Hi, my name is Apollo78. I'm here because
#MightyTogether #AutismSpectrumDisorder #Gastroparesis #PANS /PANDAS#EhlersDanlosSyndrome #Anxiety #Depression #Migraine #PTSD #FoodAllergies #POTS #FeedingTubes #GJtube #Dysautonomia #MastCellActivationDisorder
Hi, my name is darcy_hwood. I'm here because
#MightyTogether #EhlersDanlosSyndrome #Dysautonomia #MedianArcuateLigamentSyndrome #Gastroparesis #ComplexRegionalPainSyndrome #Fibromyalgia #ChronicFatigue #FeedingTubes
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I'm having major issues with EDS and my entire GI system! With esophageal spasms to vomiting and diarrhea. I've lost 30+ lbs in 3 weeks. So with all of that, I haven't been able to take my meds like I should. Especially my meds for bipolar disorder/depression and GAD. It has taken a toll on some of my relationships. One in particular I know for sure I totally fucked up and I feel horrible about it. When your body is physically broken, so is your brain. My brain has been broken for some time and I was getting better until this situation with my GI system. I feel like I'm in such a dark place right now. I mean hell, all of us maybe feeling the same. 2020 has been one giant rollercoaster full of crazy twists and turns. Yet I'm struggling really bad right now. Struggling with not listening to the crazy thoughts in my head. I'm struggling with not getting the nutrients I need to stay health and alive. I have an esophagus that's closing by the day and a stomach that hates me with a passion. What I have been trying to avoid, I can't anymore and that's a feeding tube. I know it could help the quality of my life yet the fear of something going wrong scares me a lot. What do you do when you don't know what to do?! Who knows 🤷🏾♀️... just keep breathing I guess! Keep fighting...
Ana ♿🦓🙏🏾💪🏾
#EhlersDanlosSyndrome #LifeofanEDSerwomanofcolor #BipolarDepression #WheelchairUser #Depression #FeedingTubes #Anxiety #keepfighting
I have a Nj tube, and I keep tasting my formula in the back of my mouth. Is this a thing I should be considered about?
#Gastroparesis #FeedingTube #njtube #FeedingTubes #Tubies #nasojejunal
It looks like I'm going home with an NJ tube. My GI plans on giving me the stomach tube in a few weeks. Any advice on feeding at home, or with loving pets?
Note:
I am gonna have someone to cover the basics, but I'm just wondering if I could get advice from someone who actually has/had a feeding tube at home.
#Gastroparesis #IrritableBowelSyndromeIBS #FeedingTubes
#FeedingTube #ChronicIllness #Gastroparesis #Spoonie #FeedingTubes
Hi Mighties!
My name is Ariel and I am a chronic illness advocate and have lived with gastroparesis for the last 6 years and 2 of those years with a feeding tube. During this week I’ll be answering questions about life with a feeding tube and some tips and tricks I have picked up that have been beneficial in my day to day life with a feeding tube.
[Note: I am not a medical professional and cannot dispense medical advice of any nature.]
I look forward to answering your questions. You can post them in the comments below and I will answer them throughout the week!
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