Hi I’m Evad5 and I joined like a week ago. I saw a lot of people doing a im new here post so here I am I have #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #ChronicHeadaches #endometreosis #Dyslexia #Anxiety #Depression #SensoryProcessingDisorder #Dysphagia
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SO sorry I haven't posted in a week. It is not because I haven't had energy but because for some reason my phone has decided not to open The Mighty app. I have tried Everything!
Alas I decided to it old-style on my computer.
I miss you guys!
Anyways here is something I have been wanting to ask you all.
My answer would be that I wish people realized when I said I have Fibro it is NOT a little bit of Fibro it is REALLY bad and a very severe case. People think they know Fibro is 'just' pain but it is the absolute worst and I have it full body everywhere and it is not a simple thing. There is no 'getting use to it' because my pain is always getting worse and always gaining new symptoms of severity. I don't have flares because my life IS a flare.
your turn!
#AmplifiedMusculoskeletalPainSyndrome #Anxiety #Arthritis #ChronicFatigueSyndrome #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #endometreosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #PosturalOrthostaticTachycardiaSyndrome #RareDisease #SuicidalThoughts
Whether you're fighting for your physical or mental health and whatever you're doing to cope, remember you're doing a good job. You're doing the best you can and you're doing it for yourself.
#physicalhealth #mentalhealth #keepfighting #ChronicPain #ChronicIllness #FunctionalNeurologicalDisorder #endometreosis
One of the hardest parts about living with a health condition or disability is compromising. Diagnoses like migraine may force us to delay or give up employment; or even move closer to (potentially toxic) family members. Perhaps we’ve had to sacrifice being in a romantic relationship or cutting “fun” things out of our budgets to make room for more medical-related expenses.
Whatever it is, I wanted to build community today around the notion of sacrifice. It can be monumentally challenging when those compromises aren’t within our control and I recognize that fully. It’s frustrating and unfair as hell!
P.S. Here’s the latest compromise I’ve had to make: I’m currently having to quarantine away from my partner since he recently traveled and I have to treat my immune system like precious cargo. It’s been a long two weeks.
#HemiplegicMigraine #Migraine #ChronicPain #ChronicIllness #Disability #RareDisease #mightywithmigraine #Fibromyalgia #CheckInWithMe #endometreosis
We have thousands of first-person health stories on The Mighty — many more than the community even realizes! So we’d love to help connect you with some articles that interest you. Consider this post a human search engine!
Comment with a topic you want to read more about. This could relate to something you’re going through or need (like how to explain the spoon theory to your support system) or interested in (how chronic pain and mental health intersect).
If we can’t find an article that’s a good fit, we’ll pass your interests along to our Mighty editors so they can add it to our content wish list!
Happy reading, Mighties. 📚
#mightywithmigraine #ChronicPain #ChronicIllness #Depression #Spoonie #Fibromyalgia #Lupus #Disability #endometreosis #Migraine #ClusterHeadache #VestibularMigraine #MentalHealth
I was diagnosed by my primary care dr, in 2014, with fibromyalgia. I was told to see a rheumatologist and I have for 6yrs now. I just went to the rheumatologist a few weeks ago because I was having new symptoms.he Let’s me explain everything. Presses on numerous areas on my body. He gets to my right arm. I have a tattoo on each side of that arm. They are from my wrist to my elbow. Then, very sarcastic, I bet these tattoos on your arm really hurt. I didn’t say a word. He had already judged me. Then after all this,,, he says: I cant help you with these symptoms. They are neurological issues. I said Fibromyalgia is a nerve disease. And I’m supposed to see a neurologist. Why the hell have I been told to see a rheumatologist for 6 years 🤷♀️🤔😑🤬 I’m already so confused. I don’t need anyone else to confuse me. Especially a dr
One last rant about the rheumatologists judgement. He was sarcastically saying: I’m here for pain. But have tattoos. Maybe try asking instead of assuming. YES my first 2 tattoos hurt. My last tattoo was in 2009. That was before fibro and bipolar. I only had 2 tattoos until I was Bipolar hit 2018. Since then I have gotten 7 tattoos. I’ve realized when I’m manic I run to get a tattoo. So, I always have tattoo ideas. So no regrets.
#Fibromyalgia #laughwithme
#digenerativediscdisease #endometreosis #
bipolar
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