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Finding Filotimo: How a Greek Virtue Became a Mission for Cystic Fibrosis Awareness

Growing up, I was surrounded by a word that didn’t have a direct English translation but shaped every aspect of my life—**filotimo**. A Greek term that embodies honor, selflessness, and an unwavering commitment to doing good for others, filotimo was more than just a word in my family; it was a way of life. Little did I know that years later, it would become the heart of my mission to support those living with cystic fibrosis (CF).

A Personal Journey Toward Purpose

My connection to CF is through a personal diagnosis and through the stories of countless individuals and families who battle this disease every day. CF is a genetic, life-shortening condition that primarily affects the lungs and digestive system, making even the simplest acts—like breathing—a daily challenge. Too many children and adults with CF face stigma, barriers to care, and an uncertain future.

Through my journey, I saw that despite incredible medical advancements, too many people are still being left behind. We can’t stand by and watch. That’s when Filotimo Foundation was born—a nonprofit dedicated to empowering and supporting the CF community, raising awareness, and advocating for better care and treatments for everyone affected.

We live in a world where invisible illnesses often go unnoticed, and people with CF sometimes feel like they are fighting an uphill battle alone. That’s why Filotimo Foundation isn’t just about funding research; it’s about building a community where no one faces CF alone.

Breaking Stigmas, Changing Lives

A major part of our mission is removing the stigma associated with cystic fibrosis. Many people don’t realize that CF affects adults as well as children or that the disease varies widely from person to person. By sharing real, personal stories, we hope to reshape the conversation and educate the world about what it truly means to live with CF.

Our foundation works tirelessly to provide financial assistance, emotional support, and advocacy for those who need it most. Whether it’s helping a family afford essential treatments, organizing awareness campaigns, or partnering with organizations to push for policy changes, every action we take is rooted in Filotimo—the deep, personal drive to do good for others.

We’ve come a long way, but the journey is far from over. Until every person with CF has access to the care they deserve, until no one loses their battle too soon, and until there is a cure, we will keep fighting.

If my story and the mission of the Filotimo Foundation resonate with you, I invite you to join us. Whether through donating, advocating, or simply learning more, you can be part of a movement that is changing lives.

Together, we can bring filotimo to the CF community and beyond—because no one should fight this battle alone.

www.filotimofoundation.org or Instagram Filotimo_Foundation

#filotimofoundation #Awareness #CysticFibrosis

Cystic Fibrosis Support | Filotimo Foundation

Cystic Fibrosis support for adults in need of financial or reproductive assistance: Welcome to the Filotimo Foundation.
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Growing Pains

A lot has happened recently. I made those I love aware about my harmful thoughts towards myself. I'm going to start therapy soon, and I've started on a medication, as well as my family finally acknowledging my medical condition. I have something very similar to POTS, called autonomic dysfunction. This is one of the many things that has contributed to my mental health, and now my family realizes how bad it is. Though I am getting help, this is called "Growing Pains" for a reason. My condition is manageable, but chronic. I have to take in a lot of sodium to help manage it, and it's really hard. That and the medication I mentioned has been rough on my stomach. I might be getting help now, but things aren't perfect. Anyone else healing, its a process. These growing pains will be there, but I think everyone needs to remember, it just means we're growing, and getting better. Stay safe, and I appreciate you all. #Depression #AutonomicDysfunction #Awareness #growing

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Wulff system

So I'm gonna be in the process of creating somewhat of a video diary to track my journey with DID on FB. I hope to capture my alters on video so that 1. I have a record of when I switch 2. Educate people about DID. If any of you would be interested in watching please don't hesitate to reach out to us on Facebook at the Wulff System. Leave me a message on messenger and I'll add you directly just to limit spammers and ridiculous "miracle cures".
#DID #DissociationDisorders #Awareness #videodiary

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quote of the day 🌚

When I was younger I used to collect quotes like this one (and I particularly liked Jim Morrison's).

I don't think general quotes can work magically or for anyone, but I do believe they can hide hints inside of them.

I always find them inspirational, even when I don't think they fit for me.

"If you don't control your mind, someone else will."

What do you think about this? :)

#mind #Awareness #jimmorrison #Quotes

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freely writing what comes to mind as a way to know what's on my mind 🖋️

Writing with no filters apart from my own artistic means as my only way to have a clue about what's really going on inside of me.

I have a hole in my mind and have no clues what's going on there and I'm only at the beginning of the process to reach it.

04.11.23

love myself
kept me company
there's detachment inside of me
I've killed
So what am I?
oblivion of my past
the many millions versions
warriors
the desire to be with you
Has it always been me?
just me and only me
my ego my will my life
back at my core
should never forget you
my confusion healing me
my little friends
I'm back at you again
wrappes by placid me
Taking care of you all.
I'll come to love you.

#Writing #oblivion #mind #Awareness #Understanding #Poetry

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National Brain Injury Awareness Month #BrainInjury #Awareness #MightyTogether #MentalHealth

Surviving trauma is not easy
Surviving trauma takes a determined mind
Surviving trauma is falling down
Surviving trauma is getting back up
Surviving trauma is accepting change
Surviving trauma is accepting a helping hand
Surviving trauma is sharing pain
Surviving trauma is forgiving yourself

September 04,2017
It has been eight months since my accident. I am learning to live with the loss of some peripheral and blurred vision, constant headaches, confusion, dizziness, mobility restrictions in both shoulders and memory loss. Being aware of every new pain or numbness and wondering is this because of the injury or nothing and it will pass.
The memory loss is the hardest to deal with. Having a conversation, going to a movie or sharing a moment and knowing that in a week you may not remember some of what happened and in a couple weeks you may not remember it happening at all. It's not all bad, I don't remember what things taste like, so anything I eat now is like it's the first time. Imagine what it would be like to have chocolate ice cream or pep/mushroom pizza for the first time at 55. The short term memory loss has forced me into being more organized and I can't procrastinate, so I have that going for me.
A brain injury means I don't drive, I don't do the job I loved. I do take things slower, I live in the moment and that's not so bad.

September 04,2023
80 months since my accident, so many changes. Now on disability, lost our home, lost Brandy. Once again we are starting over, no not starting over, getting back up after being knocked down and without brushing of the dirt we are back in the batters box. Give us your best pitch we can take it.

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