DoubleVision

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Today was rough

I'll spare you the details.

But tonight pauley and I got to talking about my eyes and my exercise my neuro-ophthalmologist wanted me to do. I told her there's no point because as soon as my eyes focus on the item they immediately double. She asked me to show her what I meant so I did it... And she was shocked because apparently my right eye fucks off to the side while my left eye is fine. So she took a video so I can show my doctor.

#DoubleVision

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I'm tired and when I get tired, the double vision gets worse

It's weird, my eyes feel like they're straining so much and I have to refocus my eyes every few minutes. It's exhausting and really ouchy. On Monday I'm gonna call my opthalmologist office to see if I should go see the neuro-ophthalmologist instead. It could be a few months to get an appointment. I just want answers. My neurologist and my PCP both say they don't have a clue. When my PCP doesn't have answers that's when I know it's serious.

#opticnerveatrophy #opticchiasmnarrowing #DoubleVision

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I reached out to my old optometrist 2 days ago

Last night his wife who is also his business partner called cuz she was concerned and he wasn't available to talk. She said I'd get a call from someone today to discuss it. But the person who called was my old doctor (from my birth place). He was very concerned when he found out what I'm dealing with. He's concerned it may be a degenerative disease and I might eventually go blind. He suggested that I should see the neuro-ophthalmologist. He said it's good that I called him. He's my mom and sisters' optometrist. I used to work for him. He went to college with my dad. So he's a good guy to ask for help.

I'm going to call my opthalmologist office on Monday to see if they want me to see the neuro-ophthalmologist instead. I talked to the receptionist at that office about a year ago and she wanted me to have my neurologist office to fax over medical records. I did that this week.

I feel better knowing that he cares about me. I told him about how I've been focusing on mental health and my chronic back pain. He was empathetic and kind.#opthalmology #DoubleVision

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Today was not a bad day but I feel lost

I didn't have the energy to go make dinner tonight. My girlfriend made me a big pot of tortellini for dinner and I feel awful cuz I didn't make her anything. I'm really overheating and having hot flashes today. I didn't tell her about it cuz I didn't want to bother her with my problem. I did say I was warm and she turned on the fan for a few minutes and it felt really nice. I'm having trouble with my vision and it is starting to hurt more than it did a few weeks ago. I can't handle typing on my phone but I don't have a laptop. It seems I can do it with one of my eyes closed. Fun times.

#DoubleVision #menopause #Relationships

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What's going on with my eyes

This is what we know so far:

*Both Optic nerves are atrophied. Have been for over 5 years. I had some loss of peripheral vision.

*I've been having really bad double vision for over a year. My opthalmologist gave me eye drops. It didn't help.

*During my last opthalmologist appointment I was told that I am developing a cataract in my right eye.

*A year ago we (my neurologist and I) found out my optic chiasm is narrowed. My neurologist didn't know what it could be causing so he said it's for eye doctors. So I had my neurology office fax records to my opthalmologist.

So I have an appointment on January 15th with my neurologist to discuss vyepti and I have an appointment the next day with my opthalmologist. Pauley is coming with me to both. She knows how upset I am about my health problems.

#narrowedopticchiasm #DoubleVision #opticnerveatrophy

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I don't like how I feel

Today wasn't a bad day by any means. I ate ice cream, I had 2 yummy cappuccinos. I got groceries. I had a good therapy session with Pauley and we did some really good journal prompts. But my back pain robbed me of my joy. I tried to make a cappuccino, a bottle of juice, and a sandwich... And I lasted 5 minutes before standing was too much to handle. I've spent 98 percent of the day sitting on my couch with pauley. I just got my last dose of Norco for the day. It was half of a 7.5mg Norco and the last 2 half pills I took didn't help. I know I need a whole pill at least once a day and then half each after. But she wants to stretch my meds. She wants me to use my tramadol but when the pain gets to 7 or 8 it doesn't work. My lumbar is really trashed. I gotta call my surgeon and see what they say. And then there's my eyes. Fuck my life. My vision keeps going double and it hurts. And I think I've been having absence seizures. I'm exhausted and every so often I just kinda space out and stare into the distance but I am not actually looking at anything. It hurts to focus my eyes. Like I'm straining my eyes. I'm just tired of being sick.

#BackPain #FemoralAcetabularImpingement #eyestrain #DoubleVision #MentalHealth #CheckInWithMe

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My eyes are broken

I asked Meta AI if a narrowing optic chiasm can cause double vision. This is what it says:

Yes, a narrowing optic chiasm can potentially cause double vision, also known as diplopia. Here's why:

# Anatomy and Function

The optic chiasm is a critical structure in the brain where the optic nerves from both eyes cross. This crossing enables binocular vision and allows for depth perception.

# Effects of Narrowing

Narrowing of the optic chiasm can disrupt normal visual processing, leading to various symptoms, including:

1. *Double vision (diplopia)*: Images seen by each eye may not align properly, causing double vision.

2. *Visual field defects*: Loss of peripheral vision or blind spots.

3. *Blurred vision*: Distorted or blurry vision.

4. *Eye strain*: Fatigue or discomfort due to increased visual effort.

# Causes of Optic Chiasm Narrowing

Several conditions can cause optic chiasm narrowing, including:

1. *Pituitary tumors*: Benign or malignant growths pressing on the optic chiasm.

2. *Brain injuries*: Trauma or concussions affecting the optic chiasm.

3. *Infections*: Meningitis or encephalitis.

4. *Inflammatory conditions*: Multiple sclerosis, sarcoidosis or optic neuritis.

5. *Genetic disorders*: Certain inherited conditions.

# Diagnosis and Treatment

If you're experiencing double vision or other visual symptoms, consult an ophthalmologist or neurologist. Diagnosis typically involves:

1. *Imaging tests*: MRI or CT scans to visualize the optic chiasm.

2. *Visual field testing*: Assessing peripheral vision.

3. *Neurological examination*: Evaluating brain function.

Treatment depends on the underlying cause, ranging from:

1. *Surgery*: Removing tumors or correcting anatomical issues.

2. *Medications*: Managing inflammation, infections or tumors.

3. *Rehabilitation*: Vision therapy or physical therapy.

Consult a medical professional for personalized advice and diagnosis.

#opticchiasm #DoubleVision

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State of Unbelief… #FND ? #nowayihavethat !

Hi! 😃💜💜
I’m new to the group!

Hope all of you are having a good day today! 😊💟

As the title states… I did NOT believe it when I received the #FNDdiagnosis !

I’m still having trouble grasping my neuros assessment of all my conditions & symptoms!….

Since I’ve been dealing with ALL my NEURO health issues since 2013 & she just met me last year!

— Can’t stand narrow minded tunnel vision non proactive & non helpful doctors! — #timetochangeneuros
#sotiredofthiscrap

Anybody else try to “forget” all their diagnosis ON THE DAILY??!!
— because it’s just too overwhelming & creates anxiety?

Anyway…
I try most days to push myself beyond the EXTREME pain & numerous symptoms & focus on ANYTHING ELSE to take my mind off my daily struggles & I’m sure you ALL do some of the same things!

— That’s it! lol 😜😎🥰

I hope each of you find JOY in your lives DAILY!😁😘

#timetorest
#HEDS #POTS #IIH #RheumatoidArthritis #DevicsDisease #wheelchairbound4x #OpticNeuritis #DoubleVision
#triplevision
#PCOS
#temporalpallorandscotomas
#GERD
#gastreoparesisSUCKS !! #PituitaryTumor #Diabetes #HBP #Asthma #COPD
#Anxiety #Depression #NeurogenicBladder #chronicUTIS #KidneyStones #toomanypillstotake !
#toomanydiagnosis !
#FOCUSONLIVINGLIFE !

GOD BLESS AND HELP US ALL!!💜❤️💗😇

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Art Process

The theme for February's Mighty Art Room is process, so i thought I'd show something that is taken photos of at the time. It's quite old, but generally the way i most paint. From sketch to finished piece. This is one of the Fairy Godfather, which is my original character that I've written many books about and hope to publish one day when the health and pain stars align! This is a painting done digitally over a pencil sketch. I use a program called Painter which is very much like painting in real life, just less messy! 😅 I'm not very good with layers and things so yeah, but somehow it gets done.

Well off to finish chores so i can enjoy the olympics tonight! Yay! i hope everyone has as good a weekend as possible! #ChronicMigraineSyndrome #ChronicPain #ChronicIllness #Art #ArtTherapy #AnkylosingSpondylitis #SpinalStenosis #DoubleVision #cps #ComplexRegionalPainSyndrome #sciatica #nervepain #BipolarDepression #Asthma #Anxiety

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