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Idk what to do

I’ve talked to my specialist team they don’t think it’s my Mcas my dermatologist thought it was scabies but treatment isn’t working . Not sure what to do at this point . I have the rash now it keeps spreading it’s all over my boobs, butt, inner thighs ,hips, underarms and legs . My underarms an groin area are starting to get painful they feel like blisters

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#Rash weird

Over the past few weeks, I've had loads of these little red rashes come up all over my arms, torso and top of my leg. They don't itch or hurt in the slightest but more and more keep appearing. Does anyone else get this? Do you know what it is? #Rash #weirdsymptoms #weirdbody

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Hoping for xolair

I have an immunologist telephone appointment in a week and I really hope they say I can have xolair. I’m just gonna bring it up; if they say anything about ‘not wanting to go the drug use just yet’ I’ll very politely and assertively tell them: “bit too late for that! I’m on 4 different types of meds for it already that aren’t even that effective!’ #Medication #Rash #chronic Idiopathic Urticaria


Rare COVID-19 Symptom - Only 2 other cases of it

I was diagnosed with COVID-19 and have multiple rare underlying conditions. With the conditions I have, I often have atypical symptoms with even the most common things. So when I was finally diagnosed with COVID-19, I began at home treatment for it of just resting, intake of fluids, and that's really it except for Tylenol to keep fevers in check. After a few days, I began to get a weird rash. At first I thought it was a return of Shingles as it was only on one side but then within an hour or two it began to spread across my entire back, arms, legs, and forehead. We tried Shingrix which seems to slightly repress it but then it just kept going regardless.

According to the New England Journal of Medicine only two other cases are documented that have displayed this atypical response to the virus. I am now the third I've heard of countless others out there with similar symptomology through various support groups etc. #COVID19 #PatientAndDoctorExperiences #symptoms #RareDiseases #ChronicIllness #ComplexUnspecifiedNeuromuscularDisease #Rash #pandemic #COVID19

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Conditions that cause cutaneous/skin purpling? #Undiagnosed

I know that I post mostly questions, but I’m mostly here on this forum to find some answers and support. I have several places on my skin, like knee, ankle bone, parts of my feet and parts of my arms that have a webbed purplish rash on them, and when I shower or expose the places to heat, they become reddened. I know the scientific name for this, livedo rectarilus, but it reddens upon exposure to heat? So then, I don’t really know what it is. I’ve heard antiphospholipid syndrome may cause this, but I believe I’ve tested for that. Most people have minor cases of livedo when they’re cold, but I have them almost constantly, joined with the purplish patches on my joints. Anyone have similar rashes/or have conditions that cause this? I apologize for only posting questions, but most of them weren’t answered by any doctors or specialists I’ve seen in the past. Thank you all!
#ChronicIllness #Undiagnosed #ChronicPain #ChronicFatigue #LymeDisease #Lupus #Rash #AntiphospholipidSyndrome #Fibromyalgia #MyalgicEncephalomyelitis #PosturalOrthostaticTachycardiaSyndrome #Depression #MentalHealth #Anxiety #HealthAnxiety #UndiagnosedIllness


Does anyone have any recommendations for extremely itchy skin?

I have a large rash that is all over the top of my back and my chest that itches profusely. It looks like giant patches of dry skin, but unfortunately it doesn’t seem to be responding to any sort of treatment like regular dry skin would. It’s definitely not eczema (I have it and this rash is not presenting even remotely the same as my eczema) or psoriasis.

My GP isn’t sure if it’s idiopathic hives or something else and unfortunately the itching is driving me crazy. I’ve had it for at least a month now. I’ve tried different lotions, cold showers, coconut oil, etc.

Also, I do have a photo of the rash, if that helps at all! I just wasn’t sure if I’d be allowed to post it in this post, so I figured I wouldn’t.

Any suggestions are appreciated! thank you!

#ChronicIllness #Spoonie #Skin #itch #ChronicPain #itchy #suggestions #dryskin #Rash #rashes


Newbie #Fibromyalgia #ChronicPain #Rash #Insomnia #Depression #Anxiety

So I am new here...hello everyone. I apologize in advance for the length of this post but I want to introduce myself and explain why I am here. I found this site last week when I was in one of my “despair moments”. I was looking for anyone who could relate to how I was feeling. I haven’t posted until now. I have been struggling for years with different chronic pain issues. I would say it started with chronic sinus infections, then chronic pain in my sternum that no one ever figured out. I have had chronic pain, back pain (from bulging disk), olfactory hallucinations, chronic sinus infections, random muscle twitching...well you probably get the picture, the list goes on and on. I know that the pain and frustration does exacerbate my depression but then they will tell you that depression causes the pain. I can’t tell you which came first. Currently, I have pain in my lower body (legs, feet, ankles, knees) so bad that I can barely walk. There are times that my whole body hurts to the point that all I can do is lay in my bed and cry. I have rashes on my forearms and shins that they say is Allergic Contact dermatitis but have yet to help me figure out what is causing it and why it’s just in those places. I have these painful lumps under my skin that hurt really badly in my legs, around my ribs and in my arms. I did have a slightly elevated ESR, CRP, and platelets. I have chronically low B12 as well. So far they have diagnosed Fibromyalgia and Anemia. I can’t tell you how many doctors have looked at me and said “I don’t know how I can help you.” I have yet to find a doctor who is willing to actually listen to what I have to say and really try to help. It’s the most frustrating and depressing feeling in the world. I have been to the edge several times over the last few years. And even recently. So I am reaching out, trying to find people who can truly understand how I feel and what I am going through. I was agoraphobic for several years and was able to pull myself out of it with the help of a therapist. I feel myself slowing sinking again. Well, that’s about the brunt of my story. I hope that I will find some true kindred spirits here that understand. Thank you for reading and I look forward to getting to know you.