central auditory processing disorder

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    Community Voices

    World Voice Day post #WVD

    <p>World Voice Day post <a class="tm-topic-link ugc-topic" title="WVD" href="/topic/wvd/" data-id="607a544206126400fa9b851b" data-name="WVD" aria-label="hashtag WVD">#WVD</a> </p>
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    Community Voices
    Community Voices

    Language proccessing is so exhausting!

    #CommunicationDisorders #Disability #InvisibleDisability #LanguageDisorder #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder just needed to vent at how complicated and exhausting, and diificult language processing is! After a handfull of years of low stress and minimal demands on me from the world, where I got lulled into believing I could rely on my brain and body to mostly cooperate whenever I asked them to do stuff, (for the first time in my life) life has started to remind me otherwise! Today it was watching part of an online comiccon-type thing. Yes I figured out how to turn on the captioning, and even fix the size when it suddenly shrank to infestesimal. But OMG! People, when you are authors or publishers giving panel talks, a little pre-preparation and language organization are called for! Even skipping around to only the important parts, and muting half of what I did listen to, wore me put so much that I needed to lay down in the dark and turn my music on for an hour before I could do anything else today!!! The fact that almost everyone had a British or Australian accent didn't help either, but that's more of a me problem. Accents are really hard for me to decipher due to my auditory processing difficulties.

    Community Voices

    My experience of ableism today. #Ableism

    The more I ponder today's interaction with the phone company today, the more I realize they don't train their service people in how to deal with disability. For the second time in a year I heard "sorry, we don't deal with this very often", meaning any form of communicative disability, I think. In these instances, both were hearing related, #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder #SensoryIssues #SensoryProcessingDisorder , but today, neither the guy I "talked" to (using #AACDevice ) nor the guy he phoned had a clue what was going on, what their job was, or where to look on the computer to figure out what to do! And, now that I think about it, past the first time, the guy I dealt with didn't have the sense to call, the woman who did know what to do, over to help him again, even when she was nearby!!! Maybe he's trained not to, but seriously??!! It was an experience of utter frustration for me! Never mind sensory overload, never mind near meltdown!

    I am recovering better than I would've even 8 years ago, and did when I got back in mom's car, but still... this should never have happened! If I'd have known they were going to be so difficult, I would've brought my tablet as it is louder, and has a bigger 'keyboard', but I had no idea they were so incompetent!!!

    #Autism #CommunicationDisorders #Disability #DisabilityRights

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    Community Voices

    Central Nervous system

    Today I has a test that showed that my centers nervous system was declining in function. The doctor that tested me for this does not know what to do with this information because she has never seen it before. I have been undiagnosed for over two years. My main symptoms include nausea, fatigue, malaise, back and side pain, light headed. The abnormal test results I have gotten is a drop in central nervous system, no longer immune to things I have been vaccinated for, low iron, celiac, and possibly Lyme. I would love any options on possible reasons for this. I hope you have a good health day soon! #centralnervoussystem #ChronicIllness #ChronicPain #Undiagnosed #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder

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    Community Voices

    Adults dx'ed with SPD (sensory processing disorder)

    I am 26 (and diagnosed with many psychiatric conditions in the last 6 years)-- seeing an occupational therapist, as I've previously posted. I seem to have issues with sensory processing and executive function, as well as fine motor skills and body awareness.

    I am both hyper-sensitive and sensory-seeking... I live in extremes (also have bipolar disorder). Additionally, I struggle with sensory-motor skills.

    Many of these things I trace back to childhood, and some things have improved since I was a kid... while others, I am working on in occupational therapy now.

    It's definitely a unique experience-- I wish I got help for this as a child, but better late than never!

    I was born 10 weeks premature with my twin sister (at less than 3 lbs each); I sometimes wonder if that contributes to this. I am very interested in learning more/researching, as you may be able to tell! I love to read about this stuff.

    Not sure what the OT has diagnosed me with (if anything) but sensory processing issues are definitely a thing for me.

    Any other adults out there diagnosed with SPD either as an adult or earlier in life? And with other comorbid conditions (in my case: auditory processing disorder, ADD, bipolar II, borderline personality traits, OCD, PTSD, anxiety, history of anorexia, etc)
    #BipolarDisorder #CentralAuditoryProcessingDisorder #ADHD #AnorexiaNervosa #ObsessiveCompulsiveDisorder #SensoryProcessingDisorder #LearningDisabilities #BorderlinePersonalityDisorder

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    Community Voices

    Help I feel lonely and need help

    I have a tri-diagnosis Of #madelungs defomity , #savant syndrome #SavantSyndrome , #SavantSyndrome ,#EhlersDanlosSyndrome , #Autism #Autism #Autism #Autism , #BipolarDisorder #BipolarDisorder #order #BipolarDisorder #dep , #BipolarDisorderBorderlinePersonalityDisorderADHD , #bipolardisorderborderlinepresonalitydisorderADHD , #BipolarDisorderDepression #AspergersSyndrome , #AspergersSyndromeAwareness , #Aspergers , #AspergersSyndromeAwareness , #AspergersAreUs , #AspergersSyndrome , ,#Depression , #Depression #MentalHealthAwareness ,#DepressiveDisorders , ,#Deppresed , #Anxiety #PTSD , #PTSD -old ,#Complex Post Traumatic Stress , #PTSD ,#CPTSD , #CPTSDinrelationships ,#Ld in reading comprehension , #LearningDisabilities , #Dyslexia ,#SensoryProcessingDisorder , #SensoryProcessingIssues , #SensoryModulationDisorder , #SensoryProcessignDisorder , #CentralAuditoryProcessingDisorder , #SensoryDisorder , #AuditoryProcessingDisorder ,#SensoryProcessingIssues , #SensoryProcessingDisorderAwarenessMonth , #SensoryProcessingDisorderAwarenessMonth , #SensoryProcessingDisorder , #Sensory processing disorder ,#Adhdandanxietyinarelationship #adhdinchildcaresettings, #adhdinmen , #Adhdinwomen , #adhdinearlychildhood #adhdwomen #CombinedPresentationADHD #UndiagnosedADHD #ADHDInGirls #focus #ADHD #Autism ##ADHD #Rheuma #Y  #ADHD #ADHD #ADHD #ADHD #AttentiondeficitDisorder #AttentionDeficitHyperactivityDisorder #AttentionDeficitHyperactivityDisorder #AttentionDeficitHyperactivityDisorder #AttentiondeficithyperactivityDisorder #AttentiondeficithyperactivityDisorder #attention deficit hyperactivity disorder #Selfharm , #OtherPersonalityDisorder #ObsessiveCompulsiveDisorder ,#BorderlinePersonalityDisorder #BorderlinePersonalityDisorder #BorderlinePersonalityDisorder #Borderline Personality disorder #Madelungsdeformity #Madelung #madelungs #madelungs deformity as well as many other conditions that causes physical and emotional pain I do #DBT (#DialecticalBehaviorTherapy ) an it helps a little but my twin sister doesn’t have to go through what I have to go through and she got to skip a grade and I didn’t even though my IQ is 205 and hers is 148 I live in Saint Louis Missouri and went to Stanford all the way in California and now is still in California working for Facebook and I never get to see my own twin sister I feel like she is the very successful twin who skipped a grade went to Stanford graduated and now works for Facebook and I’m the wimpy twin who is unsuccessful who has to live in constant chronic pain has to live in an ISL (individualized supported living) like a group home I don’t have a drivers license I Don't have a job and never have and my parents have to have guardianship of me also my mom has 4 kids two sets of twins and our younger brothers have had equal opportunities how do I deal with all of this #Multiplesetsofmultiples #Saintlouismissouri #STL #Individualizedsupportedliving #Individualizedsupportedliving #ISL #Supportedliving #individualized supported living

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    What I Want People to Know About Central Auditory Processing Disorder

    A kid stands there as you tell them to fold their laundry. This kid doesn’t respond. You may think he’s deaf, but just a few minutes later he says “OK.” He starts to fold their laundry, and you feel puzzled as to why it took this kid so long. When I was younger, my mom had someone teach me basic American Sign Language. I wouldn’t look at my mom and would never respond even up to the age of 3 and 4. People would suggest to her I was being a disobedient child who was ignoring her. After I had a hearing test, my mom was told that I had keen hearing like a dog so she knew I had an undiagnosed learning disability. She was a special education teacher so she had me tested. I was diagnosed with central auditory processing disorder ( CAPD). I have seen some books about it, but I don’t think there’s enough information out there about it. So let me tell you a few things to help educate you. 1. My brain is wired differently. It might take a few more seconds later for me to comprehend what you just said to me. I might not actually ever hear you. The words might be jumbled all over the place and I might hear something completely different. I might hear “cat” when you say “hat.” I might say, “What?” way too often. Sometimes after my “Whats?” I will respond because I finally heard what you said. My brain is wired differently and that’s OK. I been told since I was younger that some of the wires make it to my brain from my ear and sometimes they don’t. 2. School is difficult. I can comprehend visual teachings right away and memorize them for life. But when a teacher provides only verbal instruction, it’s hard to understand the lesson. That’s why I need a note-taker or notes from the teacher. I may need to re-read the textbook to understand what heard in class. This happens both in elementary school, high school and college, too. At 26 years old, I still need accommodations of a note-taker in courses in order to learn during lectures. School is only difficult because most of the time professors only teach verbally. We need to help the visual learners, too! 3. It’s a learning disorder for life. There is a lot of information online for children who have or might have CAPD. Please understand it happens in adulthood, too. A lot of people mistake it for attention deficit disorder (ADD), but it’s really a disorder in understanding speech. I can understand one-on one-conversations better than group conversations. Every word from each person starts to jumble together and everyone’s voice is a background conversation. Bars, clubs and a group of more than three is difficult. I may start to stare into oblivion because my brain cannot separate words from sounds. 4. I’m not ignoring you. I may ask, “What?” too much or I will move on from a sentence or a question because I can’t figure out what is being said. I’m not ignoring you. I just don’t want you to get mad at me from asking, “What?” too many times. I ask my family and friends to write down what they need me to do because if you only verbally tell me what you need me to do, I won’t be able to follow or remember. I need to see something or have it written in front of me. Here’s some advice on how you help a person with CAPD at home, college and in life: Keep the background noise to a minimum. Arrange note-takers for classes. Write things down for someone. Make sure the speaker is looking at the person with CAPD. Make sure the person with CAPD is looking at the speaker. And here’s some advice for people with CAPD. Learn how to read lips. Know it’s OK to ask someone to repeat a question. There are more people in the world with central auditory processing disorder than you realize. Maybe you know someone, have a kid or you have it yourself. Maybe you just met someone or would just like to know more information. I hope this helps. Lead photo source: Thinkstock Images