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What is something you wish people knew about living with Crohn's?
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
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Inflammatory Bowel Disease (IBD)
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How do you explain or share about your Crohn's and/or UC with others?
Living with a health condition like Crohn’s disease or Ulcerative Colitis can be challenging, frustrating, painful, and uncomfortable. It can also be hard to know how much to share — or how to explain something that isn’t always visible but affects every aspect of your daily life.
Maybe you use medical terms to help others understand the seriousness of it. Maybe you simplify things to avoid long explanations. Or maybe you keep it private unless you really trust someone.
What’s your approach? How do you talk about your condition with friends, coworkers, or family members — and what helps those conversations go more smoothly?
#UlcerativeColitis #CrohnsDisease #InflammatoryBowelDiseaseIBD #CheckInWithMe #ChronicIllness #Spoonie #MentalHealth
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Exactly how I felt off my last appointment, but add to that extreme anxiety that made me physically sick to my stomach with the WORSE headache I ever had and feeling like screaming and crying and bundling up in a ball in my bed covers over me and just not participating in life for a bit... That's how I felt because I got diagnosed with yet ANOTHER autoimmune disorder... #autoimmunedisorders #SjogrensSyndrome #InflammatoryBowelDiseaseIBD #Gastroparesis #Gastritis #Colitis
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I'm new here!
Hi, my name is beamlakalebel. I've been diagnosed with IBD since 2018 has taught me strength and resilience. Passionate about raising awareness, breaking stigma, and supporting others facing chronic illness.
#MightyTogether #Crohn 'sDisease
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Ugh
I slept till after 11am and when I woke up I had a really bad migraine. I took my meds at about 1130am and then I got sick. (Not throwing up sick)
Now my whole body is hurting. The migraine got worse. I took 3 hydroxyzine and 2 tramadol and an eletriptan. I just wanna curl up and cry.
#InflammatoryBowelDiseaseIBD #Migraine
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Migraine after Migraine is driving me bonkers!
#Migraine i just want one day that there isn't something wrong with me...
#BipolarDepression #MentalHealth #Endometriosis #Anxiety #InflammatoryBowelDiseaseIBD #Perimenopause
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Dec. 28 Stomach Troubles 🦋
As many of you know, I have Crohn’s disease / IBD being diagnosed at the age of 14. I’m 19 currently.
Throughout years it has been an up and down cycle of trouble but I thought the last few years were finally getting stable and not severe, being in remission.
However, there is unfortunately something causing a spike in symptoms that can only most likely fit with Crohn’s.
My weight has dropped significantly in a rapid decline downwards over the past year causing me to have to keep buying the size down in my clothes; I know a little weight loss is normal and healthy but this is far from it and it’s gotten a lot of my loved ones concerned.
It’s also gotten me concerned admittedly.
I understand that I do a lot of physical activity, but I really shouldn’t be losing this much weight so fast.
I do eat, I eat a lot and high calorie foods but I still don’t gain anything more than 1lb which I immediately lose the next day or two, it’s just been a rapid downward trend.
I don’t understand why this is happening but I’m worried my body isn’t processing nutrients for some reason and unfortunately that’s common in Crohn’s patients like myself.
As far as stomach pain, I still get that but not very intensely. The main concern is the weight loss that isn’t responsive to food.
I know some people can end up with a feeding tube and I really don’t want that.
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