speech disorders

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    Community Voices
    Community Voices

    World Voice Day post #WVD

    <p>World Voice Day post <a class="tm-topic-link ugc-topic" title="WVD" href="/topic/wvd/" data-id="607a544206126400fa9b851b" data-name="WVD" aria-label="hashtag WVD">#WVD</a> </p>
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    Community Voices


    10 people are talking about this
    Emily Kranking

    Living With Dysarthria and Cerebral Palsy

    When I was in eighth grade, my last school musical was “Annie.” I was hoping to land the role of Grace Farrell, Daddy Warbucks’ secretary and one of Annie’s caretakers. Alas, the morning of the callback, the list was posted and as expected, I didn’t receive a callback for her. But, my friend Jenny* got a callback for her and I was excited for her. Between classes, I happened to see Jenny and came to congratulate her on the callback. Because of my dysarthria, a speech disorder that I have through my cerebral palsy, Jenny didn’t know what I was saying. “Callbuck?”“No, callback.”“Mullback?”“Callback.”“Starbucks?” At this point, I was fighting tears as I was trying so desperately to say “callback.” To make things more humiliating, a teacher was walking by and she tried to help both of us by finding out what I was saying. The teacher thankfully got “callback” and Jenny happily thanked me. That was the first time ever I felt humiliated and ashamed by my dysarthria. And it wasn’t the last. One situation led to two retail workers getting their manager for me at a shop after I simply said, “I’m looking around for fun.” Another caused me to have an actual emotional breakdown at a counselor’s office. When I was working at Disney World, I brought my dad’s death up in a conversation and the guest’s reaction? “Cool.” I sighed. I know he didn’t know what I just said. “Sir,” I said in an un-Disney, annoyed tone. “I said that my dad died.” The guest, bless his sweet heart, gasped and freaked out that he misunderstood me. Dysarthria is a daily struggle for me. Don’t get me wrong, it isn’t that terrible and my youthful voice comes in handy for acting opportunities. However, when you hear “What?” or “Can you say that again?” literally on an hourly basis, you get tired quickly. It doesn’t matter if it’s the simplest word or a whole conversation. A simple question from me gets just a nod from that person and then I have to say, “That was a question.” It’s draining. It’s exhausting. I sometimes feel like I want to cut off my tongue so I can get rid of this feeling. I snap at my mom a lot because she does not understand me. Snapping at friends is uncommon, but it has happened once or twice. If I snap at you over my dysarthria in the future, I am extremely sorry. But at the same time, let me get frustrated. It’s strangely therapeutic for me in a way. I’m a human, and a human with a challenge at that. Obviously, I won’t beat you up or cuss you out. But, walk a day in my foot braces. How? Find a way to grab your tongue and try to speak to people like that for a whole day. Get a sense of what my voice is like and how different it is to speak normally. Notice how your voice sounds and what words you can or can not say. Speak like this to everyone and notice how many “What?”s or “I don’t know, sorries.” that you’ll get. Awful, is it? Welcome to my life! *=Name changed for privacy reasons

    Community Voices

    Goes fore me to !!

    <p>Goes fore me to !!</p>
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    Community Voices
    Community Voices

    I am a Keeper of the Storm.

    My grandson is back in the psych ward Baker Acted again. I am, his biological maternal grandmother (Nanny). The court awarded me full guardianship, he's now 23 yrs old. I have been a constant figure in his life since he was 4 months old. His mother, my daughter has cerebral palsy. It's difficult enough raising a child but when your physically challenged it's extremely hard. Now let's factor in things that just weren't "right"..delayed speech... wouldn't look you in the eye...night terrors.... tactical issues..no boundaries..constant motion...hitting..self mutilated.. .and the tantrums that escalated into severe violence. He would always scream to his mom/teacher get nanny, get nanny she knows.. After years of many doctors shrinks medicines behavior analysis the diagnosis is... Rapid cycling raging bipolar.. ADHD.. Autism. spectrum.. hearing impaired..speech delayed..ambulation issues and if that isn't enough severely emotionally and mentally delayed. When he was only 10 yrs old he had been Baker Acted 13 times. I went into court yelling at the judge and finally had him removed from his mother's home. I was terrified he'd wind up hurting her or himself more not on purpose he just doesn't understand. The police actually thought we were destroying her apartment until one day it happened in school. He lived in a small group home for several years was doing well, then one day he destroyed the entire home. Where he is now he has destroyed property there also. He's also snuck out and gone to a neighbor's home and broke their windows. Now they have alarms and cameras everywhere. He'll sit in the middle of the living room with a belt around his neck saying he's hanging himself when the police see that it's immediate Baker Act... doesn't matter if he doesn't comprehend.
    Today I get a call he got out of the group home went to a neighbor's home and took a brick to the guys car! Police/ Baker Acted. The second he's non compliant he gets shot with psychotropic meds. It just seems unfair that somebody who doesn't have the mental capacity to understand he has a mental illness gets treated like this and there's no other way. This is what breaks my heart into a billion pieces each time. While I never laid a hand on him except to restrain during his rages
    He would spit on me tell me I'm a f...bitch try to bite me and f*** you I hate you I'm gonna kill you. Finally it would stop he'd start crying, then ask "whys everything a pig mess" our word for broken mess.
    When he was little I'd tell him if you don't listen I'll snatch you bald headed. That always scared him. So now I wait for the med call from the psych ward and we're back on the carousel of mental health.
    My biggest fear, since he's 23 yrs old and 6'1" what if he gets or pretends he has a weapon and...... #Bipolar1Disorder #ADHD #Autism #mentally Challenged# Emotionally Delayed #DisruptiveImpulseControlAndConductDisorders #SpeechDisorders #AuditoryProcessingDisorder #HipDysplasia # mentally delayed

    4 people are talking about this
    Community Voices

    I am the sickest I have ever been and keep having to see professionals to keep my insurance benefits but both them and I are sick of reviewing the same concepts. I have tried it all, there is nothing new to offer except retrying the old.

    I now spend over 90% of my time alone trying to cope because I am so limited by severe symptoms. Everyone in my life has to relearn pr take new roles to accommodate this change and it is frustrating.

    Today I am angry about an apathetic medical system the is inflexible and significantly underestimates the brutality of this condition!

    I am angry that my family hasn’t figured out that the medical outings in the last few days were hugely overwhelming and debilitating so much so I haven’t been able to eat in 24 hours. Part exhaustion, part nausea, part upset/frustration that has formed a pit in my stomach.

    I tried to distract myself with art and then my supplies fell on the floor. I tried to pick them up but the nausea and discomfort and likely anxiety was too high so I though if you can’t beat it join it. So I cathartically threw a few more items on the floor to go with the ones I accidentally dropped. Then I decided a shower could work if I just focused on the shower and getting dressed. I have not showered for a few days as I have been too tired to do it and clean up after myself. So I did I showered and left my mess.

    Not neat, not pretty, not my normal but Iaccomolished a shower and I am clean.

    Not sure where I going to gather the energy and the emotional strength to clean up and eat but I will. Just for one day I decided to join my body in it’s disfunction rather than to fight it!

    It’s got to get #CheckInWithMe better than this soon!

    3 people are talking about this
    Ellen Stumbo

    Speech Apps for Kids With Speech and Communication Difficulties

    If your child struggles with speech, chances are you are familiar with speech apps. When my youngest daughter, who has Down syndrome, was 3 years old, the iPad had just launched. It was gaining attention in the parenting community because of apps designed to help children like mine. Speech apps allow us to do speech therapy at home. When we began our search for tablets and speech apps, we found there were more options through Apple than Android. That was seven years ago, and Apple still seems to offer some of the best speech apps available. This might explain why there is coverage through insurance, grants or schools for iPads as opposed to other tablets. While some apps offer a free version, most speech apps come with a cost. Depending on your child’s need, the app’s price might be covered by waivers or grants. When my daughter qualified for an iPad through a state grant for kids with disabilities, they also covered the cost of a speech app. Here are nine of the top-rated speech apps for kids with disabilities. 1. Proloquo2Go Proloquo2Go is basically a Dynavox in app form. It is a customizable and personalized symbol-supported communication app. The app is designed to promote language development and grow communication skills. It provides a “voice” for those who need it. Download on iTunes for $249.99 2. AbiTalk AbiTalk helps improve comprehension, articulation, speech production, receptive and expressive speech. Its apps focus on comprehension (or “wh” questions), sentence building and articulation. AbiTalk offers five apps for iOS and Android ranging from $1.99 to $7.99. 3. Gemiini Gemiini is a video-based program, which uses discrete video modeling, a clinically proven way to increase language, reading and social skills. Gemiini has mixed reviews — some parents rave about the benefits and gains, while others say it was not worth the investment. Gemiini’s app is free to download for iOS and Android but the program costs $98 per month. 4. Articulation Station Perhaps one of the most used and recommended apps by speech therapists, Articulation Station helps kids better articulate. It is also a great app for children with speech apraxia. Articulation Station offers a free version or you can buy the full app on iTunes for $35.99. 5. Nacd Speech Apraxia One of the best speech apps for children with apraxia of speech, Nacd Speech Therapy for Apraxia offers four different apps: sounds, words, 2 syllables and endings. You can buy all four apps as a bundle on iTunes for $16.99 or the individual apps for $4.99 each. Android only offers the individual apps for $4.99. 6. ‘WH’ Question Cards Created by Super Duper Publications — a trusted company dedicated to making engaging and fun learning materials — this app helps kids correctly ask and answer who, what, when, where and why questions. You can download a free or full version of the app through Super Duper Publication’s website or download the full app on iTunes for $11.99. Android offers a limited version for $1.99. 7. Speech Tutor Speech Tutor provides animations to show tongue placement and positioning of sounds. It offers a side view and front view of each sound produced in three different speeds: slow, medium and fast. Download on iTunes for $9.99. 8. Artipix Artipix allows kids to practice their speech using flashcard and matching activities. Children can also record their own voice and keeps score with games. You can get a free version through the Artikpix website or download on iTunes for $29.99. 9. Talking Pierre the Parrot Apps that encourage children to speak help them practice their speech. In this app, Pierre imitates what children say, by saying it back. Download Talking Pierre the Parrot for free on iOS or Android. Bonus: The Mighty’s App Did you know The Mighty has an app? Download our app to read more stories like this and connect with people from the parenting community.

    Lydia Dawley

    Becoming a Speech Pathologist as an AAC Device User

    “Life is scary, overwhelming, and frustrating. But how you handle it says a lot about you.”-Lydia D. You might be asking yourself who is Lydia D.? To answer your question, Lydia Dawley is awesome and going to make a difference in this world. Just you wait… Yes, I’m Lydia. But really, I’m awesome! I’m a student at the University of Wisconsin in Whitewater — let’s go Warhawks! I’m going into Communication Sciences and Disorders to be a Speech Pathologist (SLP). I really hope to work with children with Alternative Augmentative Communication Devices (AAC). I think it’s the coolest way to talk because I’m considered “nonverbal.” Studying to be a speech pathologist and being “nonverbal” can really raise some eyebrows. Talk about ironic! I have mixed cerebral palsy, so I “can’t” walk and talk, but I can walk with help from someone, and I can talk, but only my family and close friends understand me. I don’t think of myself as disabled; I just think living with cerebral palsy is an unique way to live! That’s why I want to be a SLP. As far as I know there hasn’t been a speech pathologist who uses a communication device ever. You might be asking yourself, “Don’t you need to speak to be a speech path?” Yes, that might be true now. But I’m gonna change that up! Here’s why I believe it’s important for people with AAC devices to be speech pathologists: 1. We are secretly geniuses, but we may not realize what kind of gift we have. People who are “nonverbal” have a gift we might not think is a gift. We have a unique way of speaking. We have figured out how to talk for pretty much all of our lives: from typing on our communication devices to writing letters in the air to spell out words. We can use our gift to help kids with communication disorders figure out a way to get their voices out! 2. We can relate to the clients. People who use AAC devices know what‘s up. Trust me, I had some educators and therapists who thought I didn’t know anything. They would say I need to only use my communication device and nothing else. No… wrong! People who speak with AAC devices need to use everything around them, because when they have to depend on just one thing, they will have no way to talk if the device runs out of battery or breaks. Kids with communication disorders and AAC devices need speech pathologists like them to let them know they are heard and no matter what, they’re going to have a voice. 3. We can be so stubborn! Just ask my parents. When I was only 2 years old, I used a little blue walker and I had no communication device. Well, I had to use my little brain to let my parents know that I had something to say. So I rammed my walker into my parents’ and brother’s legs and up against the wall. Ha ha sorry Ma, Dad, and Zach. But when I become a speech pathologist, I’ll encourage my clients to be stubborn. I’m not saying they have to ram people into walls. I’m saying don’t get discouraged if someone doesn’t understand, and don’t give up on trying to make them understand. It may take 100 tries to say one word, but it’s worth it! 4. We share similar experiences. We have been there! To have no voice can be horrible; it’s frustrating when someone doesn’t understand what you’re saying. You may want to cry and scream at the top of your lungs, but you don’t want to make the person feel bad. So you suck it in. With our experiences, we often know what works and what doesn’t, but we’re also open to trying everything because it might work for us, but it might not work for them. 5. We tend to have creative minds! Through our experiences, we can come up with some unique ideas for how to have a conversation. I came up with my own language for which I don’t have to use my communication device. I had speech therapy when I was little (that’s how I fell in love with the field) and I practiced saying sounds and words. When I talk to my parents and friends, I spell out words by pronouncing letters, and I came up with a way to “say” a letter by writing it in the air. That’s another reason why I want to be a SLP; I want to show people they may need to think outside the box a lot to be able to get their point out! 6. We can give hope. Speech pathologists can diagnose communication disorders. Odd as it may sound, I’m most excited to diagnose kids. I don’t know why, but to tell parents that their child has autism or cerebral palsy sounds like I’m giving them a gift. I know it might sound scary when someone tells you that your child has a disorder. My parents felt the same way, but they raised me up as strong and independent. 7. We can show our future clients they can do anything! I want to encourage not only my future clients, but their parents to think of themselves as people who are going to do some things differently, but they can do anything! 8. We can be “mind readers.” Really, it’s a super power. In high school, I was a mentor with the school’s speech pathologist to a boy who was in high school and a girl who was in elementary school. While I was with the boy, he was trying to tell the SLP something, but she was not getting what he wanted. On the second time he said it, I smiled and asked him, “Do you want to play memory?” In the widest smile and the brightest eyes, he yelled, “Yes!” That’s when I knew I wanted to be a speech pathologist — I need to help kids be understood. It feels beyond awesome to get that bright-eyed, gigantic smile from your client! 9. We’ve had to learn patience. I don’t know how many times I had to wait for my parents to do something for me. Sorry Ma and Dad, but you are kind of slow! When speaking with a communication device, we have a delay with composing our response. And yes, there are speech therapists who don’t wait for their client to write on their AAC device. I don’t understand why! I have been there when someone doesn’t wait for me to talk and I don’t want other people to feel that way. So when I become a SLP and see clients, I will be patient with them because I know they have something in that big wonderful brain waiting to get out! 10. We’ll love your kids as if they were our own. This is the reason I’m most excited about being a speech pathologist. I love kids! They are curious and fun. I want the best for my future clients, and I can’t wait to help them find their voice and see what they are going to do in this world! I know people who use AAC devices may meet some people who will say they can’t be speech pathologists, because I have. But just smile and say thank you for your input. Don’t let those people get your goat! Go and get it. They don’t know you — you know yourself. You know what you can and can’t do. Do what you want, because I believe in you! We want to hear your story. Become a Mighty contributor here. Thinkstock photo by Wavebreak Media.