Kidney Disease

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I’m new here!

Hi, my name is Blazewoman84.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #OCD #Grief #ChronicFatigueSyndrome #AutismSpectrumDisorder #ADHD #chronic Fatigue Syndrome #chronic Liver Disease with Cirrhosis #chronic Kidney Disease Stage 3 #degenerative Disc Disease # Numerous herniated and pinched nerves #and numerous other diseases and disorders.

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What do you feel is the hardest part about living with PH1?

Living with PH1 can be really challenging, and oftentimes looks different for everyone. What do you feel is the hardest part about living with PH1? What do you wish others better understood?

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1

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What do you feel is the hardest part about living with PH1?

Living with PH1 can be really challenging, and oftentimes looks different for everyone. What do you feel is the hardest part about living with PH1? What do you wish others better understood?

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1

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What do you feel is the hardest part about living with PH1?

Living with PH1 can be really challenging, and oftentimes looks different for everyone. What do you feel is the hardest part about living with PH1? What do you wish others better understood?

#KidneyDisease #KidneyTransplant #LiverTransplant #Transplant #OrganTransplant #kidneyawareness #KidneyStones #KidneyPain #KidneyProblems #RareDisease #ChronicIllness #CKD #ChronicKidneyDisease #PrimaryHyperoxaluriaType1

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We Are Getting There #Hyperthyroidism #CKD #Anxiety #SeizureDisorder

Update from my last post. The black cat in the picture is my hospice foster Lady Greensleeve AKA Green Bean as I call her. The yellow cat is my foster fail Hatch. Yesterday I posted about how stressed and overwhelmed I was with Green Bean. Today, I had a seizure at church and I'm fine but was exhausted so I laid down for a nap. I woke up to her and a total of 5 out of my 6 cats in bed with me. These two were the only ones left when I was able to get a picture. First time she's actually slept with me. I am still tired but glad she is doing better than yesterday and I am going to eat then the cats and I are going to get more sleep.

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We Are Getting There #Hyperthyroidism #CKD #Anxiety #SeizureDisorder

Update from my last post. The black cat in the picture is my hospice foster Lady Greensleeve AKA Green Bean as I call her. The yellow cat is my foster fail Hatch. Yesterday I posted about how stressed and overwhelmed I was with Green Bean. Today, I had a seizure at church and I'm fine but was exhausted so I laid down for a nap. I woke up to her and a total of 5 out of my 6 cats in bed with me. These two were the only ones left when I was able to get a picture. First time she's actually slept with me. I am still tired but glad she is doing better than yesterday and I am going to eat then the cats and I are going to get more sleep.

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I can do this but #fostercat #BipolarDepression #5minutesplease

I foster cats and kittens for my local shelter, and majority of them have some sort of medical issues themselves. Might as well put my knowledge to use. I originally registered to be a hospice foster, but they are not too common so last year I did medical kittens. Well today I took my foster who has severe hyperthyroidism and just started treatment for her shots and dewormer. I'm going home on the bus and she gets sooo sooo sick that she was vomiting blood. Back to the humane society I go. Now it's a mile walk round trip and anywhere from a hour to hour and a half bus ride with transfers. I love these babies and will do anything for them. Even if I have to steal spoons from tomorrow. But right now I'm exhausted, frustrated because they only just told me today she has kidney disease, and ready to scream, because I feel overwhelmed and that's not normal for me with these babies. Tomorrow I will be fine, most likely I'll be fine after a meal and a rest, but right now, I feel like I can't do this.

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Need Some Advice

Hey, everyone 👋☺️. Hope you are all doing well ☺️🙏.

Need some advice from anyone on here who has a parent or relative that has Chronic Kidney Disease.

My mother was recently diagnosed with it and I would really appreciate some advice on how to help her. She is in good spirits plus she is still able to lead a normal life, thank the Good Lord 🙏☺️.

Like I previously mentioned, I am looking for ways I can be of help.

Thank you in advance for any advice given.

#KidneyDisease #MentalHealth

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6 Young Adult Books About Transplants

Going through a transplant can be extremely tiring, frustrating, and feeling like you’re in isolation. But you’re not alone! Here are 6 books that prove that:

1. “Faceless” by Alyssa Sheinmel
When Maisie Winters wakes up, she’s in the hospital. The last thing she remembers is running through the hills of her neighborhood one misty morning. Slowly, she puts the pieces together. Before she could make it home, a storm gathered. Lightning hit a power line and sparks rained down, the hot-burning electrical fire consuming her. Destroying her face. Where her nose, cheeks, and chin used to be, now there is…nothing. Maisie’s lucky enough to qualify for a rare medical treatment: a face transplant. At least, everyone says she’s lucky. But with someone else’s features staring back at her in the mirror, Maisie looks—and feels—like a stranger. The doctors promised that the transplant was her chance to live a normal life again, but nothing feels normal anymore. Before, she knew who she was—a regular girl who ran track and got good grades, who loved her boyfriend and her best friend. Now, she can’t even recognize herself. New York Times bestselling author Alyssa Sheinmel has created a gripping and gorgeously written tale of identity and love. This is a story of losing yourself and the long, hard fight to find your way back.

2. “Five Feet Apart” by Rachael Lippincott
In this moving story two teens fall in love with just one minor complication—they can’t get within five feet of each other without risking their lives. Can you love someone you can never touch? Stella Grant likes to be in control—even though her totally out of control lungs have sent her in and out of the hospital most of her life. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Six feet apart. No exceptions. The only thing Will Newman wants to be in control of is getting out of this hospital. He couldn’t care less about his treatments, or a fancy new clinical drug trial. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. Will’s exactly what Stella needs to stay away from. If he so much as breathes on Stella she could lose her spot on the transplant list. Either one of them could die. The only way to stay alive is to stay apart. But suddenly six feet doesn’t feel like safety. It feels like punishment. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too?

3. “Things We Know By Heart” by Jessi Kirby
In this unforgettable novel, Quinn Sullivan falls for the recipient of her boyfriend’s donated heart. After Quinn’s boyfriend, Trent, dies in an accident their junior year, she reaches out to the recipients of his donated organs in hopes of picking up the fragments of her now-unrecognizable life. But whoever received Trent’s heart has chosen to remain silent. The essence of a person, Quinn has always believed, is in the heart. If she finds Trent’s, then in a way, she will still have a piece of him. Risking everything to get closure once and for all, Quinn goes outside the system to track down nineteen-year-old Colton Thomas, whose life has been forever changed by this priceless gift. But what starts as an accidental run-in quickly develops into something more, sparking an undeniable attraction. She doesn’t want to give in to it—especially since he has no idea how they’re connected—but the time Quinn spends with Colton makes her feel alive again. No matter how hard she’s falling for Colton, though, each beat of his heart reminds her of all she’s lost . . . and all that remains at stake.

4. “Heart To Heart” by Lurlene McDaniel
Elowyn Eden and Kassey Messechek are best friends. They share every aspect of their lives. But one thing Elowyn has not yet shared with Kassey is that she checked the organ donor box on her newly acquired driver's license. Kassey only learns of this in a startling and devastating way—when Elowyn's life-giving donor wishes are about to be honored. Arabeth St. Clair has not had the luck to have a best friend. Due to her diseased heart, she's led a sheltered life. When Arabeth is sixteen, she and her mother receive the call that will change their lives—but they don't know to whom they should be forever grateful. When the worlds of these three girls and their families intersect, lives are changed in ways never imagined. Most especially, it is Kassey who sees things differently, for she can keep alive the memory of her dear friend by sharing the renewed life of another teenage girl, while helping to ease the pain of the two families involved and coming to terms with her own.

5. “Saving Jessica” by Lurlene McDaniel
Jessica McMillian and Jeremy Travino are a perfect couple. But now Jessica has been diagnosed as having kidney failure. She is on dialysis three days a week and is so depressed that she's not sure she wants to live. Her one hope for a normal life is a kidney transplant, but she's an only child and her parents aren't suitable donors. Jeremy is determined to donate one of his kidneys to her, but his parents are terrified of losing their only child. Will Jeremy find the strength to go against his parent's wishes and do what he must to save Jessica?

6. “The Arrival of Someday” by Jen Malone
In this heartfelt and emotionally candid contemporary YA, author Jen Malone delves into the life of a teen whose world is brought to an abrupt halt when she learns she’s in dire need of an organ transplant. Hard-charging and irrepressible eighteen-year-old Amelia Linehan could see a roller derby opponent a mile away—and that’s while crouched down, bent over skates, and zooming around a track at the speed of light. They don’t call her Rolldemort for nothing! What she couldn’t see coming, however, was the unexpected flare-up of a rare liver disorder she was born with. But now it’s the only thing she—and everyone around her—can think about. With no guarantee of a viable organ transplant, everything Amelia’s been sure of—like her college plans, the mural she’d been commissioned to paint, or the possibility of one day falling in love—has become a huge question mark, threatening to drag her down into a sea of what-ifs she’s desperate to avoid. Then a friend from the past shows up. With Will, it’s easy to forget about what’s lurking underneath the lightness of their time together. It’s easy to feel alive when all signs point elsewhere. On the other hand, with the odds decidedly not in her favor, Amelia knows this feeling couldn’t last forever. But what can?

📚 Happy reading! ❤️

#themightyreaders #Transplant #CysticFibrosis #HeartTransplant #KidneyDisease

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I'm new here!

Hi, my name is Slinkyman. I'm here because my wife and I are dealing with a lot physically and mentally and I am looking for support/information/community.
#MightyTogether #Anxiety #Depression #COPD #DiabeticNeuropathy #CKD #Fibromyalgia #Arthritis #BreastCancer

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