summer

As we have entered summer I have found myself thinking of what summer meant for me as child. It meant sleeping in and freedom from school but it also meant only a week or two before it got too hot and my joints started to swell. It meant being incredibley hot in AFOs, trying to chase after my cousins who were running in the backyard. Or when I did finally catch them they were already on to the next destination, where I had to decide do I want to be in pain for the next few days or do I want to have fun now. Usually it just meant playing cards with my mom off to the side waiting for the summer birthday cake to arrive. I’m not saying I hate summer but they aren’t all that when your left watching the other kids. My parents always made sure to adapt things, so I wouldn’t be left out but after a while I learned it was easier to wait. Wait for when summer didn’t mean running around, hours in the pool but instead meant phone calls, travel, walks, and board games for everyone not just me. So, I am thinking about all the young kids with CP who may be feeling left out. If you’re a parent of a kid with a disability who is having similar expirences to what I just described please tell them: I’m sorry it really stinks. I wish thinks were easier but we don’t have to do the same thing as everyone else, we can adapt it or we can make our own summer. summer doesn’t have a rule book no matter what others say. Make summer your own, and in a few years more and more people will join you, settle into your summer instead. Happy summer!

This summer, I am trying to do more than sit in my house and think about how to avoid pain. I want to go to the movies and eat good food. For some reason, this feels impossible to do every summer since I have been diagnosed. So, I am curious, what do you guys do in the summer as a “safe” activity, as in an activity that won’t cause you pain or discomfort? #Chronicpelvicpain #Summer

Is #Spring really around the corrner? Looking outside from the big dumb of #snow outside. I'M in doubt. This is March, so doesn't really mean #Summer is coming. Any weather can happen. This was a pretty boring weekend.

Never forget you are here for a reason ✨ There is a specific purpose and assignment for all the blessings and challenges your life holds. May we learn to recognize God’s hand in our life, not only during the challenging moments but in the ordinary and simple ones too.

“You make known to me the path of life, in your presence there is fullness of joy; at your right hand are pleasures forevermore.” Psalm 16:11

“The joy of the Lord is your strength” Nehemiah 8:10

Taking Root in Faith

“I have told you this so that my joy may be in you and that your joy may be complete.” John 15:11

#TheMighty #MightyTogether

This is Friday and isn't a hoilday. Kids went to school and stores were open. #monday is #Thanksgiving in #Canada So my 2 days shouldn't effect me. But nope the group home takes the time off. They don't even to bother to call or message you to let you know. Not good. They just do whatever they want.

I think #Summer is gone now. It feels #Falls today.#TheMighty #MightyTogether