adrenal fatigue

Hello
Does anyone have recommendations for an iPhone app that tracks things like mental and physical symptoms? I have a few cooccurring medical issues going on, including a newly discovered hypercortisolism and before my appt with a specialist , was suggested I keep track of any and all related symptoms (fatigue, anxiety, insomnia, pain, etc)
Anyone have any thoughts or recommendations for symptom trackers?

#ChronicIllness #InterstitialCystitis

I have too many doctors to count and too many conditions to manage, it feels like. I have #InterstitialCystitis (have had for 30 years) and am tired of the pain and admit to not even worrying about diet restrictions. I deal with what I think is #AdrenalFatigue and just basically go to bed during a crash. I deal with upper back pain from too much computer usage, I’m sure. The latest diagnosis on my list is stasis dermatitis, a rash/discoloration of the lower legs. I’ve been told to wear compression stockings and use lotion/cream to help the itching, and also keep my legs elevated. I cannot elevate my legs when working on a computer, and we can’t afford to get a Laz-e-Boy for me.

I’m also a #Depression , #Anxiety , and #ObsessiveCompulsiveDisorder sufferer (I use therapy and meds). Plus I have an adult son with autism. While he can take care of his basic needs and hold down a simple job, I still have to arrange for his SSI (I’m constantly leaving messages with Social Security. I’m also his legal guardian so I can speak on his behalf.)

We’re also dealing with debt and there are political issues on which my husband and I disagree, and I’m not very good at debating people so I don’t get into it at times. And a lot of people have left my church over the last year. Church is our second family, and it is painful to see people leave.

It’s just plain too much at times. The only thing that really helps is that my husband’s job offers good insurance.

Anyone here with adrenal insufficiency/ adrenal fatigue syndrom?

Hoped to share some history, stories or something else.

Be welcome to write.

#ChronicIllness #AdrenalInsufficiency #AdrenalFatigue #Burnout #Depression #Insomnia

Writing to distract myself.

I knew i was going to be in trouble..but was hoping to get away with it...Nah of course not.

My Narcolepsy did its every few months flip to Cant sleep 2 nights ago & I got about 6 hrs combined of sleep this weeked.

I knew I was on thin ice. I took the rare stimulant today (sudafed..the behind the counter kind 'cause I cant process methylphenidate, provigil and its ilk due to CYP2D6 drug-gene metabolism defect nor caffine because of another one.)

I rarely take them for a boost because of crashing...which is more from the not sleeping i think.

Woke up rocking in pain plus ANS shakes.

Trying to decide if i need a rescue dose of Hydocortisone for my Adrenal Inufficieny which is life threatening (my pituitary can't get on the horn with my Adrenal glands -or any others for that matter except parathyroid who is always up for a chat but but really doesnt do much)....so my Adrenal gland doesnt get the SOS of

"HEY we are in trouble. There is a stressor in action (pain). Deploy the Cortisol"

So now I have to take on its function of deciding if my body needs some. I just took my daily 5 am 20mg dose, so i think i may be OK.

If anyone ever dies a salivary cortisol test and tells you you have Adrenal Fatigue go straight to an endocrinologist and get a low dose CRH test to make sure you dont have Adrenal Insufficiency instead. TG my Functional Medicine/CAM Dr was a smart cookie and not an egoist & did that. Tge test was so low my Endocrinologist said Your lucky you haven't died & I dont know how you havent been in tge ER for this yet (maybe I SOULD have gone in all those tome zi was pukinging and shaking and generally felt like I was dying but the thought of sitting for 4 hours in an ER waiting room in that state was too much.

Thankfully I gave a Do mot stop. Pass Go & collect $200 medical alert bracelet and a letter from my enocrinologist on the phone giving instructions for immediate IV hydrocortisone & saline.

As i just took my morning HC & 8mg of hydromorphone i think i am going to give it 15min. The pain & shakes are already starting to lessen.

TG for A dr that will prescribe hydomorphone instead of oxycodone (which my body cant turn into said hydomorphone because of CYP2D6)

TG for electic blankets
TG for this space of compassionate people who get it and provide the space to write.

TG for the SOS Waking in Pain meditation in Headspace app.
(SX have calmed enough I can focus on it now)

Thanks 4 the ear!
ImaJenn.

PS if you take multiple meds ot painmeds SNRI, SSRI,TCA, or Any Common Med
Check out
www.genelex.com/test-menu/cyp2d6
www.researchgate.net/figure/Major-substrates-and-inhibitors-...

#disabilityresource
#mindfullness
#masterthemoment
#Narcolepsy
#ehlersdanlos
#immunedeficiency
#disautonomia
#chronicpain
#selfcare
#askme
#AdrenalInsufficiency
#AdrenalFatigue
#noshame
#Upallnight
#CheckInWithMe
#DisabilityBenefits i can help U #genedrug
#MentalHealth

I asked for support last week and need it again. my energy level is at the bottom (I just posted with #AdrenalFatigue as a hashtag) and when I feel rotten, everything looks bad. The people I worked for asked me if I could take a job over the weekend . .. I said NO. I cannot work seven days a week. I worked over the weekend last weekend and it drained me. Everything just looks bad and I am tired, and I feel powerless.

I don’t know if I have adrenal fatigue or not, but my body just keeps crashing. It usually happens when I push myself too hard and then all I want to do is sleep. YES, I have been to doctors. I don’t have any idea who else to go to or what else to do because I am afraid of paying out money and just being poorer and sicker than I am now. I made an adrenal cocktail today with OJ, drank it, thought I would make another one later in the day, only to find out that my son drank the rest of the OJ.

My son’s 21 and has autism. We are dealing with debt. I also deal with depression and it gets worse when I don’t feel well. This is one of the days where I don’t think I’ll ever get well. Ever.

this article explains that some people who are given the diagnosis 'adrenaline fatigue' (not adrenaline insufficiency that's a different thing, as it explains) really have undiagnosed POTS.
the correct diagnosis is key, as it does make a difference, and there are things that can help
health.clevelandclinic.org/the-truth-about-adrenal-fatigue