Rare Disease

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

Story

Close up shot of woman eye looking at camera

Glenda McCoy

•

Rare Disease

Pinned

How My Daughter's Rare Disease Opened My Eyes

Be first

491

Post

Group Leader

•

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

52 Small Things 3h

See full photo

List 3 of your go-to hygiene hacks.

Hygiene shortcuts can be a lifesaver, especially in those moments when we want to quickly and efficiently get our needs met without expending all of our energy. These shortcuts can look like creating schedules and reminders, as well as knowing what kinds of products to use that make hygiene more accessible (dry shampoo, anyone?).

Mighty staffer @sparklywartanks hacks include listening to music while she’s in the shower to motivate her and wake her up in the morning, scheduling less work to get done on her hair-washing days so she has more energy, and buying her toiletries and personal care products in bulk so she doesn’t have to worry about them running out quickly.

Share yours with the community below. ⬇️

1 reaction • 1 comment

NewRaeder syndrome, also called paratrigeminal neuralgia or paratrigeminal oculosympathetic syndrome, is a rare neurological condition defined by two things happening at the same time, on the same side of the face: severe, constant, one-sided head or facial pain, and a partial Horner syndrome, meaning a drooping eyelid and a smaller-than-normal pupil. The pain typically concentrates [...]

Story

The Mighty Staff

•

Rare Disease

18h

What Is Raeder Syndrome? The Rare Condition Behind One-Sided Head Pain

Be first

www.instagram.com/thomas_of_copenhagen

Post

Mighty Leader

Group Leader

Thomas Ousterhout PhD

•

@thomas_of_copenhagen

Conquer Your Mind 20h

See full photo

Peace is powerful

When someone hurts us, the mind naturally wants justice, revenge, or closure. But staying emotionally attached to anger often keeps us stuck in the same pain long after the situation is over. Real healing usually begins when we stop focusing on the other person and start focusing on our own peace, boundaries, growth, and future. Moving forward is not weakness. It is choosing not to let pain continue controlling your life.

What has helped you let go of anger or resentment in the past?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

27 reactions • 12 comments

Post

Group Leader

•

52 Small Things 1d

See full photo

What hygiene task do you find most challenging to keep up with? The easiest?

Keeping up with our hygiene can be challenging, especially those tasks that take up time and energy on a daily basis: showering, taking a bath, brushing our hair, flossing our teeth… the list goes on!

What hygiene task is the most challenging for you to stay on top of? Which tasks do you find easier and more manageable?

5 reactions • 7 comments

www.instagram.com/thomas_of_copenhagen

Post

Mighty Leader

Group Leader

Thomas Ousterhout PhD

•

@thomas_of_copenhagen

Conquer Your Mind 1d

See full photo

How to Make Big Goals Feel Less Overwhelming

One of the reasons people feel overwhelmed by goals is because the mind turns them into massive mountains that feel impossible to climb. But almost every meaningful change in life is built through very small actions repeated consistently over time. When you stop focusing on the entire journey and instead focus on the next tiny step, progress becomes much less intimidating. Even getting out of bed, taking a shower, sending one email, or going for a short walk can create momentum. Small actions may seem insignificant in the moment, but they are often what slowly change your life.

What is one small action you could take today that would move you slightly closer to your goals?

If you want to learn more about this, check out my video by clicking on one of the links below.

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

8 reactions • 3 comments

Post

Group Leader

•

52 Small Things 2d

See full photo

TRUE or FALSE: It’s easy for me to keep up with my hygiene.

It’s Monday, Mighties… and you know what that means! A brand-new self-care challenge.

This week’s theme is hygiene — which is actually one of our most popular topics in the community.

For a lot of us who live with mental health conditions and/or chronic illnesses, keeping up with daily tasks can cost us "spoons" or energy. And hygiene is definitely one of those daily responsibilities that can be draining or taxing to stay on top of. No judgment at all if you can relate, we all have different limits and needs.

Do you find it easy to keep up with your hygiene or are some days harder than others?

11 reactions • 11 comments

www.instagram.com/thomas_of_copenhagen

Post

Mighty Leader

Group Leader

Thomas Ousterhout PhD

•

@thomas_of_copenhagen

Conquer Your Mind 2d

See full photo

A story

There is nothing wrong with wanting more for yourself. Goals, ambition, and growth can give life meaning and direction. The problem happens when we convince ourselves that peace and happiness only exist somewhere in the future after we achieve the next thing. A healthier mindset is learning how to pursue your goals while still appreciating the life you already have along the way. Life is not only about arriving somewhere. It is also about experiencing where you are right now.

What is one small thing in your life today that you appreciate but probably don’t slow down enough to notice?

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

26 reactions • 14 comments

Post

Group Leader

•

#52SmallThings #DistractMe #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

52 Small Things 5d

See full photo

Share a fun fact about yourself!

It’s Fun Fact Friday, Mighty fam!

Let’s cap this week off by getting to know one another a bit better. 😁⭐

Feel free to share any past achievements, talents, skills, significant life events, favorite books/TV shows or other things you enjoy, or even something that’s important to you.

Mighty staffer @sparklywartanks has recently been exploring and developing a passion for herbalism, learning how to care for herself and her family with plants. 🌿

What’s yours?!

17 reactions • 13 comments