Chronic Lymphocytic Leukemia

Post

•

See full photo

Are you struggling with chronic pain, anxiety, or age-related health challenges?

Meet Kristo—he suffered from pains in his body, fibromyalgia, three heart attacks, and one stroke, and has been using a sleep apnea device since 2012.

After 25 years of diligently following the medications and surgeries prescribed to him, his long-term doctors informed him in mid-May 2019 that they could no longer do anything for him. By this point, his body had deteriorated significantly.

He could no longer walk well. His vision was only 30% after two failed eye operations. Using two crutches, he could move a maximum of 100 meters before losing balance and falling over due to the pain. He had been suffering from chronic fatigue for at least 30 years, dragging himself through each day.

His wife, his caregiver for many years, juggled her job in childcare with an unpaid "job" as a nurse, driver, cook, cleaning lady, gardener, and chef, leaving her little time in her busy, hectic life.

Kristo was told to get comfortable in a scooter for disabled people and a wheelchair because that was going to be his life going forward. Their world fell apart - until a friend introduced him to our program.

See the new man! Kristo’s journey from chronic fatigue and debilitating pain to renewed vitality is just one example of how our program is helping many people get their lives back holistically, without medications and surgeries.

We are looking to talk to 60 men and women, especially those over 50, who have health problems and are serious about finding a proper solution.

Your insights will help us build a program tailored to your needs. Participants will be rewarded with a 10% discount when the program launches. It provides transformative results, by the way.

Interested? YES or NO?

Comment below if you want to participate!

Thanks!

#ChronicFatigue #ChronicIllness #ChronicDailyHeadache #ChronicLungDisease #ChronicPain #chronic #ChronicLungDisease #ChronicInflammatoryResponseSyndrome #ChronicPancreatitis #ChronicTraumaticEncephalopathy #ChronicObstructivePulmonaryDisease #ChronicOrthostaticIntolerance #ChronicVestibularMigraine #MentalHealth #Addiction #chronic #Anxiety #Arthritis #BackPain #CeliacDisease #CommonVariableImmuneDeficiency #ComplexRegionalPainSyndrome #Eczema #EosinophilicEsophagitis #HashimotosThyroiditis #ChronicLymphocyticLeukemia #HashimotosThyroiditis #InflammatoryBowelDiseaseIBD #InterstitialCystitis #IrritableBowelSyndromeIBS

2 reactions

Post

•

ChronicLymphocyticLeukemia 6mo

I have cancer but cancer doesn't have me.

#ChronicLymphocyticLeukemia .. Well I was pulled off of my cancer meds almost a month ago. On watch and wait now. I can feel the changes in my body now. I find myself being more careful around groups or crowds of people. Making sure my shots are up to date. Following my doctor's orders. I'm not going to let this condition stop me from living and enjoying life. I am going to continue to enjoy my retirement and trusting God the great physician to strengthen me. Everyday is beautiful because I can see it. No matter how my body may feel, I have JOY!!!

Post

•

See full photo

New to this

Diagnosed a year ago and on Wait and Watch. 6 month check up was ok. I also have migraines and need a reverse shoulder replacement - as soon as I want to schedule it. Next appointment is in May. Now I have pain in my arm pits and arms, (lymph nodes? Pain from bad shoulders?) I am nauseus (migraine? CLL?) and I am just plain exhausted all the time - (CLL? Age? Covid effects?) This is discouraging!!! Oh - add major depressive disorder, handled pretty well with meds and Christian counseling. Goodness - I’m even tired of listening to myself whine. Thanks for “listening”…

1 reaction • 1 comment

Save

Post

KimSings

•

@kimsings

MightyTogether 2y

I'm new here!

Hi, my name is KimSings. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether

#Leukemia I turned 65 this past October (2021) and went to a doctor for the first time in several years. I am a runner, fitness enthusiast, and felt I was in great health. Long story short, to my great surprise, the doctors discovered I have chronic lymphocytic leukemia. Already in stage one. Still trying to wrap my head around that.

1 reaction • 2 comments

Save

Post

csp33092

•

@csp33092

I'm new here!

Hi, my name is csp33092. I’m in Miami and new to The Mighty. I am looking for a local support group, a local CLL specialist and a local CLL Advocate. I surely would appreciate your ideas.

1 comment

Save

Post

Margaret Martinez

•

@margaretmartinez1

MightyTogether 3y

Margaret Martinez #

Are CLL Specialists recommending Covid-19 vaccination for CLL patients in remission?
#MightyTogether

Post

•

MightyTogether 3y

Covid-19 Vaccination

What is the CLL community experience with the Covid vaccine?
#MightyTogether

1 reaction • 1 comment

Save

Post

Tawni Wright

•

@tawniwright

Can do!

I have recently been reminded that instead of focusing on everything I can't do anymore because of my multiple chronic illnesses, I was getting deeper into my hole of depression; I needed to focus instead on the things I can do. It helps some to not dwell on the negative! Depression chronic illness migraine fibromyalgia CLL

4 comments

Save

Post

gab

•

@gabp

#Depression and #Grief followed by #SuicidalThoughts

I'm 21, I lost my mother recently right after Christmas. She was chronically ill with multiple illnesses like CLL Leukemia, MPD, heart failure, fibromyalgia, and much much more. She was in pain for a long time, but she was always there for me when I was in pain. As I've been dealing with depression since I was around age 6, she was always there to comfort me and get me through.

Now I'm lost. I have constant intrusive thoughts and they are worse and my life the past week or so has been just one big black hole. I don't remember much that's happened the past week or what I've even been doing besides trying to distract myself from the void. I cry, self medicate, try to distract myself, constant cycle. I just don't know how to get through this grief. I miss my mom, she was my bestfriend and much more than that. The pain she lived with I couldn't imagine, but the pain I'm left with I don't know how to live through.

I have emotional support, if I need possibly physical, I have family and friends who love me and I know they do. How is that not enough for me to not feel like I want to also be dead? I wish I could understand my own brain and thoughts.

The constant idea of suicide has always been in my mind since I could remember, but it's growing much harder to deal with. When my mother started taking a cancer treatment after she hit stage 4, she made me promise one thing. She made me promise to her that I would not kill myself over this. I promised her. I want to keep my promise. But the pain I feel is so strong and I don't know how to convey my emotions besides harming myself and being sad. I don't know how to deal with this pain. Even with all the love and support I have. I don't know how to do this. I want to stay strong for her as I know she wouldn't want me to feel this way. I just can't control my mind.

7 comments