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Against The Odds

#Bipolar2 #Fibromyalgia #chronic Migraines #occipital Neuralgia #GeneralizedAnxietyDisorder #Depression

Let me preface this by saying I have an icky cold so I wasn't at my best last night. I also need to say the people I am going to refer to are intelligent, well respected individuals. They are my family and I do love them. But I worry about them.

So the thing is I have a degree in the medical field. I worked in my chosen field for about 20 years. I will be the first to admit that doctors and medicine are not perfect. Science is not exact.

Well, everytime my family gathers together a discussion arises about how bad doctors are and how this or that medicne is poison. Each of them have a story to prove their theory. Only herbs and new age potions, if you will, should be used, nothing manufactured. Last night at Thanksgiving dinner it was no different. The conspiracy stories ran wild about how we were being lied to, used and so on. Usually I keep quiet, inwardly rolling my eyes. I couldn't do it last night. My anxiety about the preposterous things they were saying was too much. I blurted out my disagreement instead of calmly explaining why what they were saying was misleading information. You would have thought I had lost touch with reality as all six people at the table began bombarding me with one outlandish statement after another about how I had been brainwashed by "the hospital machine" and "Big Pharma" and so on. One even brought up my willingness to receive a COVID vaccine as proof of how gullible I was. I sat with my jaw dropped open in disbelief. Not a single person came to my defense. As the discussion took off into how COVID was a hoax (I had 10 beloved people die from that hoax), I finally I asked that we talk about something else. They obliged.

My evening was ruined. Not only did I not feel well, but I felt like an outsider with my own family. I felt like I had done something wrong. In the past when I have attempted to defend the medical community, I have gotten shot down but not quite so brutally. I'm not one to stay quiet when I feel someone is way off base but last night was something. I will admit I don't do well with conspiracy talk.

I am very sure of myself and my belief in modern medince. I don't know where I would be without it. I guess the fact that my family can just callously ignore my knowledge hurts more than I want to admit.

Today, my cold rages on and I feel lonely. It's times like this that I wish I had a partner, someone in my corner to be on my side and shelter me (que the umbrella in the picture). I'm having a bit of a pity party. I guess I just needed to write it all out. Thank you all for being a part of Mighty Together.

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My daughter.. .then! #Disability #chronic pain

My eldest daughter will have her birthday soon. I'm giving her this photo of herself.
In 1977, I noticed that my daughter's zweibach was going pretty fast. I suspected it was Lindsey, but had to catch her.
So I quietly got into my hiding place.
And waited.
A short time later, I heard her coming.
Surprise she was being pretty quiet !!
Then a chair to the cabinet, climb up and there she was, ready for a zweibach.
She was opening the lid and I jumped up and snapped a picture of my guilty child.
Caught!
She forgot about it, over time. Got married and has 3 daughters.
I love this picture! It reminds me the time she figured out a way to outsmart me.
Only she didn't!
She was 2 years old.

Lindsey--0
Mama---1

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Watch what you pray for!#Disability #chronic pain

It has been a very dry season, rain much overdue here in east Texas.
We needed rain badly.
And it did!
It rained alot, tornadoes, no electricity and some damage and here's the result!

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° "Hello! The Mighty Family"° #Update #Depression #chronic Pain.

☆ " GOOD MORNING! To All Of The Mightiest Peep's. I'm Very Sorry... For Not Being On Here More... Life Has Been Extremely Busy And Changing Still... I Still Work At The Same Place... Thing's Have Changed Alot. My Old General Manager And District Manager Both ( Female's ) Retired. Now We Have A New General Manager And DM Both Male Lol The Switch Out Of Nowhere. But We Stayed With An Assistant Manager (Female ) Older Lady. Who Is Still An Issue. You Can't Fix That. Anyway My Personal Life Is Changing As Well... I Met Someone Extremely Special... Kind And Smart Etc... I'am Super Happy In My New Realtionship. I Work From 6PM To 1A.M. " ° Sincerely , Skaoi Kvitravn #Thought 's #Update

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Sunset and Russell!#chronic pain#Disability #Addiction #mighty pets

At my son in laws ranch in east Texas, watching the sunset. And Russell checks it out too!

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Surgical Injection Today

Going in for a surgically guided injection for this tremendous pain in my lower spine. Wish me luck!
#Sarcoidosis ,#chronic pain,#scolioosis ,#spinal cord stimulator

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Myopathy a life-changing journey

It's a daily thing I wake up go to the bathroom then the pain starts. It feels like I was hobbled over night because my ankles,my feet, and calves are dysfunctional causing feet and hand deformity. The genetic disease i have will progressively take out all type 1 skeletal muscles.

There is a cardiac involvement but I'm awaiting to see Cardiologist at Cedar Sinai to evaluate the pathology of my variant.

Ten yrs and eight spinal surgeries gave way to neurogenic muscle atrophy and beginning this year finally diagnosed with muscular dystrophy at 58yrs old. I have been wearing full leg braces due to bi lateral foot drop for over 15yrs.

Don't know why I posted such a detailed description and to whoever reads this I'm grateful you took the time.Sometimes because of my age I don't think me or my condition is important and that if there is ever a cure or treatment for this rare affliction it should be for children and congenital complications.#OCD #BPD #chronic pain#myocodritis #MuscularDystrophy #Peripheral neuropathy #MDD #

(edited)
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Hashtags

I joined this group a little while ago but didn't feel like using hashtags but I imagine for social forums that are geared for relatability it's a good thing so I decided to use hashtags but no need to respond just getting it out there.

#BPD #chronic pain#mobility problems #Muscular dystrophy #perpheral neuropathy #Hyperalgesia #OCD #distal and proximal myopathy #Facial neurolgia#bi lateral foot drop

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