Transplant

Hi, my name is FierceArt55. I'm here because I have medical PTSD from treatment for several serious cancers. I had a bone marrow transplant in 1986 for Hodgkin Lymphoma and have recently been treated for breast cancer. I have seen the best and worst of caregivers and healthcare providers, and am looking for support for trauma and cancer survivors.

#MightyTogether #Anxiety #Depression #PTSD #Cancer

Hi, my name is CabbageTrader.42 yr old daughter needing liver transplant? I am not ok with medical industrial complex handling of her.

Hi, my name is Bluebird888. I'm here because I need another new heart. I’ve had a transplant since I was 17 months old, but never felt different until recently. It’s all quite overwhelming to process and accept. Looking for people/a community that wants to talk about living a “normal” yet not-so-normal life and how to balance it all.

#MightyTogether

Hi, my name is AndrewMcgarrigle1. I'm here because I'm really struggling with emotional personality disorder my symptoms have flared up over this holiday period it was my birthday in December I feel so alone I had a liver transplant 2 years ago won't go into it but this time of the year is always the hardest I have no one to reach out to either.

#MightyTogether #MentalHealth

This is actually Waterlily but no matter what email I sign on with, I can't get to my personal account moniker.

Hypogammaglobulinemia describes low levels of immunoglobulins in your body. Immunoglobulins are antibodies that fight germs like viruses and bacteria that can make you sick. Having low levels may increase your risk of infections and other diseases. Antibiotics, immunoglobulin replacement therapy and stem cell transplant are potential treatments. I get Chemical Asceptic Meningitis whenever I get an IVIG Infusion. I have very low IgG1 and IgA's in my blood. That in turn creates almost untreatable Pneumonia, Bronchiectasis, cancer, and organ failures. There are only two immunologists in Minnesota. Fairview University of Minnesota and Plymouth Minnesota. I got IVIG infusions for years without issue and then one day I started getting Chemical Asceptic Meningitis within a day or two of IVIG administration. After not taking any for 5-6 years, I tried it again. The first infusion went well except for a little headache. The second required emergency hospitalization because it causes the lining on my brain to swell and then I go downhill fast. This information doesn't always make it to the doctor's attending me from the emergency room. I have to wait to talk to the doctors directly and at that point I can barely speak. I can only go to one hospital for that reaction, and there's only a couple doctor's there that know how to treat it. It starts with a lumbar puncture to test the spinal fluid. I think that they test for high white blood cells and other information. So far I've healed with their assistance. One of these times I won't be as lucky. I am off any type of IVIG Infusions now, but I know I will need to get IVIG Infusions again when I get too many infections and, organ failures or cancer. I've also had a hard life from childhood on up. Almost my entire family struggles with mental health issues. My mom had lupus as I do. A Rheumatologist told me it was inherited. I have a daughter with some early symptoms that I've been keeping my eye on. I will help guide whenever I feel I have knowledge that might help. Bless all your hearts through your struggles. I'm currently in the hospital healing from a bilateral L4-5 decompression lumber spine surgery. I have a wonderful care team and my daughter is here when she is able. She's carrying a 4.0 in college and I'm so proud of her. She has 3 types of epilepsy. Finally she found an Epilepsy doctor who knew exactly what medicines she needed to control them. She occasionally has break through mild seizures, but shes finally able to function. She had a stroke last month at 51 years of age and was temporarily paralyzed. Our lives are a journey. That is how we look at ours. It helps immensely. This is an informational post in case someone can use this information. I'm here while recovering from surgery. Feel free to reach out any time. It may take me a little while to reply, but I will do my best. Bless you all on your life journeys. #Hypogammaglobulinemia #Epilepsy #Stroke #Immunedisorders

Started right after high lost a university had to go to a Jc got two degrees now. During this had Hodgkins twice and a bone marrow transplant. Got into 3 different relationships. 1st one is my rapist the 2nd treated me like I wasn’t there barely answering calls always canceling most of the time without telling me then blowing me off. The 3rd was amazing never been happier then he leaves me saying his life is too complicated and then ghosts just like that. I’m devestated and havent been the same. Tired of being on the endless rollercoaster never knowing if my life will take off. Still stuck in a minimum wage job at 33 unable to get something else have tried. Still trying to see the positive but it’s hard to pretend it is all great. When life keeps slapping me back in the face laughing at saying you thought you were doing better here is another problem.

Hi, my name is Rod.

It is great to have come across this group! If I may, please allow me to introduce myself.

I am fortunate to be the President and Founder of CF Vests Worldwide, in addition to being a CF patient who underwent a bilateral lung and liver transplant in August 2017. CF Vests Worldwide is a small non-profit that has donated over 380 cystic fibrosis vests to patients in more than 60 countries.

As we mark our 5th anniversary this year, we’re expanding to help U.S. CF patients too.

Our mission is to make these essential airway clearance vests accessible everywhere, including Cystic Fibrosis patients in the United States who are underinsured or who have no insurance. Our vest donations are primarily geared toward those who can’t afford them, as is the case with most CF patients globally.

Thanks for reading, folks, and take good care!

Rod
#MightyTogether

I did not know what my title should be since I am having some major issues right now because of all my autoimmune diseases, mental health issues, and a host of other medical problems. I am having a major problem focusing on one task and getting it done. While I am trying to accomplish that task another task surfaces in my brain and I tell myself I should do that one because it will make the first task easier to finish. Before I can get started on any task a whole host of other tasks I need to do. That's when I become so overwhelmed I don't do anything. That is when the anxiety and depression over take me and I just shut my brain down so I can cope. I would like to see a psychiatrist but have been unable to find one who accepts insurance and we cannot afford to cash pay. I also suffer with #Fibromyalgia , #Bipolar2 , #PTSD , #ChronicPain , #MixedConnectiveTissueDiseaseMCTD , #GranulomatosisWithPolyangiitis , Buerger's Disease, #Kidney Transplant, #type 2 Diabetes, #Brain Fog

Hi, my name is Nikki. I'm here because I've got a kidney transplant and live with heart failure and osteopenia. I'm waiting on assessment for autism and ADHD.

#MightyTogether