chronic

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My daughter.. .then! #Disability #chronic pain

My eldest daughter will have her birthday soon. I'm giving her this photo of herself.
In 1977, I noticed that my daughter's zweibach was going pretty fast. I suspected it was Lindsey, but had to catch her.
So I quietly got into my hiding place.
And waited.
A short time later, I heard her coming.
Surprise she was being pretty quiet !!
Then a chair to the cabinet, climb up and there she was, ready for a zweibach.
She was opening the lid and I jumped up and snapped a picture of my guilty child.
Caught!
She forgot about it, over time. Got married and has 3 daughters.
I love this picture! It reminds me the time she figured out a way to outsmart me.
Only she didn't!
She was 2 years old.

Lindsey--0
Mama---1

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Watch what you pray for!#Disability #chronic pain

It has been a very dry season, rain much overdue here in east Texas.
We needed rain badly.
And it did!
It rained alot, tornadoes, no electricity and some damage and here's the result!

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° "Hello! The Mighty Family"° #Update #Depression #chronic Pain.

☆ " GOOD MORNING! To All Of The Mightiest Peep's. I'm Very Sorry... For Not Being On Here More... Life Has Been Extremely Busy And Changing Still... I Still Work At The Same Place... Thing's Have Changed Alot. My Old General Manager And District Manager Both ( Female's ) Retired. Now We Have A New General Manager And DM Both Male Lol The Switch Out Of Nowhere. But We Stayed With An Assistant Manager (Female ) Older Lady. Who Is Still An Issue. You Can't Fix That. Anyway My Personal Life Is Changing As Well... I Met Someone Extremely Special... Kind And Smart Etc... I'am Super Happy In My New Realtionship. I Work From 6PM To 1A.M. " ° Sincerely , Skaoi Kvitravn #Thought 's #Update

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Sunset and Russell!#chronic pain#Disability #Addiction #mighty pets

At my son in laws ranch in east Texas, watching the sunset. And Russell checks it out too!

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Surgical Injection Today

Going in for a surgically guided injection for this tremendous pain in my lower spine. Wish me luck!
#Sarcoidosis ,#chronic pain,#scolioosis ,#spinal cord stimulator

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Myopathy a life-changing journey

It's a daily thing I wake up go to the bathroom then the pain starts. It feels like I was hobbled over night because my ankles,my feet, and calves are dysfunctional causing feet and hand deformity. The genetic disease i have will progressively take out all type 1 skeletal muscles.

There is a cardiac involvement but I'm awaiting to see Cardiologist at Cedar Sinai to evaluate the pathology of my variant.

Ten yrs and eight spinal surgeries gave way to neurogenic muscle atrophy and beginning this year finally diagnosed with muscular dystrophy at 58yrs old. I have been wearing full leg braces due to bi lateral foot drop for over 15yrs.

Don't know why I posted such a detailed description and to whoever reads this I'm grateful you took the time.Sometimes because of my age I don't think me or my condition is important and that if there is ever a cure or treatment for this rare affliction it should be for children and congenital complications.#OCD #BPD #chronic pain#myocodritis #MuscularDystrophy #Peripheral neuropathy #MDD #

(edited)
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Hashtags

I joined this group a little while ago but didn't feel like using hashtags but I imagine for social forums that are geared for relatability it's a good thing so I decided to use hashtags but no need to respond just getting it out there.

#BPD #chronic pain#mobility problems #Muscular dystrophy #perpheral neuropathy #Hyperalgesia #OCD #distal and proximal myopathy #Facial neurolgia#bi lateral foot drop

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ANXIOUS 😰 😰 😰

#chronic pain#clueless#empty#grieving

Loss of a younger brother and was not able to attend celebration of life Saturday morning which also would have been another birthday for he and his twin. I sent a message to a dear friend that lost a brother month ago shared my story of my brother. She'll get it tomorrow. My brother and I shared a love of sports and I was texting him score of his football team morning of his eventual passing.

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