rather than his usual chair and he said your going to die from this disease and all we can do is make you feel more comfortable as it happens. I knew in the back of my mind that this was true i have researched my condition until my brain was numb and the Neurologist at Cedar Sinai said there was no information on my condition and no cure but it didn't all sink in until today. I am afraid of dying before my Mom she doesn't deserve that i don't know what to tsay next#MentalHealth #RareDisease #MuscularDystrophy #Fibromyalgia #Disability #

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52 Small Things 1w

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How can you fuel your sense of adventure without ever leaving home?

When you live with a mental and/or physical health condition, it can be tough to seek adventure outside of your home… but that doesn’t have to stop you from fulfilling your sense of adventure entirely. 💭🤔

Mighty staffer @sparklywartanks feeds her sense of adventure by having "family days" and planning out creative activities and games to play with them, all from the comfort of home.

What are some ways you can feed your sense of adventure without ever stepping foot outside your front door?

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#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Take a Mighty Minute

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@takeamightyminute

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I'm feeling hopeful about __________.

Happy Monday, Mighties! 🌺

Hope can sometimes feel hard to find, but that doesn't mean little glimmers can't brighten even a single moment. Whether it's flowers blooming in your garden, finally finishing a puzzle, finding the right doctor, discovering a product that brings you relief, reading about a promising new study on your health condition, making a new friend, or finding the courage to speak up for yourself or someone you love—hope no matter the size can make a difference.

Our Mighty community definitely gives us hope. 🫶

What's something you're feeling hopeful about today?

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