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The Silent Tremors of Survival

Salma had always been careful—careful about what she said, what she showed, and what she hid. A five-year post-transplant recipient, she had spent years learning how to blend in. Diagnosed with chronic kidney disease in grade 7, she had endured six months of peritoneal dialysis before receiving her renal transplant. Now, in her first year of B.Sc. Biochemistry, she had perfected the art of invisibility.

No one at college knew about her past. The scar on her neck, where the dialysis catheter had once pierced her jugular vein, remained hidden beneath the folds of her hijab. The tremors in her hands, she dismissed as nervousness. The immunosuppressant pills, she took in the privacy of her home. Even her hospital visits, scheduled on Wednesdays, were easily concealed because she had a day off.

That Monday, her chemistry practical required her to identify an unknown organic compound. The choices were phenol, aniline, benzaldehyde, glucose, benzoic acid, phthalic acid, urea, and benzamide. Salma got glucose, and she recognized it immediately—just from its physical appearance. She carefully performed the solubility test, then proceeded with Molisch’s test, Fehling’s test, and Tollen’s test. The results were unmistakable. The violet-colored ring of the Molisch’s test and the silver mirror formed in the Tollen’s test were almost beautiful, shimmering under the laboratory lights.

Satisfied, she stood in line to report to the professor. She had gone over the procedures in her mind, confident in her explanation. But when it was her turn, she lifted her first test tube—and her hands began to tremble.

The professor, seeing her struggle, didn’t press her for answers. Instead, he simply asked for her roll number and the compound she had identified, then sent her away.

Salma walked back to her seat, her heart sinking. She should have been relieved—she wasn’t questioned, she wasn’t embarrassed—but all she felt was rage at her own hands.

She wasn’t nervous.

So why did her hands betray her?

That afternoon, she lay on her bed and cried herself to sleep, hating her body for refusing to stay silent. She imagined her hands trembling even in death—as if they wouldn’t stop until the whole world knew her story. Until everyone understood what she had survived.

But was it truly her fault?

No.

Her tremors weren’t a sign of weakness, but the lingering effects of survival. The culprit was Tacrolimus, the very drug that kept her transplant safe. A powerful immunosuppressant, Tacrolimus disrupted calcium signaling in neurons, causing them to fire excessive, uncontrolled impulses, leading to hand tremors and neuropathy. Years of kidney failure before the transplant had also exposed her brain to uremic toxins, altering neurotransmitter balance in ways that couldn’t be undone overnight.

And then, there was the adrenal connection. The kidneys sat close to the adrenal glands, which controlled stress hormones like adrenaline and noradrenaline. The trauma of surgery, the long battle with CKD—something in her autonomic nervous system had shifted, making her body overreact to stressful moments.

The tremors weren’t hers to control. They were the silent echoes of everything she had been through.

And yet, here she was. In a lab coat, performing experiments, building a future.

Her hands trembled, but she was steady.

Her body still carried traces of her past, but she was moving forward.

And that, more than anything, meant she had already won.#chronic #renal #diagnosisjourney

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Just joined “The Mighty” today. I have Multiple Sclerosis, Chronic Pancreatitis (With chronic pain) and diabetes secondary to chronic pancreatitis. (And a host of other diagnoses… but those are the big ones. I am a medically retired nurse. I struggle with chronic pain, fatigue, muscle spasms, nutritional deficiency, migraines. Not being able to work has really impacted our financial stability and my sense of self esteem. I fight loneliness and isolation. My husband works 50+ hours a week (As he is our source of medical insurance and primary “Bread winner”). I have 2 adult sons who have their careers and social life. All our family is out of state. I hope to connect with other people who know what living with chronic illnesses is like. I also look forward to others pearls of wisdom. # multiple sclerosis #chronic pancreatitis #Diabetes #chronic pain #Fatigue

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Middle of the week !

#Depression #ptsd#CPTSD#fibromyalgia#chronic pain #bipolar#asthmatic#check in with me# make me laugh 😅 #Ex stand up comedy#theaterfor mh #Public speaking for MH #welcome new mighty members

OLD ENOUGH TO SAY ITS

HUMP DAY 😄 😄 😄

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Pain versus energy #Fibro Asthma #Migraine Arthritis #polymyalgia rheumatica #chronic pain

For years I have lived with almost constant pain. This past week, I unaccountably had 2 consecutive pain free days. Even though I usually do chores/tasks in 20-30 minute increments, I worked diligently for 6 hours each day. I couldn’t believe how much I was able to accomplish with no pain!! I am so grateful. Pain returned overnight but think of all the stuff I don’t have to do this week. Thanks be to God.

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Merry Christmas

Wishing all you Mighties a Merry Christmas. Thank you for all you done for each of us!
#chronic pain,#Asthma ,#Sarcoidosis ,
#spinal cord stimulator,

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Little Christmas joys

A few Christmas scenes. My body was not going to allow for anything fancy this year.
#Sarcoidosis ,#Asthma ,
#spinal cord stimulator,
#chronic pain

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New to the group

I was asked to introduce myself. I am 54 years old I am divorced with 3 awesome children. I have 1 grandson who has completely stolen my heart and soul. He lives in another state so I don’t get to see him often. But we video chat on a regular basis. When we are together, my struggles don’t seem to take over as much.

I have a rare autoimmune disorder that affects every system in the body. The one symptom in all who are affected is severe chronic pain. My entire body is involved - it even causes mental health issues. I have numerous mental health problems that stem from childhood (another post for a different day). I really don’t need the extra issues. #chronic pain#Dysautonomia #mast Cell Activation Disorder

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