vasovagal syncope

Calling all young people. Have any of you applied for #Disability . I don’t want to live off the government but it has gotten to the point where I need money and cannot find a job that I can actually do or that is accommodating. I am only 21 and I am overwhelmed with the whole process and honestly confused. #help #VasovagalSyncope #Dysautonomia #RheumatoidArthritis #Fibromyaliga

I’m at a conference with my friends and it’s halfway through and I literally can’t go anymore. I’m completely out of spoons and all I want to do is cry. I hate being like this it drives me crazy. #VasovagalSyncope #RheumatoidArthritis #Spoonie

Y'all, help a sister out. Anybody know the best mattress for someone with hEDS? I wake up 3-5 times per night not because I NOTICE discomfort or pain (it might've been there in my sleep, but how do I know?) but seemingly for no reason. Ironically, I'm currently staying with my Great Aunt for spring break and I've never slept better than on her COUCH. Not a pull out matress. Just a regular couch. For the longest time, even my doctors assumed I have insomnia. Maybe. I'm not even sure anymore. Help me out here, people. I'm desperate. #hypermobileehlers-DanlosSyndrome(hEDS) #HEDS #EhlersDanlosSyndrome #EhlersDanlosSociety #Ehlers -danlos #Dysautonomia #AutonomicDysfunction #VasovagalSyncope #Epilepsy #Gastroparesis #Insomnia #SleepWakeDisorders

#VasovagalSyncope

2020..... It’s been a year.

Still on the road to recovery from my June 13th 2019 open surgery for the condition MALS. (Median Arcuate Ligament Syndrome)

Recovering from my December 11th 2020 AT (Auto Transplant) of my left kidney from Nutcracker Syndrome.

In the past decade I have undergone 5 surgeries, not including times I was under anesthesia for tests and procedures, LASIK twice, wisdom teeth removal.....

I no longer have a gallbladder, or an appendix, my sinuses were ballooned, a ligament compressing my diaphragm was removed, and my kidney is on the other side of my body now.

I still have multiple chronic health conditions, on a genetic level, and fight against them daily.

But my goal isn’t to complain that I have a mountain to climb.

It’s to show others it can be climbed.

“If you’re going through hell, keep going.” - Winston Churchill

And it only seems fitting that on New Year’s Day I find out I’m Covid positive.

What a way to wrap up a decade, and ring in the new year.

#nutcrackersyndrome #MALS #malswarriors #malsawareness #MedianArcuateLigamentSyndrome #PosturalOrthostaticTachycardiaSyndrome #InappropriateSinusTachycardia #VasovagalSyncope #Dysautonomia #EhlersDanlosSyndrome #rosecea #IrritableBowelSyndromeIBS #Gastroparesis #PolycysticOvarySyndrome #AutoTransplant #COVID19

I know that its so hard to have a cheerful attitude when you're chronically ill, but I thought I'd share my top 4 things to remember to help keep your spirits high even with a malfunctioning body. Link below.

https://www.ineffably.co/blog/having-a-positive-mindset-despite-challenges

(Also feel free to browse the rest of our site! We are here to help raise awareness about chronic illness, and to support and encourage fellow warriors!)

Wishing you all well, and sending lots of love and spoons to you!

Jordan
IG: @positively_jord
www.ineffably.co

#EDS #POTS #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #ChronicIllness #ChronicIllnessBloggers #ChronicPain #AdrenalInsufficiency #HypothyroidismUnderactiveThyroidDisease #VasovagalSyncope

Well....it happened. WHAT? Oh, I'm glad you asked. I fell asleep...ok...I out right passed out sitting on the toilet in a public restroom. I'm not sure how long I was out...not very long. When I woke up I thought, "Do I attempt to wash my hands and risk passing out again...and having people call 911...ooooorrrr.....do I sit here...on the toilet and wait for this next bout of 'graying out' to pass?" You guessed it! I sat on the toilet of the public restroom in this very expensive hotel to wait out a wave of whatever you want to call it to save face. I lived! No 911!!! #Dysautonomia #VasovagalSyncope #NeurocardiogenicSyncope