Emgality

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    OK I THINK EMGALITY IS WORKING

    I’m about to hit 2 months of being on #Emgality injectables and I think with a combination of a few other preventatives it is working! Ive gone down from 21+ headache days to around 8ish a month!! If you are suffering from chronic migraine this might be something to look into, like I said I’m only on month 2, trying ro remain cautiously optimistic! Would love to connect with other folks who are trying/have tried self injections.

    Post

    just started #Emgality self injections treatment

    Anyone else trying this? I’ve been experiencing really bad cramps after getting the first two in my stomach. Looking for community with others who are on or trying Emgality!! #chronicmigraine

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    #Emgality #ChronicMigraines #ChronicHeadaches #preventionmeds #migraineprophylactics #SideEffects #Pain #nausea

    My migraines have flared up ridiculously. I literally can't do anything but lay in pain with an ice pack trying not to puke. Has anyone ever tried Emgality for prevention of migraines? If so how was ur experience?My Dr just prescribed it but I've read nothing but horror stories of side effects online. Ican't get into the neurologist til Nov. so my primary is trying his best. I do have imitrex which helps but is limited in how many times a month it can be used. I've already maxed my limit. Anyway just wondering about Emgality or any other good prophylactic. I can't take topirimate and I'm already on amitriptyline and propanolol and magnesium (clearly not working well enough. )Any info will help. Thank you so much. 💓

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    bad days

    In the past few months, since starting #Emgality , I've seen such a huge improvement. But now that I have started actually having good days again, I feel such guilt when I have bad days, especially a few in a row. I am so depressed, so exhausted from lying on the couch, so bored. Now that I've gone back to seeing what it's like to be able to do things some of the times, it seems to hurt even more when I can't.

    #ChronicIllness #ChronicMigraines #Depression #Vent

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    Happy 2 Year #Migraine to me!

    Happy 2 Year Migraine to me! It's not deadly, just debilitating & soul sucking!
    I have amazing Doctors taking care of me. In fact I would be at the #Mayo in Scottsdale if #COVID19 hadn't happened.
    So how do I get through the daily? Some days I was able to get up & exercise immediately. I found if I walked right away, the endorphins would give me a 4 hour window of "health". I was even looking into going back to work in some capacity.
    But most days I'm a vampire. I hide from the light, live in near silence & try not to move.
    I have lost count of how many Occipital Nerve & Sphenopalantine Ganglion Nerve Blocks I've had. At least #botox is included.
    I am thankful to not be in the group of #Migraineurs that have had an episode lasting 20 years. My jaw fell open when I was told that they survive on 900 mg of morphine/day. Most days I would kill for 10mg of #morphine or even 1 #tylenol3. I can't get either bc of the #OpioidCrisis . Maybe it's a blessing, but most days it's a curse.
    I've been able to do some shows while heavily medicated. You just don't see what a mess I am afterwards. That my Brother has to help me at the airport bc I can't check myself in.
    I wear sunglasses all the time, not to be cool, but bc that's how I deal.
    So what keeps me going? I have had so many health struggles, both physically & mentally. I want you to know that our will to survive is WAY stronger than our will to die. & I've wanted to die! I literally have the #Suicide headache!
    So, I've just taken my second dose of #Emgality . Fingers crossed it works! But even if it doesn't, I want you to know it's gonna be OK! I have a Husband who loves me, a roof over my head, no food insecurity, & clean water to drink. We also have 8 Nieces & Nephews growing up fast & we need to be a positive example for the kids.
    I know most of us grew up thinking it was shameful to talk publicly about personal problems. I am so happy to be in an era where feelings are to be expressed & not suppressed.
    I am thankful that there are people who will love you as is even if getting dressed & leaving the house isn't an option most days.
    So I leave you with this....Bad times don't last!💋 #ChronicIllness #Spoonie #youdontlooksick #InvisibleIllness

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    Migraine Never Turns Off

    #fomo As I sit in the shade on the grass alone watching my #Family and relatives bask in the sun on the lake, not wanting to tell them I am in pain and ruin the fun a thought occurred to me. —
    I have struggled with #chronicmigrane for a few years now. I’m on #Emgality which controls the full on attacks. However, I still constantly have the ‘minor’ symptoms. If I wear a hat or a headband that’s a little tight or hold my neck the wrong way I will have a dull droning prodome feeling headache all day. If I wear sunglasses that are the wrong prescription, or not prescription, or don’t fit my head, or are over my glasses I am in pain. It’s not excruciating, maybe a 3/10 on the scale, but it is never ending. I am an Emgality success story - please don’t misunderstand me, Emgality got me my life back after nearly a year of trying everything else. But my neurologist doesn’t see a problem because I don’t have 20 ‘migraine days’ a month anymore. But everyday I go outside or get dehydrated or get too tense is a headache day. Nat as bad, but just as persistent. I wish I knew how to get the residual symptoms to go away, but since we treated the migraines, and tested for anything else, my doctor has apparently done all she can.

    Question

    Do #KetamineTreatment work for #ChronicMigraines and #NewDailyPersistentHeadache

    I suffer everyday from #Migraine they vary on a pain scale of 7/8 sometimes worse. I’m doing everything under the sun, Botox, preventatives, vitamins, #Emgality , ER trips, injectable Toradol.
    I can’t take triptans. I’ve suffered for so long and they just keep getting worse. I fear what the future looks like and I’m only 41. I’ve heard so many things about #KetamineTreatment and am wondering about it and how neurologists feel about it? any helpful info would be appreciated, I’m out of options and have no life. thank you
    #Migraines #ChronicPain #ChronicMigraines

    Question

    Had anyone tried Emgality for headaches? It’s an injectable I started Saturday, and today i’m feeling hypermobility, swelling and pain in brand new areas!🤔 #HypermobileTypeEDS #JointHypermobilitySyndrome #Emgality


    #EhlersDanlosSyndrome

    Post

    Migraine Meds Change #Migraine #Emgality #Medication #Topamax

    I just started month 2 on Emgality for migraines. I am supposed to wait until April to wean off Topamax, but I’m asking my doctor if I can stop taking it Monday. I think it’s making me sleepy and fuzzy like I can’t get my brain to turn on all the time. It helps with headaches, but I can’t keep sleeping all the time. This med is taking my life away. I’d rather be in pain and present than half awake and not myself. Has anyone had similar experiences on Topamax/topirimate?