Hi, my name is magz1766. I've been diagnosed with
Chronic Constipation Degeneration Disc Disease Kidney Cancer in remission a year now
#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #Grief
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Good morning, looking for some advice. I found out last week I have Mets to multiple areas in my chest and abdomen as well as my thyroid. Still have a brain scan to do but the treatment plan is:
Opdivo every 4 weeks and Cabo daily. I'm looking for advice in 2 areas.
1) Lifestyle and diet recommendations to minimize side effects.
2) Products to buy to help ease the side effects.
Thanks in advance for any help! #Cancer
1 reaction Hi, my name is Chrissy. I'm here because I am a stroke survivor and a kidney cancer survivor at the young age of 44. I was introduced to this website by a family member and thought this may be a great place to meet others who have some of the same struggles as me dealing with anxiety, depression, and chronic pain. Looking for guidance and excited to meet new people on the same journey as me❤️
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#Cancer I was diagnosed with renal cell carcinoma and had my kidney removed in September. Not a major deal really. No chemo, no radiation Just follow up with you urologist every year. Well one of my blood tests were elevated after surgery, not getting a real answer from anybody so I'm just assuming it's my new normal. Nobody gives me a straight answer but they send me off to a nephrologist. Now I have chronic kidney disease. If I realize that this was going to be one of the side effects I would never had my kidney removed. I just feel like I went through this for nothing!
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Like any surgery, we know there are many benefits and risks to consider when you are eligible for an organ transplant, including the process of finding a donor, which can be long and challenging.
Have you or your loved one received (or considered) a kidney or liver transplant as an option for treating kidney failure or primary hyperoxaluria type 1 (PH1)? If so, share your experiences with the process, including any hopes and worries, in the comments below. ⬇️
#RareDisease #ChronicIllness #KidneyDisease #KidneyTransplant #KidneyCancer #KidneyStones #PH1 #LiverTransplant #OrganTransplant
Our family has had one hell of a few years. We loss my younger brother on 12-24-2018 he was 44. My mother passed from kidney cancer on 8-24-2020. My son was diagnosed with clinical depression, ptsd and bi-polar disorder.my father passed from a heart attack on7-4-2021. My oldest son is autistic high functioning. And my daughter is an angry 11 year old whom thinks she is 16. It flares me to no end. I have RA, Fibromyalgia, hypothyroidism, chronic pain and fatigue, depression. I just try to get through the day.
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I’m a 19-year-old college advocate hoping to reach the FDA to promote the accelerate of cures/vaccines for incurable diseases. Please help by signing the petition and promoting it to your social media if you agree with my petition. We can start by passing the Promising Pathway Act Bill.
For more information read my petition…
www.change.org/p/janet-woodcock-m-d-accelerate-the-developme...
iamals.org/action/promising-pathway-act
** TAKES LESS THAN 3 MINS COMBINED TO COMPLETE **
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2 reactions I was already overwhelmed with dealing with the cirrhosis and all the st that comes with it. Then I they think they saw something on the MRI kidney then I broke my hip bone. I got doctors coming left and right. Some trying to change medication I been on for years. No not doing that talk to my GI man 1st Physically Therapy can’t drive they don’t want to give you pain meds nothing but tramadol. I got other things happening too. So I have time for nothing but do the stuff I have to do to me make phone call for meds or dr appointment virtual visit and they take the good sweet time coming to the visit. Like you have nothing else to do. I have to cook because I can’t eat no salt so eating out is not a option. I can’t even eat anything if I visit my family. They say I just used a little. What is it you don’t understand about none. So I have to bring my own food. And all this time I been on lock down the only person to come and see if I needed anything was my daughter who is working 6 days a week 10 to 12 hours. You got about 5 more people no job nothing. Well am done. For today.
1 reaction What is it about this month!
My bosses mom was diagnosed with bone cancer a few weeks ago. My great aunt was diagnosed with kidney cancer last week. My mom just received a call that my grandma has colon cancer.
#Depression #Anxiety #PTSD #CPTSD #cancersucks
hi guys I need your help. You guys are the only people I can think of that could help. About 2 days I was in New York with my dad when I passed out in the shower due to pain from kidney stones. I then went to the hospital (it was the most competent, helpful place I’ve ever been) by ambulance where they gave me IV fluids, along with multiple doses of zofran, toradol and morphine (those didn’t do anything for my pain) and an bolus of fluid and antibiotics. the antibiotics seemly made me worse because after I was puking my brains out, broke out in hives, and my pain was 9/10. My lovely nurse had the Dr. put in an order for dilaudid and within 2 minutes it was in my IV and it was the only thing that helped me. I could lay down in the bed without having to curl into a ball. They discharged me once I had stopped sobbing and throwing up in pain. The only issue was I had to drive home 5 hours to Massachusetts, and now that I’m home, I am once again sobbing and writhing in pain. It is 9/10 at its worst, but besties i’m kinda freaking out here. i saw the dr yesterday afternoon and he changed my antibiotic to one that I’ve had before and my hives are already better( I took my first dose at 3:00pm on 5/17 and it is 8:15am on 5/18 and they are already flattening and less red) and he gave me oral toradol. The reason I’m freaking out is he said my urine looks good, but my labs are FUBAR, and that he doesn’t know why I’m in so much pain. He said that he can clearly see that I am in a lot of pain, but he doesn’t know why. I’m waiting for nephrology to get back to me because that’s who he suggested I contact. But I’ll tell you, as soon as he said you’re urine looks fine and you don’t have any visible stones, by brain said “you have kidney cancer babe”. Idk if any of you guys have ever had similar experiences/symptoms but my mind is my own worst enemy and i am spinning mad scenarios.
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