central auditory processing disorder

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World Voice Day post #WVD

Well, before World Voice Day ends, I guess I should follow through on my impulse this morning to post something about it, spawned by a suggestion from the National Spasmodic Dysphonia Association. I guess I should start with I don't actually have a diagnosis for my vocal spasms and the related breathing, and sometimes swallowing issues, #Undiagnosed but SD was one of the working assumptions by several people in my life (medical professional and otherwise) for a long time. I've been questioning if we got it right recently, but am not sure I'll ever really know, given the lack of specialists arouhd here, and several other factors. Or, for that matter, how much good it would do me, other than just knowing, given the lack of research and knowledge that exists on some of the other possibilities.
#Dystonia #VocalCordDysfunction

Anyways, combined with some of the #CPTSD #Trauma #PTSD issues, and the #Autism and #AdultDiagnosis and #SensoryProcessingDisorder #SensoryIntegration issues, I've been dealing with voice issues, and difficulties with #speech and #SpeechDisorders all my life. It was only by giving up on speech as my main method of communication that I was able to learn that there was a purpose for speech, and that it sometimes did have its' uses. #CommunicationDisorders after many years of using AAC for any communication situation I wasn't comfortable in, I am slowly coming to see that not only is speech not the enemy, nor is communication as a whole, but that despite my #CentralAuditoryProcessingDisorder , sometimes I do also prefer to hear certain people's voices, and communicate with them in real time, and through this very difficult medium (for me) with them.

Having been allowed to take control of how I communicate in communicative situations has made a world of difference for me, and changed my whole perspective on socialization on general. Especially as diversity is becoming more accepted in society (mostly. Don't get me started on the backsliding I see happening during COVID!) so that there is less animosity and more patience exhibited by society when they see me using AAC.


Auditory Processing Disorder

Has anyone had any luck with hearing aids, ALDs, or literally anything else helping them hear and understand people when they're talking?
I just received the Nuheara IQbuds² Max that I ordered. They're supposed to separate speech from background noise but no luck, so far. #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder #APD #Hearing #HearingImpairment #HearingAids #HardOfHearing

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Language proccessing is so exhausting!

#CommunicationDisorders #Disability #InvisibleDisability #LanguageDisorder #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder just needed to vent at how complicated and exhausting, and diificult language processing is! After a handfull of years of low stress and minimal demands on me from the world, where I got lulled into believing I could rely on my brain and body to mostly cooperate whenever I asked them to do stuff, (for the first time in my life) life has started to remind me otherwise! Today it was watching part of an online comiccon-type thing. Yes I figured out how to turn on the captioning, and even fix the size when it suddenly shrank to infestesimal. But OMG! People, when you are authors or publishers giving panel talks, a little pre-preparation and language organization are called for! Even skipping around to only the important parts, and muting half of what I did listen to, wore me put so much that I needed to lay down in the dark and turn my music on for an hour before I could do anything else today!!! The fact that almost everyone had a British or Australian accent didn't help either, but that's more of a me problem. Accents are really hard for me to decipher due to my auditory processing difficulties.


My experience of ableism today. #Ableism

The more I ponder today's interaction with the phone company today, the more I realize they don't train their service people in how to deal with disability. For the second time in a year I heard "sorry, we don't deal with this very often", meaning any form of communicative disability, I think. In these instances, both were hearing related, #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder #SensoryIssues #SensoryProcessingDisorder , but today, neither the guy I "talked" to (using #AACDevice ) nor the guy he phoned had a clue what was going on, what their job was, or where to look on the computer to figure out what to do! And, now that I think about it, past the first time, the guy I dealt with didn't have the sense to call, the woman who did know what to do, over to help him again, even when she was nearby!!! Maybe he's trained not to, but seriously??!! It was an experience of utter frustration for me! Never mind sensory overload, never mind near meltdown!

I am recovering better than I would've even 8 years ago, and did when I got back in mom's car, but still... this should never have happened! If I'd have known they were going to be so difficult, I would've brought my tablet as it is louder, and has a bigger 'keyboard', but I had no idea they were so incompetent!!!

#Autism #CommunicationDisorders #Disability #DisabilityRights


Central Nervous system

Today I has a test that showed that my centers nervous system was declining in function. The doctor that tested me for this does not know what to do with this information because she has never seen it before. I have been undiagnosed for over two years. My main symptoms include nausea, fatigue, malaise, back and side pain, light headed. The abnormal test results I have gotten is a drop in central nervous system, no longer immune to things I have been vaccinated for, low iron, celiac, and possibly Lyme. I would love any options on possible reasons for this. I hope you have a good health day soon! #centralnervoussystem #ChronicIllness #ChronicPain #Undiagnosed #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder


Adults dx'ed with SPD (sensory processing disorder)

I am 26 (and diagnosed with many psychiatric conditions in the last 6 years)-- seeing an occupational therapist, as I've previously posted. I seem to have issues with sensory processing and executive function, as well as fine motor skills and body awareness.

I am both hyper-sensitive and sensory-seeking... I live in extremes (also have bipolar disorder). Additionally, I struggle with sensory-motor skills.

Many of these things I trace back to childhood, and some things have improved since I was a kid... while others, I am working on in occupational therapy now.

It's definitely a unique experience-- I wish I got help for this as a child, but better late than never!

I was born 10 weeks premature with my twin sister (at less than 3 lbs each); I sometimes wonder if that contributes to this. I am very interested in learning more/researching, as you may be able to tell! I love to read about this stuff.

Not sure what the OT has diagnosed me with (if anything) but sensory processing issues are definitely a thing for me.

Any other adults out there diagnosed with SPD either as an adult or earlier in life? And with other comorbid conditions (in my case: auditory processing disorder, ADD, bipolar II, borderline personality traits, OCD, PTSD, anxiety, history of anorexia, etc)
#BipolarDisorder #CentralAuditoryProcessingDisorder #ADHD #AnorexiaNervosa #ObsessiveCompulsiveDisorder #SensoryProcessingDisorder #LearningDisabilities #BorderlinePersonalityDisorder


Help I feel lonely and need help

I have a tri-diagnosis Of #madelungs defomity , #savant syndrome #SavantSyndrome , #SavantSyndrome ,#EhlersDanlosSyndrome , #Autism #Autism #Autism #Autism , #BipolarDisorder #BipolarDisorder #order #BipolarDisorder #dep , #BipolarDisorderBorderlinePersonalityDisorderADHD , #bipolardisorderborderlinepresonalitydisorderADHD , #BipolarDisorderDepression #AspergersSyndrome , #AspergersSyndromeAwareness , #Aspergers , #AspergersSyndromeAwareness , #AspergersAreUs , #AspergersSyndrome , ,#Depression , #Depression #MentalHealthAwareness ,#DepressiveDisorders , ,#Deppresed , #Anxiety #PTSD , #PTSD -old ,#Complex Post Traumatic Stress , #PTSD ,#CPTSD , #CPTSDinrelationships ,#Ld in reading comprehension , #LearningDisabilities , #Dyslexia ,#SensoryProcessingDisorder , #SensoryProcessingIssues , #SensoryModulationDisorder , #SensoryProcessignDisorder , #CentralAuditoryProcessingDisorder , #SensoryDisorder , #AuditoryProcessingDisorder ,#SensoryProcessingIssues , #SensoryProcessingDisorderAwarenessMonth , #SensoryProcessingDisorderAwarenessMonth , #SensoryProcessingDisorder , #Sensory processing disorder ,#Adhdandanxietyinarelationship #adhdinchildcaresettings, #adhdinmen , #Adhdinwomen , #adhdinearlychildhood #adhdwomen #CombinedPresentationADHD #UndiagnosedADHD #ADHDInGirls #focus #ADHD #Autism ##ADHD #Rheuma #Y  #ADHD #ADHD #ADHD #ADHD #AttentiondeficitDisorder #AttentionDeficitHyperactivityDisorder #AttentionDeficitHyperactivityDisorder #AttentionDeficitHyperactivityDisorder #AttentiondeficithyperactivityDisorder #AttentiondeficithyperactivityDisorder #attention deficit hyperactivity disorder #Selfharm , #OtherPersonalityDisorder #ObsessiveCompulsiveDisorder ,#BorderlinePersonalityDisorder #BorderlinePersonalityDisorder #BorderlinePersonalityDisorder #Borderline Personality disorder #Madelungsdeformity #Madelung #madelungs #madelungs deformity as well as many other conditions that causes physical and emotional pain I do #DBT (#DialecticalBehaviorTherapy ) an it helps a little but my twin sister doesn’t have to go through what I have to go through and she got to skip a grade and I didn’t even though my IQ is 205 and hers is 148 I live in Saint Louis Missouri and went to Stanford all the way in California and now is still in California working for Facebook and I never get to see my own twin sister I feel like she is the very successful twin who skipped a grade went to Stanford graduated and now works for Facebook and I’m the wimpy twin who is unsuccessful who has to live in constant chronic pain has to live in an ISL (individualized supported living) like a group home I don’t have a drivers license I Don't have a job and never have and my parents have to have guardianship of me also my mom has 4 kids two sets of twins and our younger brothers have had equal opportunities how do I deal with all of this #Multiplesetsofmultiples #Saintlouismissouri #STL #Individualizedsupportedliving #Individualizedsupportedliving #ISL #Supportedliving #individualized supported living