appointments

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Early morning snack

I woke up at 330am and kinda just laid there staring at the wall. Then I realized exactly 2 things.

A. I needed to pee.

B. I was very hungry and craving cheese.

So I got up and went potty... And fell asleep sitting on the toilet. Oops. Then I went to the kitchen and kinda just...stood there. I looked at my bread and decided I needed a sandwich or I would fall apart.

So I put some roast beast lunch meat on the plate and piled shredded Mexican cheese on top and microwaved it for a minute.

I took 2 slices of bread and smeared garlic hummus on each one. I put it together and was like well gosh should I slice it in half? Little brain got excited and said I should cut it into 4 triangles. Big brain said we're an adult, we'll eat it whole. So I left it whole.

Great googly moogly it was good. The only thing that could have made it better would be the everything bagel hummus.

I tried ordering more but it isn't available on Instacart! So instead I'm ordering some dill pickle flavored hummus. It sounds good to me.

I'm gonna shower at 9am. Ooooo my left hip just popped really loud. My right hip feels like it needs to pop but it won't.

#foodadventures #appointments

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This week

Monday: therapy at 3pm

Tuesday: appointment with my cardiologist. Not excited. She's kinda ignorant.

Wednesday: appointment with my BHH nutritionist. We had originally planned to go to Avon donuts at 9am but I think I'd rather go to trader Joe's. I'll text her tomorrow morning.

Thursday: therapy session at noon.

Friday: virtual follow-up appointment with my PCP. Should be a hoot . Gonna go over lab results. I'm not looking forward to it. I'm currently pissing out ketones and tons of sugar. Explains the yeast infections. Might explain the ringworm. My doctor is really nice but she doesn't know my history the way my previous PCP did. He was my friend in addition to being my doctor. He told me I was his favorite patient cuz my health was never boring. He'd be having fun with what I've been dealing with. I miss him.

Weekend: if I'm feeling better, we might go to Great lakes crossing mall. There are 2 bubble tea shops! It's the biggest mall in Michigan. It has an aquarium. I think I might have fun there.

I'm considering talking to my doctor About getting a cane cuz walking has become so painful.

#weeklyreview #appointments

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Nerves

Appointment day. Really nervous. I’ve been back and forth with ENT for the last 18+ years and every time X surgery is meant to solve it and then the worst-case circumstance of Y happens. Finally getting told how my hearing is doing as well. Probably a bit of a trauma-related anxiety as when I got bad news last time my ex broke up with me within the hour of telling them. I know my partner wouldn’t do that, but having had something happen once means that the fear of it happening again is always somewhat there, regardless of any differences or specifics.

Also have my blood test tomorrow. Last one was abnormal & WBC was on the lower side of normal despite being ill (normally the opposite happens), and having had a quite low WBC before (which landed me seriously ill in hospital) the anxiety is there. I’m sure it will be fine, it’s just again a trauma response.

#ent #appointments #bloodtest #wbc #Anxiety #Trauma #Waitinggame #appointmentday

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Appointments coming

#Doctors #appointments

Good morning everyone. How are you all doing today? I wanted to share that I'm seeing 3 doctors within a 3 week period. An ent in 2 days, a neurologist in a week & a spine doctor in 18 days. I'm becoming a little anxious about each of these appointments for a few good reasons. There's lots of pressure on me to say the right things & explain to them that my problem is real & is affecting my quality of life. Problem is the issue that is causing me digestive issues, swallowing issues/clicking throat, grip issues, posture abnormalities, gait disturbance/ wide based gait, tinnitus, tmj etc. I have proof of the digestive symptoms yes ew, but they may be critical in figuring out if I have an infection or not. The neurologist will need to figure out on top of all that if radiological findings are just porencephaly or something more sinister.

My guess for the first set of problems is an encephalitis of some kind. I've read about how infections can be dormant then occur suddenly after stress, excercise etc. Before we moved houses I got a pinched nerve in my neck that with correction unleashed its wrath on my poor body. I'm hoping the neurologist can piece together whats going on there. Bloodwork, urine etc have comeback normal so I don't know how we are going to detect something that is getting harder to find? The spine doctor will need to figure out why I have a posture lean. The ent will need to figure out if my swollen lymph node & nodule are benign or cancerous. There's alot we need to figure out & its kinda overwhelming. I hope all will be revealed soon. I'll keep you guys & gals updated as I learn more. Have a great day.

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Quick Tip Thursday Repeat: Check the Accuracy of Your Blood Glucose Monitor and Continuous Glucose Monitor at Doctor’s Appointments

Compare your results with the machine from the doctor's office when you attend your doctor's appointment. This will reveal if there are any discrepancies.

(Had some tech issues with the program that I normally use so decided to share a quick tip repeat!)

#Diabetes #DiabetesType1 #DiabetesType2 #Diabetestype3 #lada #mody #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #Health #HealthCare #appointments #Support #SupportGroups #MightyTogether

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Quick Tip Thursday: Check the Accuracy of Your Blood Glucose Monitor and Continuous Glucose Monitor at Doctor’s Appointments

Compare your results with the machine from the doctor's office when you attend your doctor's appointment. This will reveal if there are any discrepancies.

#Diabetes #DiabetesType1 #DiabetesType2 #prediabetes #ChronicIllness #AutoimmuneDisease #Health #HealthCare #HealthcareProviders #appointments

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All Day I Waited for a Phone Call That Wasn’t Coming

I’m sure I’m not the first to do it and I’m sure I won’t be the last, but it was my first time mixing up appointments.

~discouraged, embarrassed, defeated~

Many emotions surfaced yesterday upon the realization I wasn’t getting a phone call from my doctor.

“How could I have mixed it up.” The mantra repeating through my mind as I wept defeated in my room. Embarrassed for asking my partner “to make sure he was home” so he could listen to the call as well. My memory, my mind since this diagnosis definitely hasn’t been in it’s tip-top shape.

Anyway, today is the day I hear from the oncologist. Hopefully there’s some sort of plan since the surgeon won’t go anywhere near the mass. Seems like every doctor just wants to pass me to the next like a baton. A baton no one wants..

#appointments #CastlemanDisease #whereismymind

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Scoliosis Appointment

Today I had my appointment at the scoliosis clinic. Surprisingly there has been a significant improvement in my curve in my spine. I had to have an X-ray which brought some anxiety as that is the last thing I remember before I was put in an coma so I’m not a fan of them anymore 🤦🏻‍♀️ I was officially signed off the clinic 🎉🎉 another one down Woop woop 🎉🎉🤯❤️ #Trauma #Scoliosis #PTSD #appointments

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Does anyone ever have trouble keeping appointments?

So I have been forgetting doctor appointments or sleeping past appointment times, is this the depression, ptsd, and anxiety? Or is it laziness? Could it be my dyslexia? FeFealing pretty bad about myself....
#appointment#appointments #PTSD #MajorDepressiveDisorder #GeneralizedAnxietyDisorder #missed #Doctor #dontknowwhat #dontknowwhattodo

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Anyone else feel like they spend their life chasing up and going to appointments/referrals?

One's been cancelled possibly for a second time, an appointment in January just got cancelled and I have to call to find out why, one won't be reviewed til Dec 16th and a fourth I have to call to confirm. Add to that the fact I get really anxious about calling people and am currently chasing the university to get my exams moved because of a really bad flare...
#Ugh  #CheckInWithMe  #appointments   #EhlersDanlosSyndrome  #possiblepots   #ChronicPain  #overwhelmed