Celiac Disease

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Newbie with a plan

Hi everyone. I feel like this group was meant for me. Long story short, I have suffered from chronic illness and mental health my whole life. My story is so long and crazy, it should be a movie. I lost my purpose when I lost my health, but I want to live again. I don't want anybody to feel the pain I had to feel. If I can help even one person, it will be worth it. I want to start by posting weekly, with short stories that others can relate to. I also want to add in my dry humor, just to keep you smiling. We all have had our embarrassing stories and I wont be shy to share mine. So please follow my posts as I made my first one today. I wasn't sure if I should directly post it here, so please go to my profile for now. If I am able to post it, please let me know. I also plan to create short animations on YouTube to go along with my posts next year. I am not writer, but I am genuine. So please, read my posts, reach out to me and remember, you deserve more than just a life, you deserve a happy one.

#ChronicIllness #MentalHealth #Depression #Anxiety #ObsessiveCompulsiveDisorder #CeliacDisease #AddisonsDisease

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My journey. The beginning, the downfall, but not the end.

This is the first full chapter of my life story. I’m sharing it not to seek pity, but because I know what it’s like to feel completely alone. If even one person sees themselves in my words, then writing this is worth it.

I am not going to spend weeks or even days going into why I am here today. The first post is going to be an intro into how my childhood went, where my life went wrong and give you some tidbits of what to expect in my stories going forward. So here it is, this is my life in a very short story. Let me start by saying, I am no writer. My grammar will puzzle you. My spelling will likely scare you. And my writing may even make you ill. I may even come across as annoying, but I promise you one thing, I will always be genuine. I want to help you by sharing. I will never use AI to make my writing better or to write stories for me. I am just a 40 year old average guy who has been dealt a below average life of chronic illness, anxiety, OCD and severe depression. I have spent most of it hiding away from the world out of anger. Now I want to come out of my hiding to give back to those like me. So let me start out at the beginning.

I was born in Quebec. And no, I don’t speak French. Be happy for that, as I may make your eyes bleed if I tried. My family moved to Ontario when I was 6, so please don’t hate on me for not learning! My childhood was one of a mixed bag. On one hand, I had a mother who loved me, but was timid and soft spoken. Then you had my dad, the chronic gambler with a hair trigger of a temper. One weekend I would be hitting home-runs with my dad cheering me on, and the next, he would be destroying our home out of anger. And when I say destroy, I mean he managed to turn a full sized fridge upside down (true story to come!). I never saw him much as a kid. I would go to school and when I came home, he would go out to gamble. I only had good moments with my dad when he wasn’t gambling, but that wasn’t very often. My dad had three kids, myself, my sister and his favorite, the bingo hall. I witnessed him punching strangers, my sister and even a cop at one point. I drove across Canada with him and was left stranded in Manitoba as he was arrested on the highway. Let’s just say he is the reason for a lot of my issues, but lets not give him that much time or credit today. To sum up my childhood. My sister and I were not close. She moved out at the age of 16. I moved out at the age of 17. That alone should be enough of a teaser to tell you that I have many stories to come. Hopefully you can relate to them. But for now, lets move onto the next stage of my life.

I move out at 17, scared and broke. I move into the worst building in the worst area, as this is all I can afford. This leads to stories of police raids, cockroaches, fleas and basically the plague all over again. It was a terrible experience, but I was safe and out of my home environment. Well safe if you don’t count the rodents, insect and drug addicts that constantly felt like my home was a shared space. I went on to survive on my own with multiple jobs and completed college as a Computer Programmer in 2007. I fell in love and moved to Toronto. I started my career as a Systems Analyst at a large Canadian Bank. I bought my first house at age 21 and was engaged in the same year. Life was flying by and I was loving it. Then, as almost a way of god telling me to slow down, he put a huge stop sign in front of me.

About 2 months after buying my house. And yes, this was before you had to sell a kidney just to afford a shed that needs $1 million in repairs. Those two months were the best of my life, but I barely remember them. From this point on, I kept passing out and hitting my head. I suffered over 10 concussions during the next two years. Eventually I had to go on a feeding tube because I dropped from 170lbs down to 90lbs. I am 6'10" just for reference. Ok Ok, I am 5'10", I did say no lies. Still, that is not much weight for my size. This feeding tube lasted over a year and I also spent almost six months of it, in and out of the hospital due to sepsis and other complications. I will have many more stories to come, but long story short, I was diagnosed with Refractory Celiac Disease Type 1 which basically means I have to eat GF, but will not get better without long term steroid use, which has killed my body. I was then diagnosed with Addison’s Disease (look up JFK for a celebrity match) and Hypopituitary due to head injuries. Not to mention, I had a pacemaker put in during my early 20’s due to heart sinus node failure. Through this hell on earth, I developed severe depression, anxiety, OCD, and complete social shut down. My fiancĂ© left me in 2013 while I was in the hospital. I came out to an empty home. On Sept 14, 2013, I lost my fiancĂ©, my career, my house, my pets and my purpose in life. I moved back home to live with my parents the same month. I put my house on the block and sold it in 5 minutes. Yes it kills me to know I could be rich right now, but that will be the source of another story that angers me. It was on this very day that I stopped living.

That leads me to where I am today. Since 2013 I have lived a stagnant life. The only thing that has changed is my mental health and my medication list. I am now taking 10 medications and 5 injections monthly to keep me alive. The more I cut off my friends and the world, the worse I become. I spent the last 12 years living in a 10" x 10" bedroom, just surviving. I have been to the lowest points of the earth and back. I have felt alone and scared. I have stories that haunt me and ones that make me smile. I want to share them with the world. I don’t want anybody to go through what I went though. I don’t want anybody to feel like they are alone. I want everyone reading my stories to know that we all deserve to be more than just alive, we deserve to be happy. I hope I can also take back from my listeners and to continue learning. I need you as much as you need me. Let’s go on this journey together.

With all my love and support,

Adam's Booth - Always Here to Listen

(Please feel free to post any comments or suggestions of improvements or topics for future stories. I want this to be a two way street of support.)

#ChronicIllness #MentalHealth #Depression #Anxiety #ObsessiveCompulsiveDisorder #CeliacDisease #AddisonsDisease #CongenitalHeartDefectDisease

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Motivation Monday 😁

Just a reminder that we don't all experience the same "rain" & it's really important to be kind. Remember that people are going through hard things (and we don't know what they are). Kindness is free. Offer an umbrella ☔ instead of judgement.
#Addiction #AnorexiaNervosa #Agoraphobia #AutismSpectrum #ADHD #BorderlinePersonalityDisorder #BipolarDepression #MentalHealth #PTSD #Schizophrenia #ChronicFatigueSyndrome #Lupus #Grief #CeliacDisease #POTS #Cancers #Depression #Schizophrenia

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Tip Tuesday - Setting Boundaries

Setting Boundaries can be hard, but sometimes setting boundaries with ourselves is even harder. What's a boundary you can set with yourself today?
#Addiction #AnorexiaNervosa #MentalHealth #Agoraphobia #Anxiety #Autism #ADHD #BorderlinePersonalityDisorder #BipolarDepression #PTSD #Schizophrenia #Lupus #ChronicFatigueSyndrome #CeliacDisease #Suicide #ChildLoss #Grief #Cancers

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Thankful Thursday!!

One tradition I love doing is getting a pumpkin in fall (real or fake) and adding things we are thankful for to it every day.

What would you add to the pumpkin if you could write something on it today?
#Addiction #AnorexiaNervosa #Agoraphobia #MentalHealth #AutismSpectrumDisorder #ADHD #BorderlinePersonalityDisorder #BipolarDepression #MentalHealth #PTSD #Schizophrenia #ChronicFatigueSyndrome #Lupus #CeliacDisease #Grief #SjogrensSyndrome #Cancer #Depression #SuicidalThoughts

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