Endo

I am really struggling with getting used to the NEW me ! The reality if chronic pain & illness & struggling with the fact I am no longer rthe person I was before. I am no longer able to make plans in advance as I really do not know which way I will be when I wake up.Between the constant pain ,the fatigue,anxiety,restlessness,feeling overwhelmed, frustrated and trying to just get through a day it's just impossible. I no longer put pressure on myself for being unable to do this or feel guilty as I have enough going on without constantly putting myself down over things I CANT control.I am struggling at times though feeling frustrated that when I do things even someday just walking around the house or garden a little more I make my pain so much worse and with having this infection now over 3 months someday walking is just unbearable!!

I am struggling but I will keep trying and trying to be kind to myself and proud of myself if all I did was make it through another day 👌😊

#MentalHealth #mentalhealthmatters #Anxiety #Depression #Selfcare #Melanoma #SkinCancer #Insomnia #longcovid #COVID19 #PTSD #Upallnight #CheckInWithMe #ChronicPain #ChronicIllness #InterstitialCystitis #Endo #Positivity #Bekind #Bekindtoyourself #Catheter

When’s the last time you gave yourself a pat on the back? You got up today, you fought through your pain, you drank some water or took your medication. You my friend deserve to give yourself some grace. You know the grace you so freely give to others. Stop depriving yourself of kindness to your own body,mind and soul. What would you say to a friend going through your troubles? Here are my ways of being better towards yourself and your outlook about yourself.
#ChronicIllness #Endo #warrior

uniquelyendo.net

March is Endometriosis Awareness Month. Living with chronic illness impacts mental health. Reach out for support

#Endo #EndometriosisAwarenessMonth #Endometriosis #ChronicIllness #MentalHealth

It’s not okay that endometriosis patients are so mistreated and ignored that I am at the point that any medical appt makes me feel extremely scared and anxious. It genuinely fills me with rage at this point. The fact that I’ve been treated like literal garbage by so many doctors for so many years—for over a decade—that seeing someone new makes me this upset is a disgrace. To be vulnerably honest, friends, I really do feel like I’ve been traumatized by this over the years, after having to deal with this many salty doctors’ snide comments, dismissals, and deflection of blame onto me as if I am not sick—instead I’ve been treated like my mind is the problem—all because of their bruised egos that they weren’t skilled enough to help me, or their ignorance due to THEIR lack of knowledge about my illness.

I have seen three doctors this year alone who have refused to even believe me. They offered me nothing more than some iteration of: “no one has that much pain from a period try ibuprofen,” even after seeing my book-length chart & my surgical diagnosis! Before I was diagnosed it was even worse—I spent almost two years (my whole MA) in pain almost every day, physically & mentally, and I had no choice but to cope as best as I could with zero assistance from any of the many, many doctors I went to see during that time. It stopped me from being as social and active in my program as I wanted to be too—and it was all because my doctors were a joke who said I was fine &/or who told me my pain wasn’t even real and that I should see a psychiatrist. They were awful. They made me feel completely hopeless. At my lowest point, I even started to question my own mind and my own bodily experience. They treated me like I was “hysterical” to the point that for a while, I actually felt like I was losing my mind.

The worst part about all of this though is that these doctors, the people who I should have been able to rely on to help me, didn’t just fail to do their jobs—they also made my illness and my pain significantly worse. If I hadn’t been dismissed, derided and put down by doctors for the last decade that it was growing in my body, then my endometriosis wouldn’t even have progressed to its current multi-organ state. Now it’s so painful I can barely function most of the time. How messed up is that?!

Our society teaches us that doctors can be trusted and they always know more than we do—endometriosis patients can confirm that is a LIE. We, the endo warriors, are the true experts when it comes to endometriosis. The majority of OBGYNs and primary care doctors know less than we do, worldwide, and that is a serious problem. #Endo #Endometriosis #endometriosisawareness #MedicalTrauma #MedicalPtsd #ChronicIllness #Misdiagnosis #access #HealthCare #Diagnosis #reproductivejustice