Hi all, I am starting the egg freezing process and worried that I am going to have increased inflammation due to hormone treatments. What is your experience/understanding? Any wisdom and words of advice would be greatly appreciated.
My #sjogrens diagnosis took decades. Far too long! How long did your #AutoimmuneDisease diagnosis take?
Living with dysautonomia and POTS comes with multiple symptoms and flare-ups that can disrupt your daily routine. So I’m curious: What lifestyle changes have made the greatest impact?
Also, check out this new Mighty article that describes a correlation between trauma, chronic stress, and autoimmune diseases. I found it insightful and informative in helping me navigate autoimmunity and lifestyle changes in my family:
themighty.com/2022/02/trauma-chronic-stress-autoimmune-disease
#ChronicIllness #Spoonie #COVID19 #CoronaVirus #AutoimmuneDiseases #autoimmune #ChronicPain #ChronicFatigueSyndrome #Migraine #Fibromyalgia
Help. I'm stuck in my head. I feel useless, worthless and not wanted. I have no one I feel comfortable opening up to so I just bottle everything up and every now and then it explodes. My boyfriend says he cares but never shows it. My family acts like depression doesn't exist. I have no close friends to talk to. I can't stop crying and I feel like i have no use in this world. I have 2 auto immune diseases and more health issues. I don't let my diseases or health run my life, I keep them hidden as much as I can but somedays I just want someone to ask how I am or how am I doing? I want my boyfriend to stop talking about his baby mommas and playing video games and ask me how I'm doing or if I want to do something. I just want to feel like I matter too. I am tired of being the one making people happy. No matter how many times I think of leaving this world I can never do it because that would be selfish and I know that my life has a purpose. I wish that purpose would show itself though because after 31 yrs of life I am beginning to lose hope. A person can only take so much before they break and I'm not sure I can take much more. #Depression #AutoimmuneDiseases #Loneliness #feelinguseless
June 14th, 2021 was the day my life changed. I know people have definitely felt pain a lot longer than I currently have, so the month in a half of pain seems so little compared to others.
This was the day the burning started and has just continued. Some days are better than others. My in laws were in town and we went out and about. On our way home, I noticed my cheeks felt like they were burning but nothing was to show for it. Then my head started. I went to the ER to get checked for strep, covid, flu, etc. all negative. I’m in the process of trying to figure out what’s going on. But with my constant research, I’ve come across a thing called #SmallFiberNeuropathy . I’m pretty sure that’s what’s going on.
I will feel burning, tingling, or even oddly extreme coldness in my face, arms, my shins and tops of my hands. It sucks and it hurts. I don’t know for sure what’s going on but it has definitely taken a toll on me. Especially because I don’t know what to expect for the future or what I’ll be told. I’m scared and in pain.
#SmallFiberNeuropathy #AutoimmuneDiseases #AutoimmuneThyroidDisease #PostpartumDisorders #PostpartumDepression
youtu.be/BO9GV4mKGB0
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#LivingWithPOTS
#Dysautonomia
#Fibromyalgia
#SmallFiberNeuropathy
#HypermobilityEhlersDanlos #Hypermobility
#DegenerativeDiscDisease
#AutoimmuneDiseases
#OccipitalNeuralgia
#SpinalStenosis
I have Multiple Autoimmune and rare diseases along with many other health issues. I was just diagnosed with Type 2 Diabetes as well, I've been borderline for awhile but now it's full blown. #ChronicIlless #AutoimmuneDiseases #RareDisease
#DiabetesType2
Hello, has anyone who suffers with anxiety also been diagnosed with an autoimmune disorder? I have recently been experiencing many symptoms and also have a strong family history of autoimmune disease I think I may have been putting some of my symptoms down to my anxiety and convincing myself that is all it is. Would love to chat with anyone who has been disganoised but also suffers with anxiety and panic attacks. Thank you! #Anxiety #illness #autoimmune #Health
Everyday has been such a struggle. The mental pain is excruciating. It’s becoming unbearable. My mind is fogged and I have a hard time communicating. I have really no support in any way. I’m tremendously sad and reaching out for some comfort because I don’t know what else to do. I know so many people are struggling too. My heart is with you all and if you are alone, I understand your pain because I feel every bit of it. #Depression #hopeless #Anxiety #Loneliness #AutoimmuneDiseases #NeurologicalDisorder #Loneliness #Pain
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