chronic

It's a daily thing I wake up go to the bathroom then the pain starts. It feels like I was hobbled over night because my ankles,my feet, and calves are dysfunctional causing feet and hand deformity. The genetic disease i have will progressively take out all type 1 skeletal muscles.

There is a cardiac involvement but I'm awaiting to see Cardiologist at Cedar Sinai to evaluate the pathology of my variant.

Ten yrs and eight spinal surgeries gave way to neurogenic muscle atrophy and beginning this year finally diagnosed with muscular dystrophy at 58yrs old. I have been wearing full leg braces due to bi lateral foot drop for over 15yrs.

Don't know why I posted such a detailed description and to whoever reads this I'm grateful you took the time.Sometimes because of my age I don't think me or my condition is important and that if there is ever a cure or treatment for this rare affliction it should be for children and congenital complications.#OCD #BPD #chronic pain#myocodritis #MuscularDystrophy #Peripheral neuropathy #MDD #

I joined this group a little while ago but didn't feel like using hashtags but I imagine for social forums that are geared for relatability it's a good thing so I decided to use hashtags but no need to respond just getting it out there.

#BPD #chronic pain#mobility problems #Muscular dystrophy #perpheral neuropathy #Hyperalgesia #OCD #distal and proximal myopathy #Facial neurolgia#bi lateral foot drop

#chronic pain#clueless#empty#grieving

Loss of a younger brother and was not able to attend celebration of life Saturday morning which also would have been another birthday for he and his twin. I sent a message to a dear friend that lost a brother month ago shared my story of my brother. She'll get it tomorrow. My brother and I shared a love of sports and I was texting him score of his football team morning of his eventual passing.

# grocery store #cheermeon# sunny day#achy breaky feet#chronic pain#motivated#Early bird to the store#90degree day

Got some food for the weekend @6am open door rush in NOT REALLY. Gently enter asked for assistance finding an item explained I had really painful feet would you look n off she went . Came back with a product I gave her a HUG COUPON redeemable by any human being. She took it politely and I explained keep it and share a HUG some day

#DistractMe #coloring#coping #TV women's sports #chronic pain#fibromyalgia#breast cancer survivor 21 years #Stand up comedy#clowning#Public speaking for MH Coloring and women's sports on TV help me gain focus. CALM!

I can’t believe I am going through with it but I am. I am breaking all my bonds in this world and feel terrible for what I’m about to do but there’s no other possible solution. Not sure when or how but it’s on, and soon, man.

My fiancé and I have had a major blow up today and I am triggered, triggered, triggered. I don’t feel like he is being honest and actually it’s ok. The arguing is over and I can be free, finally.

I’m going to miss the real and only true love of my life and that is my dog, Sam. I have to believe he will be ok. I am praying our souls will remember each other in our next life together because I am determined to seek him out. I feel like we’ve been traveling together for eternity. Surely, we will continue to do so.

I am so happy to have had the opportunity to share my experiences here. More love and acceptance with the Mighty peeps than anywhere else! Much love to you all and please continue to support each other with love and compassion. That’s the only way. Until we meet again ❤️🙏😘 #SuicidalThoughts #PTSD #Depression #Anxiety #Osteoporosis #SpinalStenosis #chronic pain