youdontlooksick

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    Some Common Misconceptions About My Juvenile Arthritis

    There are a number of big misconceptions that I encounter as a teen living with juvenile idiopathic arthritis; seropositive polyarthritis. That's the type that's most similar to rheumatoid arthritis.


    One misconception is that kids don't get arthritis. Wrong! It's a different kind of arthritis, yes, but it is just as serious, if not more.


    Another is that if I don't have visible inflammation, then I must be either faking or it's not that bad. This is so incorrect! My arthritis is thankfully not visible, but that doesn't mean it's not there. It means that I need to get it under control BEFORE it deforms my joints. Once they're deformed, it's too late. I even have erosions on my bones already, but the average person can't see that. It's only seen through a specialized scan. So the fact that my fingers don't look like sausages is not a reason to say that I'm "just lazy," especially when I'm trying my best under difficult circumstances.


    Yet another is that my arthritis is limited to a very small specific area. It's not! I have it all over the place. It stems from a faulty immune system, so when my joints are attacked, my body doesn't discriminate. My jaw and neck are affected just as much as my wrists or knees or anywhere else that I have the arthritis active.


    Now one that bugs me a lot: Occasionally, when long distance walking is needed (such as amusement parks), I use an electric wheelchair to get around. Otherwise I would be in excruciating pain from my hips, ankles or knees. What bothers me is that people get shocked when they see that I can walk. Needing to use a wheelchair doesn't mean that I can't walk at all! I can, just for distances, this is much more preferable. I do not have the option of just sucking it up and walking long distance or my joints will swell. So definitely a common misconception is that a person using a wheelchair can't walk at all, although many people use wheelchairs out of convenience though they can walk somewhat.

    Comment down below if you also deal with these misconceptions or other ones! Would love to hear your stories. Lots of love to all!

    #Arthritis #JuvenileIdiopathicArthritis #RheumatoidArthritis #kidsgetarthritistoo #MISCONCEPTIONS #Wheelchair #Disability #ChronicIllness #ChronicPain #youdontlooksick

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    Raise your hand

    for every frustrating comment that you have gotten on your chronic illness journey.
    I'm hoping that if we can laugh at the comments, they'll be less hurtful.

    I'll start: Yesterday my family had a guest over for lunch. I discreetly had my pills in a cup so I could take them with the meal. He leaned over the table to pass something and happened to see the 5 pills in my cup. Raising his eyebrows, he said,
    "Vitamins, I hope?" I shrugged and nodded. Some of the pills were, but not all.
    "So many??" He asked incredulously. "Yes, so many!" 😆
    #Laugh #pills #RheumatoidArthritis #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #Medication #hurtfulcomments #funnycomments #Depression #Anxiety #Scoliosis #PTSD #youdontlooksick #tooyoungtobesick #lol #ChronicMigraines #Migraines

    28 people are talking about this
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    Happy 2 Year #Migraine to me!

    <p>Happy 2 Year <a class="tm-topic-link mighty-topic" title="Migraine" href="/topic/migraine/" data-id="5b23ce9c00553f33fe997c0a" data-name="Migraine" aria-label="hashtag Migraine">#Migraine</a>  to me!</p>
    13 people are talking about this
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    3 days of ME/CFS

    <p>3 days of ME/<a href="https://themighty.com/topic/myalgic-encephalomyelitis/?label=CFS" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9f00553f33fe99859a" data-name="CFS" title="CFS" target="_blank">CFS</a></p>
    1 person is talking about this
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    Grieving An Old Life

    Hey all, I'm new to this app, but definitely not a newbie to chronic illness. I've been coping with so many different things that it's hard to triage them on a daily basis. My immediate issue is my osteoarthritis. The level of pain that I am in constantly, day and night. Many different pain meds tried and failed, and the pain remains. I've had a grand total of 17 surgeries on my joints so far, and I'm only 41. I have had 3 shoulder replacement surgeries on my R shoulder since 2006 and am under the knife again in 20 days (March 23rd) to have my left shoulder replaced. I've also had 3 ACL reconstructions and a tibial osteotomy on my right leg as well as many other soft tissue surgeries. Nearly every DIP joint in both hands are deteriorating as well. The list of things that I can no longer do is long. I feel like I am merely a shell of my former self and have much stress and anxiety about the life I once had and will never have again. Then there's also the guilt. The guilt that has me at my wits end because of the load that my wife now carries because of my short comings. Then I feel like "am I REALLY that bad off?" "Shouldn't I just suck this up and get on with life?" Then something happens and I am quickly reminded of my current status in life. Anyone else here ever feel this way? I am having a hard time coming to terms with a life that I no longer live in. Open to your thoughts. If you are still reading this, thank you for hanging in there with me. ❤ #InvisibleIllness #youdontlooksick #Osteoarthritis

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    Barbie Post: you can be flexible and still hurt. #

    <p>Barbie Post: you can be flexible and still hurt. #</p>
    Community Voices

    Barbie Post: you can be flexible and still hurt. #

    <p>Barbie Post: you can be flexible and still hurt. #</p>
    Community Voices