Rare Disease

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When Your Child With a Rare Disease Doesn’t Feel Brave

Have you ever done something that you knew was the right thing to do, but you were scared to do it? Or maybe you did something that looked hard, but you decided to try it. That is courage in action and you probably felt very good about what you did. And you should! Courage shows [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

Conquer Your Mind 4h

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Depression can make the past feel like evidence against you. You look back at mistakes, choices, or moments when you weren’t coping well and judge that version of yourself using everything you know today. But you didn’t have today’s perspective back then. You hadn’t learned everything you’ve learned, built the strength you have now, or found the tools you have today. Healing doesn’t mean pretending you did everything right. It means allowing yourself to learn from what happened without turning your past into a reason to keep punishing yourself. You deserved compassion then, and you deserve it now too.

What would you say to a past version of yourself if you could speak to them with compassion instead of judgment?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagn

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 11h

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What resources do you find most helpful when you need support for your mental health?

🚨 Today’s public service announcement 🚨

Whether it’s from a family member, friend, nonprofit organization, free community program, online platform (like The Mighty!), doctor, or mental health professional, it’s always OK to ask and receive support for your mental health.

Mighty staffer @sparklywartanks finds talking to her therapist, sharing on The Mighty, and spending quality time with her family to be most helpful for her.

What about you?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

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When you’re struggling with depression, it can be incredibly easy to live everywhere except where you actually are. Your mind replays what you wish you had done differently or jumps ahead to everything that could go wrong. Before long, yesterday and tomorrow are taking up all the space you have today.

Being present doesn’t mean pretending the past didn’t happen or refusing to think about your future. It means remembering that right now is the only place where you can actually do something for yourself. You can’t rewrite yesterday, and you don’t have to solve tomorrow today. Sometimes healing is simply bringing yourself back to this moment and asking what you need right now.

What helps bring you back to the present when your mind starts pulling you away?

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

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What’s helped your mental health lately? What’s hurt it?

We’ll be tuning up our mental health for this week’s challenge, Mighties! 📈🌱

Whether that looks like setting aside time to implement a new habit, focusing on specific symptom management, reflecting on your needs, or prioritizing boundaries, everyone’s tune-ups may look different.

To get started, let’s reflect on where we are right now. What’s been helping your mental health lately? What’s hurt it?

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Nox Cinis Caelum WonderPup

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@puppy_nox

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I'm a mutt

I love comic books and larping and MTG and fantasy books about dystopian worlds unfit for the style of procreation we know of in our world. I also really love drawing my character when I play table top games. My favorite game is Pugmire. I'm a major geek.
I also love brunch, mimosas, window shopping, Broadway musicals, and canapes and tapas and basically I love finger food. I'm a big gay boy. Yaaaassss
I have discovered that I enjoy country rock music, dirt roads, fishing for bullfrogs, and barnyard photo shoots. I don't know what that makes me.
My wife doesn't want noise while she's working but she wants me near so I speak her love language with my Bluetooth headphones on and I'm listening to music and scrolling through Facebook like a sort of deaf man at a metal concert trying to read the ASL interpreter but I think she speaks French. It's called parallel play. I am not autistic but I'd be a lousy partner if I didn't want to meet her halfway.
Oh and have I mentioned how very medically special I am? I've got a rare disease and an even more rare resurgence after I had surgery to remove the offending lump. Fun times.
I like coffee. And coffee shops. And open mic events where I can read my poetry. And Johnny Cash and Frank Sinatra and the rat pack. I'm fancy.
I love BBQ brisket and hushpuppers and fried okra and boiled or fried cabbage. I've got a Southern heart.
I am part of the alternative adult sexuality community known as leather puppies. I love dressing up like a great big fluffy puppy who strives to make my owner happy and I love keeping her safe.
I'm Ace. It's been really difficult for me because I'm in a very stable happy relationship with my dearest wifey and I'm always afraid I'm never gonna be able to have physical intimacy again cuz my mind is a bully. Every time I get close my panic attack kicks in and I am useless until my Ace hardware starts functioning again. I'm broken but loved and I love with my whole butt. I'd say heart but my butt is bigger. And she likes my great big glutious derriereacus.
I'm a lover of nature but I don't hump trees. Without consent.
I have a lot of trinkets baubles and thingamajigs. So basically I'm either a witch or a raven. If you give me coffee I will give you something shiny.
So yeah. Totally a mutt.

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Tazman1967

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@tazman

MentalHealth 3d

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Feeling stranded

Everyone suffers through some hardship in there lives.The hardest part for me# is finding people who share my experience through muscular dystrophy. I don't need validation I just want some more understanding even my friend of forty years insuated I was a drug addict because I take pain medication. I appreciate the Mighty because it's the only place that someone might listen. I can't expect people to understand my rare disease but I don't the negativity of unsupportive friends.#MentalHealth #ChronicPain #RareDisease #MuscularDystrophy #Fibromyalgia #Dystonia

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Take a Mighty Minute

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@takeamightyminute

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Where are you feeling pain in your body today?

Hi Mighty friends! ⭐

How is your body feeling today? Where are you experiencing pain or discomfort, and what has helped you find relief?

Check in with us in the comments below! 👇

Mighty staffer @sparklywartanks has been dealing with headaches for the past few weeks. It’s been disorienting, so she’s exploring different ways to find some relief.

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 5d

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What impact do you hope you have on others?

When we interact or build relationships with others, we may not always know the impact or influence we have on them, but this doesn’t mean we're not having any impact at all! From our personalities, encouraging words and actions, and even our skills and talents, we impact people in different ways.

What impact do you wish to have on others?

Share in the comments below. ⬇️

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Rare Disease

Related Conditions?

When Your Child With a Rare Disease Doesn’t Feel Brave

How My Daughter's Rare Disease Opened My Eyes

What resources do you find most helpful when you need support for your mental health?

What’s helped your mental health lately? What’s hurt it?

I'm a mutt

Feeling stranded

Where are you feeling pain in your body today?

What impact do you hope you have on others?

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