Happy 2 Year Migraine to me! It's not deadly, just debilitating & soul sucking!
I have amazing Doctors taking care of me. In fact I would be at the #Mayo in Scottsdale if #COVID19 hadn't happened.
So how do I get through the daily? Some days I was able to get up & exercise immediately. I found if I walked right away, the endorphins would give me a 4 hour window of "health". I was even looking into going back to work in some capacity.
But most days I'm a vampire. I hide from the light, live in near silence & try not to move.
I have lost count of how many Occipital Nerve & Sphenopalantine Ganglion Nerve Blocks I've had. At least #botox is included.
I am thankful to not be in the group of #Migraineurs that have had an episode lasting 20 years. My jaw fell open when I was told that they survive on 900 mg of morphine/day. Most days I would kill for 10mg of #morphine or even 1 #tylenol3. I can't get either bc of the #OpioidCrisis . Maybe it's a blessing, but most days it's a curse.
I've been able to do some shows while heavily medicated. You just don't see what a mess I am afterwards. That my Brother has to help me at the airport bc I can't check myself in.
I wear sunglasses all the time, not to be cool, but bc that's how I deal.
So what keeps me going? I have had so many health struggles, both physically & mentally. I want you to know that our will to survive is WAY stronger than our will to die. & I've wanted to die! I literally have the #Suicide headache!
So, I've just taken my second dose of #Emgality . Fingers crossed it works! But even if it doesn't, I want you to know it's gonna be OK! I have a Husband who loves me, a roof over my head, no food insecurity, & clean water to drink. We also have 8 Nieces & Nephews growing up fast & we need to be a positive example for the kids.
I know most of us grew up thinking it was shameful to talk publicly about personal problems. I am so happy to be in an era where feelings are to be expressed & not suppressed.
I am thankful that there are people who will love you as is even if getting dressed & leaving the house isn't an option most days.
So I leave you with this....Bad times don't last!💋 #ChronicIllness #Spoonie #youdontlooksick #InvisibleIllness