Considered by many to the first ever rock star, allow me to describe some of my healthcare(less) journey, by borrowing a few words from master blues artist Robert Johnston: “I went to the crossroad, Fell down on my knees / Standin’ at the crossroads, tried to flag a ride / Didn’t nobody seem to know, everybody pass me by / Standin’ at the crossroad, rising’ sun goin’ down / I got the crossroad blues this mornin’, Lord / I am sinking’ down.”
After finally getting the results of the much anticipated private test I did, yesterday, it showed multiple issues, many of which were no surprise at all… but highlighted some issues, of which I had no awareness at all. Made worse by the fact that I do not possess the skills for an in depth understanding of the intricacies of hormone and neurotransmitter cascades, enzyme carboxylation and so on. Yet it is apparent this is where at least one major issue rests for me, and it seems from the literature I’ve read thus far, that serotonin syndrome is so little understood, just finding someone who is familiar with it, may be another mountain to summit, just to reach the starting line.
The private endocrinologist I consulted with over 3 months ago, has still not come back to me with the results of the blood tests he ordered, yet the hospital has sent me the bill for said tests. It’s clearly a dead end in terms of the support and interest he has in my case, yet my GP won’t do much of anything until I get his feedback which leaves me in the proverbial catch 22.
I’m sick, I’m always tired, and have been forced to treat myself for going on 5 months now, which the medical establishment has already weaponised against me by declaring my interest in my own health to be clear evidence that I am a hypochondriac seeking attention—to the point of manifesting test results showing conditions I could not have willed my body to produce, even if I wanted it to. And truth be told, I think if I could think my way into an illness, I probably would have focussed on something that would be easily treatable and fit neatly into their “I have hammer, therefore everything is a nail” mentality.
To my further detriment I did not opt to attend medical school armed with the prescience of mind to foretell that I would need this knowledge later, and there’s also the cold harsh truth that if I had boatloads of cash and a posh upper crust accent, doors I don’t even know exist would probably be being flung wide open for me because power respects power.
This in my opinion, is the cruel side of healthcare being both political and transactional: when you are considered wealthy, you get all manner of perks and doors opened to you—often for free. Yet when your means are limited and your need for this kind of assistance is greater; is when when this support would be most beneficial.
Tomorrow is another chance at this thing called life, but for today I’m feeling the Cross Road Blues because like Robert Jonhston; I feel like nobody seems to see me, everyone is passing me by… and the weight of it all has got me sinking down.
#WritingThroughIt #Thoughts #FunctioningDepression #Insomnia #MyCondition #ChronicFatigueSymdrome #Fibromyalgia #FibroFog #BrainFog #HealthCare